Proof of concept and feasibility of a blended physiotherapy intervention for persons with haemophilic arthropathy

被引：5

作者：

Timmer, Merel A. ^{[1
,2
]}

Kuijlaars, Isolde A. R. ^{[1
]}

Kloek, Corelien ^{[3
,4
]}

de Kleijn, Piet ^{[1
]}

Schutgens, Roger E. G. ^{[1
]}

Veenhof, Cindy ^{[2
,3
]}

Pisters, Martijn F. ^{[2
,4
,5
]}

机构：

[1] Univ Utrecht, Univ Med Ctr Utrecht, Ctr Benign Haematol Thrombosis & Haemostasis, Van Creveldklin, Utrecht, Netherlands

[2] Univ Utrecht, Univ Med Ctr Utrecht, Brain Ctr Rudolf Magnus, Dept Rehabil Phys Therapy Science and Sport,Phys T, Utrecht, Netherlands

[3] Univ Appl Sci Utrecht, Res Grp Innovat Human Movement Care, Utrecht, Netherlands

[4] Julius Hlth Care Ctr, Ctr Phys Therapy Res & Innovat Primary Care, Utrecht, Netherlands

[5] Fontys Univ Appl Sci, Dept Hlth Innovat & Technol, Res Grp Empowering Hlth Behav, Eindhoven, Netherlands

来源：

HAEMOPHILIA | 2023年 / 29卷 / 01期

关键词：

blended care; e-health; exercise; haemophilia; physiotherapy; FUNCTIONAL SCALE; JOINT; OSTEOARTHRITIS; VALIDATION; ADULTS;

D O I：

10.1111/hae.14690

中图分类号：

R5 [内科学];

学科分类号：

1002 ; 100201 ;

摘要：

BackgroundRegular physiotherapy with a physiotherapist experienced in the field is not feasible for many patients with haemophilia. We, therefore, developed a blended physiotherapy intervention for persons with haemophilic arthropathy (HA) (e-Exercise HA), integrating face-to-face physiotherapy with a smartphone application. AimThe aim of the study was to determine proof of concept of e- Exercise HA and to evaluate feasibility. MethodsProof of concept was evaluated by a single-case multiple baseline design. Physical activity (PA) was measured with an accelerometer during a baseline, intervention and post-intervention phase and analysed using visual inspection and a single case randomisation test. Changes in limitations in activities (Haemophilia Activities List [HAL]) and a General Perceived Effect (GPE) were evaluated between baseline (T0), post-intervention (T1) and 3 months post-intervention (T2) using Wilcoxson signed rank test. Feasibility was evaluated by the number of adverse events, attended sessions and open-ended questions. ResultsNine patients with HA (90% severe, median age 57.5 (quartiles 50.5-63.3) and median HJHS 32 (quartiles 22-36)) were included. PA increased in two patients. HAL increased mean 15 (SD 9) points (p = .001) at T1, and decrease to mean +8 points (SD 7) (p = .012) at T2 compared to T0. At T1 and T2 8/9 participants scored a GPE > 3. Median 5 (range 4-7) face-to-face sessions were attended and a median 8 out of 12 information modules were viewed. No intervention-related bleeds were reported. ConclusionA blended physiotherapy intervention is feasible for persons with HA and the first indication of the effectiveness of the intervention in decreasing limitations in activities was observed.

引用

页码：290 / 307

页数：18

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