Patient and public involvement in emergency care research: a scoping review of the literature

被引:3
作者
Muir, Rachel [1 ,2 ,3 ]
Carlini, Joan [2 ,4 ,5 ]
Crilly, Julia [1 ,2 ,3 ]
Ranse, Jamie [1 ,2 ,3 ]
机构
[1] Griffith Univ, Sch Nursing & Midwifery, Gold Coast, Qld, Australia
[2] Griffith Univ, Menzies Hlth Inst Queensland, Gold Coast, Qld, Australia
[3] Gold Coast Hosp, Dept Emergency Med, Hlth Serv, Gold Coast, Qld, Australia
[4] Gold Coast Hosp, Hlth Serv, Consumer Advisory Grp, Gold Coast, Qld, Australia
[5] Griffith Univ, Dept Mkt, Gold Coast, Qld, Australia
关键词
emergency department; research; education; systematic review; CO-DESIGN; EXPERIENCE; QUALITY; IMPROVE; IMPACT;
D O I
10.1136/emermed-2022-212514
中图分类号
R4 [临床医学];
学科分类号
1002 ; 100602 ;
摘要
BackgroundEstablishing the benefits of patient and public involvement (PPI) in emergency care research is important to improve the quality and relevance of research. Little is known about the extent of PPI in emergency care research, its methodological and reporting quality. This scoping review aimed to establish the extent of PPI in emergency care research, identify PPI strategies and processes and assess the quality of reporting on PPI in emergency care research. MethodsKeyword searches of five databases (OVID MEDLINE, Elsevier EMBASE, EBSCO CINAHL, PsychInfo, Cochrane Central Register of Controlled trials); hand searches of 12 specialist journals and citation searches of the included journal articles were performed. A patient representative contributed to research design and co-authored this review. ResultsA total of 28 studies reporting PPI from the USA, Canada, UK, Australia and Ghana were included. The quality of reporting was variable, with only seven studies satisfying all Guidance for Reporting Involvement of Patients and the Public short form reporting criteria. None of the included studies adequately described all the key aspects of reporting the impact of PPI. ConclusionRelatively few emergency care studies comprehensively describe PPI. Opportunity exists to improve the consistency and quality of reporting of PPI in emergency care research. Further research is required to better understand the specific challenges for implementing PPI in emergency care research, and to determine whether emergency care researchers have adequate resources, education and funding to undertake and report involvement.
引用
收藏
页码:596 / 605
页数:10
相关论文
共 64 条
[1]   The Canadian anaphylaxis action plan for kids: development and validation [J].
Alqurashi, Waleed ;
Awadia, Alisha ;
Pouliot, Annie ;
Cloutier, Michel ;
Hotte, Simon ;
Segal, Lauren ;
Barrowman, Nick ;
Irwin, Danica ;
Vaillancourt, Regis .
PATIENT EDUCATION AND COUNSELING, 2020, 103 (01) :227-233
[2]  
[Anonymous], 2014, STRAT PAT OR RES PAT
[3]  
Arksey H., 2005, International journal of social research methodology, V8, P19, DOI [10.1080/1364557032000119616, DOI 10.1080/1364557032000119616, https://doi.org/10.1080/1364557032000119616]
[4]   Development of an App to Facilitate Communication and Shared Decision-making With Parents of Febrile Infants ≤ 60 Days Old [J].
Aronson, Paul L. ;
Politi, Mary C. ;
Schaeffer, Paula ;
Fleischer, Eduardo ;
Shapiro, Eugene D. ;
Niccolai, Linda M. ;
Alpern, Elizabeth R. ;
Bernstein, Steven L. ;
Fraenkel, Liana .
ACADEMIC EMERGENCY MEDICINE, 2021, 28 (01) :46-59
[5]   Patient and public involvement in the design, administration and evaluation of patient feedback tools, an example in psychiatry: a systematic review and critical interpretative synthesis [J].
Baines, Rebecca ;
Donovan, John ;
de Bere, Sam Regan ;
Archer, Julian ;
Jones, Ray .
JOURNAL OF HEALTH SERVICES RESEARCH & POLICY, 2019, 24 (02) :130-142
[6]   Pediatric Emergency Research Canada (PERC): Patient/Family-informed Research Priorities for Pediatric Emergency Medicine [J].
Bialy, Liza ;
Plint, Amy C. ;
Freedman, Stephen B. ;
Johnson, David W. ;
Curran, Janet A. ;
Stang, Antonia S. .
ACADEMIC EMERGENCY MEDICINE, 2018, 25 (12) :1365-1374
[7]   Using Experience-based Co-design with older patients, their families and staff to improve palliative care experiences in the Emergency Department: A reflective critique on the process and outcomes [J].
Blackwell, Rebecca Wright Nee ;
Lowton, Karen ;
Robert, Glenn ;
Grudzen, Corita ;
Grocott, Patricia .
INTERNATIONAL JOURNAL OF NURSING STUDIES, 2017, 68 :83-94
[8]  
bmj, BRIT MED J PATIENT P
[9]   Efficacy of a Discharge Educational Strategy vs Standard Discharge Care on Reduction of Vascular Risk in Patients With Stroke and Transient Ischemic Attack The DESERVE Randomized Clinical Trial [J].
Boden-Albala, Bernadette ;
Goldmann, Emily ;
Parikh, Nina S. ;
Carman, Heather ;
Roberts, Eric T. ;
Lord, Aaron S. ;
Torrico, Veronica ;
Appleton, Noa ;
Birkemeier, Joel ;
Parides, Michael ;
Quarles, Leigh .
JAMA NEUROLOGY, 2019, 76 (01) :20-27
[10]   Opening the door: Inviting youth and parent perspectives on youth mental health emergency department use [J].
Campbell L.A. ;
Lovas D. ;
Withers E. ;
Peacock K. .
Research Involvement and Engagement, 6 (1)