Development of the conversation tool "I-HARP for COPD" for early identification of palliative care needs in patients with chronic obstructive pulmonary disease

被引:2
作者
Huijten, Daniel C. M. [1 ,2 ,3 ]
Hofstede, Laura [1 ,2 ]
Simons, Sami O. [4 ,5 ]
Ament, Stephanie C. M. [6 ]
Gunnink-Boonstra, Nicolette [7 ]
van den Beuken-van Everdingen, Marieke H. J. [8 ]
Janssen, Daisy J. A. [1 ,2 ,9 ]
机构
[1] Maastricht Univ, Care & Publ Hlth Res Inst, Dept Hlth Serv Res, Maastricht, Netherlands
[2] Maastricht Univ, Dept Family Med, Maastricht, Netherlands
[3] Zuyderland Med Ctr, Dept Nursing Sci, Geleen, Netherlands
[4] Maastricht Univ, Dept Resp Med, Maastricht, Netherlands
[5] NUTRIM Sch Nutr & Translat Res Metab, Dept Resp Med, Div Resp & Age related Hlth, Maastricht, Netherlands
[6] Maastricht Univ Med Ctr MUMC, Dept Qual Innovat & Res, Maastricht, Netherlands
[7] Onze Lieve Vrouwe Gasthuis OLVG, Dept Internal Med, Amsterdam, Netherlands
[8] Maastricht Univ Med Ctr MUMC, Ctr Expertise Palliat Care, Maastricht, Netherlands
[9] Ciro Horn, Dept Res & Dev, Haelen, Netherlands
关键词
COPD; palliative care; needs assessment; advance care planning; EVALUATING COMPLEX INTERVENTIONS; UNMET NEEDS; PEOPLE; PERSPECTIVES; INTEGRATION; FAILURE; SUPPORT;
D O I
10.1017/S1478951524000191
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Objectives This study aimed to develop the conversation tool "I-HARP for COPD" for timely identification of palliative care needs in Dutch patients with chronic obstructive pulmonary disease (COPD).Methods An iterative and participatory research design was used to develop "I-HARP for COPD". There were 2 phases to the development of "I-HARP for COPD": content development and testing. A review of current literature, parallel focus groups, and a questionnaire among experts were used to develop the content of "I-HARP for COPD". "I-HARP for COPD" was then assessed by health-care professionals (HCPs) in clinical practice for understanding, difficulty, and relevance.Results A total of 46 HCPs, 6 patients, 1 informal caregiver, and 1 bereaved informal caregiver participated in this study. "I-HARP for COPD" included 14 screening questions, additional in-depth questions, and recommendations to address identified needs. The content of "I-HARP for COPD" was accepted by 86.2% of the HCPs.Significance of results "I-HARP for COPD" was successfully developed for providing guidance in the palliative care of Dutch patients with COPD and their informal caregivers. By supporting HCPs with "I-HARP for COPD", they are better able to timely identify and direct palliative care needs.
引用
收藏
页码:1856 / 1864
页数:9
相关论文
共 44 条
[1]   Professionals guidance about palliative medicine in chronic heart failure: a mixed-method study [J].
Ament, Stephanie M. C. ;
van den Beuken-everdingen, Marieke ;
Maessen, Jose M. C. ;
Boyne, Josiane ;
Schols, Jos M. G. A. ;
Stoffers, Henri E. J. H. ;
Bellersen, Louise ;
Brunner-La Rocca, Hans-Peter ;
Engels, Yvonne ;
Janssen, Daisy J. A. .
BMJ SUPPORTIVE & PALLIATIVE CARE, 2024, 14 (E2) :e1858-e1865
[2]  
[Anonymous], Qualtrics .XM
[3]  
[Anonymous], 2002, NAT CANC CONTR PROGR
[4]  
[Anonymous], 2016, General Data Protection Regulation (GDPR)
[5]   Spiritual care provision to end-of-life patients: A systematic literature review [J].
Batstone, Elizabeth ;
Bailey, Cara ;
Hallett, Nutmeg .
JOURNAL OF CLINICAL NURSING, 2020, 29 (19-20) :3609-3624
[6]   Adapting the Serious Illness Conversation Guide for Dementia Care [J].
Berry, Charlotte E. ;
Montgomery, Sophie H. ;
Santulli, Robert ;
Cullinan, Amelia .
AMERICAN JOURNAL OF HOSPICE & PALLIATIVE MEDICINE, 2024, 41 (08) :942-951
[7]   Existential suffering in the day to day lives of those living with palliative care needs arising from chronic obstructive pulmonary disease (COPD): A systematic integrative literature review [J].
Bolton, Louise Elizabeth ;
Seymour, Jane ;
Gardiner, Clare .
PALLIATIVE MEDICINE, 2022, 36 (04) :567-580
[8]   Provision of Palliative Care in Patients with COPD: A Survey Among Pulmonologists and General Practitioners [J].
Broese, Johanna M. C. ;
van der Kleij, Rianne M. J. J. ;
Verschuur, Els M. L. ;
Kerstjens, Huib A. M. ;
Engels, Yvonne ;
Chavannes, Niels H. .
INTERNATIONAL JOURNAL OF CHRONIC OBSTRUCTIVE PULMONARY DISEASE, 2021, 16 :783-794
[9]   Effectiveness and implementation of palliative care interventions for patients with chronic obstructive pulmonary disease: A systematic review [J].
Broese, Johanna M. C. ;
de Heij, Albert H. ;
Janssen, Daisy J. A. ;
Skora, Julia A. ;
Kerstjens, Huib A. M. ;
Chavannes, Niels H. ;
Engels, Yvonne ;
van der Kleij, Rianne M. J. J. .
PALLIATIVE MEDICINE, 2021, 35 (03) :486-502
[10]  
Bureau taal, 2002, TEXAMEN