Patients' Experiences With Therapeutic Approaches for Post-COVID Syndrome: Results of a Crowdsourced Research Survey

被引：3

作者：

Klocke, Carina ^{[1
,2
]}

Valentini, Jan ^{[1
,2
]}

Stolz, Regina ^{[1
,2
]}

Gassner, Lena ^{[1
,2
]}

Joos, Stefanie ^{[1
,2
,3
,4
]}

Foerster, Christian ^{[1
,2
]}

机构：

[1] Univ Hosp, Inst Gen Practice & Interprofes s Care, Osianderstr 5, D-72076 Tubingen, Germany

[2] Fac Med, Tubingen, Germany

[3] Univ Hosp, Ctr Publ Hlth, Tubingen, Germany

[4] Univ Hosp, Hlth Serv Res, Tubingen, Germany

来源：

ANNALS OF FAMILY MEDICINE | 2023年 / 21卷 / 01期

关键词：

COVID-19/complications; long COVID; COVID-19/therapy; chronic disease/therapy; family medicine; crowdsourcing research; surveys and questionnaires; patient needs; self-management; self-medication; patient-centered communication; holistic care;

D O I：

10.1370/afm.2898

中图分类号：

R1 [预防医学、卫生学];

学科分类号：

1004 ; 120402 ;

摘要：

Some patients develop multiple protracted sequelae after infection with SARS-CoV-2, collectively known as post-COVID syndrome or long COVID. To date, there is no evidence showing benefit of specific therapies for this condition, and patients likely resort to self-initiated therapies. We aimed to obtain information about therapies used by and needs of this population via inductive crowdsourcing research. Patients completed an online questionnaire about their symptoms and experiences with therapeutic approaches. Responses of 499 participants suggested few approaches (eg, mind-body medicine, respiratory therapy) had positive effects and showed a great need for patient-centered communication (eg, more recognition of this syndrome). Our findings can help design clinical studies and underscore the importance of the holistic approach to care provided by family medicine.

引用

页码：73 / 75

页数：3

共 50 条

[41] High prevalence of cardiac post-acute sequelae in patients recovered from Covid-19. Results from the ARCA post-COVID study [J].

Antoncecchi, Valeria ;

Antoncecchi, Ettore ;

Orsini, Enrico ;

D'Ascenzo, Giuseppe ;

Oliviero, Ugo ;

Savino, Ketty ;

Aloisio, Angelo ;

Casalino, Laura ;

Lillo, Adele ;

Chiuini, Emilia ;

Santoro, Giosue ;

Manfre, Vincenzo ;

Rizzo, Valeria ;

Zito, Giovanni Battista .

INTERNATIONAL JOURNAL OF CARDIOLOGY CARDIOVASCULAR RISK AND PREVENTION, 2024, 21

[42] Sequelae of SARS-CoV-2 infection including post-COVID syndrome [J].

Quickert, Stefanie ;

Stallmach, Andreas ;

Reuken, Philipp .

GASTROENTEROLOGIE, 2023, 18 (02) :136-142

[43] Exploring Hypercoagulability in Post-COVID Syndrome (PCS): An Attempt at Unraveling the Endothelial Dysfunction [J].

Muys, Maxim ;

Demulder, Anne ;

Besse-Hammer, Tatiana ;

Ghorra, Nathalie ;

Rozen, Laurence .

JOURNAL OF CLINICAL MEDICINE, 2025, 14 (03)

[44] Post-COVID syndrome: Clinical pattern and impact on health related quality of life [J].

Mohamed, Ashraf Zin EL-Abdeen ;

Shaaban, Lamiaa Hassan ;

Attia, Mostafa Mahmoud ;

Khaleel, Waleed Gamal Elddin .

EGYPTIAN JOURNAL OF CHEST DISEASES AND TUBERCULOSIS, 2024, 73 (03) :248-260

[45] Post-COVID syndrome and adults with intellectual disability: another vulnerable population forgotten? [J].

Shankar, Rohit ;

Perera, Bhathika ;

Roy, Ashok ;

Courtenay, Ken ;

Laugharne, Richard ;

Sivan, Manoj .

BRITISH JOURNAL OF PSYCHIATRY, 2023, 222 (01) :1-3

[46] Symptom intensity of post-COVID and long COVID syndromes in patients entering rehabilitation treatment [J].

Ceklarz, Jan .

REUMATOLOGIA, 2024, 62 (01) :18-25

[47] SMART Pharmacists Serving the New Needs of the Post-COVID Patients, Leaving No-One Behind [J].

Sipetic, Tatjana ;

Rajkovic, Dragana ;

Stanojevic, Natasa Bogavac ;

Marinkovic, Valentina ;

Mestrovic, Arijana ;

Rouse, Michael J. .

PHARMACY, 2023, 11 (02)

[48] "The idea of rehabilitation will have to be completely rethought for this illness" " - Qualitative results of an online survey on patients' experiences with inpatient rehabilitation for post COVID-19 condition (long COVID) [J].

Hammer, Sabine ;

Schmidt, Julia ;

Conrad, Annett ;

Nos, Carmen ;

Gellert, Corinna ;

Ellert, Claudia ;

Nuding, Ute ;

Pochaba, Ilse .

ZEITSCHRIFT FUR EVIDENZ FORTBILDUNG UND QUALITAET IM GESUNDHEITSWESEN, 2024, 188 :14-25

[49] Immunological fingerprint in coronavirus disease-19 convalescents with and without post-COVID syndrome [J].

Augustin, Max ;

Heyn, Ferdinand ;

Ullrich, Stella ;

de Silva, Ute Sandaradura ;

Albert, Marie-Christine ;

Linne, Viktoria ;

Schlotz, Maike ;

Schommers, Philipp ;

Pracht, Elisabeth ;

Horn, Carola ;

Suarez, Isabelle ;

Simonis, Alexander ;

Picard, Lea Katharina ;

Zoufaly, Alexander ;

Wenisch, Christoph ;

Faetkenheuer, Gerd ;

Gruell, Henning ;

Klein, Florian ;

Hallek, Michael ;

Walczak, Henning ;

Rybniker, Jan ;

Theobald, Sebastian J. ;

Lehmann, Clara .

FRONTIERS IN MEDICINE, 2023, 10

[50] Post-COVID Postural Orthostatic Tachycardia Syndrome and Inappropriate Sinus Tachycardia in the Pediatric Population [J].

Francesco Raffaele Spera ;

Raffaella Mistrulli ;

Luigi Salerno ;

Federico Vannini ;

Melwyn Luis Muthukkattil ;

Roberta Falcetti ;

Terry Segal ;

Emanuele Barbato ;

Danilo Buonsenso .

Current Clinical Microbiology Reports, 2024, 11 :115-125

← 1 2 3 4 5 →