Development and Validation of a Tool to Assess the Structural Quality of Palliative Care Services

被引:1
作者
Gallastegui-Brana, Aintzane [1 ,2 ]
Rodriguez-Nunez, Alfredo [1 ,3 ,4 ]
Palacios, Josefa [1 ]
Soto-Soto, Fernanda [4 ]
Castellano, Joel [5 ]
Soto-Guerreo, Sebastia [1 ]
Perez-Cruz, Pedro E. [1 ,3 ,6 ]
机构
[1] Pontificia Univ Catolica Chile, Fac Med, Programa Med Paliat & Cuidados Continuos, Santiago, Chile
[2] Pontificia Univ Catolica Chile, Escuela Enfermeria, Ctr Colaborador OPS OMS, Santiago, Chile
[3] Pontificia Univ Catolica Chile, Escuela Med, Secc Med Paliat, Santiago, Chile
[4] Inst Nacl Canc, Santiago, Chile
[5] Pontificia Univ Catolica Chile, Programa Farmacol & Toxicol, Santiago, Chile
[6] Pontificia Univ Catolica Chile, Fac Med, Secc Med Paliat, Diagonal Paraguay 362,Oficina 523, Santiago 8330077, Chile
关键词
Palliative care; validation; consensus development; health services; health care quality indicator; INDICATORS; RECOMMENDATIONS; COUNTRIES; DELPHI;
D O I
10.1016/j.jpainsymman.2023.01.006
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Context. The current gap in access to palliative care requires the expansion of palliative care services worldwide. There is little information about the structural components required by palliative care services to provide adequate end-of-life care. No specific tools have been developed to assess the structural quality of these services. Objective. To develop and validate a tool to assess the structural quality of palliative care services. Methods. A scoping review of literature was performed to identify structural quality indicators of palliative care services. National experts participated in a two-round Delphi method to reach consensus regarding the importance and measurement feasibility of each proposed indicator. Consensus was reached for each indicator if 60% or more considered them both important and feasible. The selected indicators were tested among Chilean palliative care services to assess instrument psychometric characteristics. Results. Thirty-one indicators were identified. Thirty-five experts participated in a two-round Delphi survey. Twenty-one indicators reached consensus and were included in the structural quality of palliative care services tool (SQPCS-21). This instrument was applied to 201 out of 250 palliative care services in Chile. Achievement for each indicator varied between 8% and 96% (mean 52%). The total SQPCS-21 score varied between 3 and 21 points (mean 11 points). Conclusion. The SQPCS-21 tool to assess structural quality of palliative care services, has good content and construct validity and its application provides information about institutions at the individual and aggregated level. This tool can provide guidance to monitor the structural quality of palliative care worldwide. J Pain Symptom Manage 2023;65:490-499. (c) 2023 American Academy of Hospice and Palliative Medicine. Published by Elsevier Inc. All rights reserved.
引用
收藏
页码:490 / 499.e50
页数:60
相关论文
共 32 条
[1]  
African Palliative Care Association, 2010, APCA STAND PROV QUAL
[2]  
Agency for Healthcare Research and Quality, 2015, Types of health care quality measures
[3]   A systematic review and critical appraisal of quality indicators to assess optimal palliative care for older people with dementia [J].
Amador, Sarah ;
Sampson, Elizabeth L. ;
Goodman, Claire ;
Robinson, Louise .
PALLIATIVE MEDICINE, 2019, 33 (04) :415-429
[4]  
[Anonymous], 2021, Assessing the development of palliative care worldwide: a set of actionable indicators
[5]  
[Anonymous], 2009, EUROPEAN J PALLIATIV, V16, P278, DOI DOI 10.1055/S-0031-1276909
[6]  
[Anonymous], 2018, National consensus project clinical practice guidelines for quality palliative care
[7]  
[Anonymous], 2009, End of Life Care Strategy: Quality Markers and measures for end of life care
[8]  
[Anonymous], 2021, Palliative care
[9]  
Arias-Casais N, 2019, Brief manual health indicators monitoring global palliative care development
[10]   EAPC White Paper on outcome measurement in palliative care: Improving practice, attaining outcomes and delivering quality services - Recommendations from the European Association for Palliative Care (EAPC) Task Force on Outcome Measurement [J].
Bausewein, Claudia ;
Daveson, Barbara A. ;
Currow, David C. ;
Downing, Julia ;
Deliens, Luc ;
Radbruch, Lukas ;
Defilippi, Kath ;
Lopes Ferreira, Pedro ;
Costantini, Massimo ;
Harding, Richard ;
Higginson, Irene J. .
PALLIATIVE MEDICINE, 2016, 30 (01) :6-22