Challenged thriving: a qualitative study of resilience in multiple sclerosis family carers during the COVID-19 pandemic

被引：2

作者：

Mckenna, Odessa ^{[1
]}

Fakolade, Afolasade ^{[2
]}

Cardwell, Katherine ^{[1
]}

Pilutti, Lara A. ^{[1
]}

机构：

[1] Univ Ottawa, Ottawa, ON, Canada

[2] Queens Univ, Kingston, ON, Canada

来源：

INTERNATIONAL JOURNAL OF CARE AND CARING | 2024年 / 8卷 / 02期

基金：

加拿大健康研究院;

关键词：

resilience; family carers; multiple sclerosis; qualitative; COVID-19; SAMPLE-SIZE; CAREGIVERS; DEMENTIA; PATIENT; SUPPORT; SPORT; NEEDS; MS;

D O I：

10.1332/23978821Y2023D000000015

中图分类号：

C [社会科学总论];

学科分类号：

03 ; 0303 ;

摘要：

This study investigates the lived experiences of multiple sclerosis family carers during the COVID-19 pandemic and explores the impact of the pandemic on psychological resilience processes using a socioecological framework. Following thematic analysis of interviews, two main findings emerged: first, behavioural vigilance intended to mitigate viral spread eclipsed carers' needs and deprived them of support resources; and, second, multiple sclerosis carers harboured resilience via practices of gratitude and leveraging interpersonal relationships. Future action is needed to develop public crisis responses that integrate multiple sclerosis carers' needs, including improved care-continuity models, the alleviation of social isolation and advancements in multifaceted wellness preservation.

引用

收藏

页码：228 / 245

页数：18

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