The experience of stigma in family caregivers of people with schizophrenia spectrum disorders: A meta-synthesis study

被引:10
作者
EghbalManesh, Azadeh [1 ]
Dalvandi, Asghar [1 ]
Zoladl, Mohammad [2 ]
机构
[1] Islamic Azad Univ, Fac Nursing & Midwifery, Dept Nursing, Tehran Med Sci, Tehran, Iran
[2] Yasuj Univ Med Sci, Nursing, Yasuj, Iran
关键词
Stigma; People with schizophrenia; Qualitative research; Family caregivers; And discrimination; MENTAL-HEALTH; SELF-STIGMA; DISCRIMINATION; RELATIVES; ILLNESS; ATTITUDES; FOCUS; LIFE; INDIVIDUALS; COUNTRIES;
D O I
10.1016/j.heliyon.2023.e14333
中图分类号
O [数理科学和化学]; P [天文学、地球科学]; Q [生物科学]; N [自然科学总论];
学科分类号
07 ; 0710 ; 09 ;
摘要
Introduction: Schizophrenia is a chronic disabling and the most stigmatizing mental disorder worldwide. The stigma experienced by family caregivers impacts their lives in different ways. This study reports the results of qualitative synthesis to understand the perceptions and experi-ences of stigma in families of people with schizophrenia spectrum disorders across various socio-cultural contexts. Methods: An initial comprehensive search was performed in databases like Web of Science, Psy-cINFO, CINAHL, Scopus, and Ovid-based MEDLINE. By searching, 3560 studies were found, of which 16 articles were included in the present study. A meta-synthesis was done according to the meta-ethnographic approach. Result: Three themes were generated: perpetuated stigma by general misunderstandings about schizophrenia, mental health inequality contributes to structural stigma, and long-term family caregiving stigmas, attitudes, and coping strategies. These themes indicated the essential expe-riences of stigma in families of people with schizophrenia, which appeared due to unknown and socio-cultural misconceptions of schizophrenia that led to emotional challenges for family caregivers. Conclusion: This study addresses stigma-related issues, and coping strategies used almost exclu-sively by family caregivers. Health policymakers and healthcare professionals working in mental health institutions should consider this data. Substantial steps must be taken to combat stigma, with education initiatives topping the list.
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页数:10
相关论文
共 62 条
[1]   Subtle Ways of Stigmatization Among Professionals: The Subjective Experience of Consumers and Their Family Members [J].
Amsalem, Doron ;
Hasson-Ohayon, Ilanit ;
Gothelf, Doron ;
Roe, David .
PSYCHIATRIC REHABILITATION JOURNAL, 2018, 41 (03) :163-168
[2]   Stigma and discrimination towards people with schizophrenia and their family members -: A qualitative study with focus groups [J].
Angel Gonzalez-Torres, Miguel ;
Oraa, Rodrigo ;
Aristegui, Maialen ;
Fernandez-Rivas, Aranzazu ;
Guimon, Jose .
SOCIAL PSYCHIATRY AND PSYCHIATRIC EPIDEMIOLOGY, 2007, 42 (01) :14-23
[3]   Reinforcing stereotypes: How the focus on forensic cases in news reporting may influence public attitudes towards the mentally ill [J].
Angermeyer, MC ;
Schulze, B .
INTERNATIONAL JOURNAL OF LAW AND PSYCHIATRY, 2001, 24 (4-5) :469-486
[4]   Conducting a meta-ethnography of qualitative literature: Lessons learnt [J].
Atkins, Salla ;
Lewin, Simon ;
Smith, Helen ;
Engel, Mark ;
Fretheim, Atle ;
Volmink, Jimmy .
BMC MEDICAL RESEARCH METHODOLOGY, 2008, 8 (1)
[5]   The fight against stigma: Multilevel stigma interventions in schizophrenia patients [J].
Bachtiar, Adang ;
Windarwati, Heni Dwi ;
Keliat, Budi Anna ;
Ismail, Raden Irawati ;
Ati, Niken Asih Laras ;
Sulaksono, Ari Dwi ;
Ilmy, Shofi Khaqul .
JOURNAL OF PUBLIC HEALTH RESEARCH, 2020, 9 (04) :417-422
[6]   Stigma: Advances in Theory and Research [J].
Bos, Arjan E. R. ;
Pryor, John B. ;
Reeder, Glenn D. ;
Stutterheim, Sarah E. .
BASIC AND APPLIED SOCIAL PSYCHOLOGY, 2013, 35 (01) :1-9
[7]   Self-stigma, empowerment and perceived discrimination among people with schizophrenia in 14 European countries: The GAMIAN-Europe study [J].
Brohan, Elaine ;
Elgie, Rodney ;
Sartorius, Norman ;
Thornicroft, Graham .
SCHIZOPHRENIA RESEARCH, 2010, 122 (1-3) :232-238
[8]  
Buizza Chiara, 2007, Clin Pract Epidemiol Ment Health, V3, P23, DOI 10.1186/1745-0179-3-23
[9]  
Casp U.K., 2018, CASP CHECKL CRIT APP
[10]   The balance of adult mental health care: provision of core health versus other types of care in eight European countries [J].
Cetrano, G. ;
Salvador-Carulla, L. ;
Tedeschi, F. ;
Rabbi, L. ;
Gutierrez-Colosia, M. R. ;
Gonzalez-Caballero, J. L. ;
Park, A-L ;
McDaid, D. ;
Sfetcu, R. ;
Kalseth, J. ;
Kalseth, B. ;
Hope, O. ;
Brunn, M. ;
Chevreul, K. ;
Strassmayr, C. ;
Hagmair, G. ;
Wahlbeck, K. ;
Amaddeo, F. .
EPIDEMIOLOGY AND PSYCHIATRIC SCIENCES, 2020, 29