Evaluation of a nurse-led multi-component transition program for adolescents with congenital heart disease

被引：3

作者：

de Hosson, Michele ^{[1
,8
]}

De Groote, Katya ^{[2
]}

Van Hecke, Ann ^{[3
,4
]}

De Wolf, Daniel ^{[2
]}

Vandekerckhove, Kristof ^{[2
]}

Mosquera, Laura Muino ^{[2
]}

Panzer, Joseph ^{[2
]}

Logghe, Karen ^{[2
]}

Mels, Saskia ^{[5
]}

Demulier, Laurent ^{[1
]}

Campens, Laurence ^{[1
]}

Goossens, Eva ^{[6
,7
]}

De Backer, Julie ^{[1
]}

机构：

[1] Ghent Univ Hosp, Dept Adult Congenital Heart Dis, Ghent, Belgium

[2] Ghent Univ Hosp, Dept Pedicatr Cardiol, Ghent, Belgium

[3] Univ Ghent, Univ Ctr Nursing & Midwifery, Fac Med & Hlth Sci, Dept Publ Hlth & Primary Care, Ghent, Belgium

[4] Ghent Univ Hosp, Staff Nursing Dept, Ghent, Belgium

[5] Ghent Univ Hosp, Dept Pediat Psychol, Ghent, Belgium

[6] Univ Antwerp, Ctr Res & Innovat Care CRIC, Dept Nursing & Midwifery Sci, Antwerp, Belgium

[7] Katholieke Univ Leuven, Dept Publ Hlth & Primary Care, Leuven, Belgium

[8] Ghent Univ Hosp, Corneel Heymanslaan 10, B-9000 Ghent, Belgium

来源：

PATIENT EDUCATION AND COUNSELING | 2024年 / 118卷

关键词：

Heart defects; Congenital; Transitional Care; Transition Program; Transition to adult care Chronic Disease; HEALTH-CARE TRANSITION; YOUNG-PEOPLE; NEEDS; EXPERIENCES; OUTCOMES; PATIENT; ADULTS; INTERVENTIONS; MANAGEMENT; READINESS;

D O I：

10.1016/j.pec.2023.108028

中图分类号：

R1 [预防医学、卫生学];

学科分类号：

1004 ; 120402 ;

摘要：

Objective: To evaluate the effectiveness of the transition program for adolescents with congenital heart disease (CHD) 'Transition With a Heart' (TWAH) on disease-related knowledge, quality of life (QoL), transition experiences, and gaps in follow-up.Methods: A study with pre-posttest and control group (post-test) using consecutive sampling, including adolescents with moderate to severely complex CHD, without intellectual disability, aged >= 12 y, and parents. After weighting, t-tests were performed. A multivariable regression analysis explored the outcomes' determinants.Results: In the intervention group, 28 adolescents and 25 parents were included, and 53 adolescents and 18 parents as controls. Adolescents' knowledge significantly increased after completing TWAH (from 59.8% to 75.7%;p < 0.01). Their knowledge was positively correlated with TWAH (beta = +13.3;p < 0.01). Adolescents' transition experiences were also positively related to TWAH (general experience: beta = +5.5;p < 0.01; transfer satisfaction: beta = +0.8; p < 0.01). Adolescents' QoL was mainly determined by CHD complexity and not by TWAH. No one showed gaps in follow-up. TWAH was not associated with parents' transition experiences.Conclusion: Implementing TWAH substantially improved adolescents' disease-related knowledge and transition experiences.Practice implications: The results regarding transition experiences need to be confirmed by further research. The TWAH design with the person-tailored educational program, skills training, and the transition coordinator can be used in settings with other chronic diseases.

引用

页数：10

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