Locked inside: Living with uncertainty in self-management for endometriosis during the COVID-19 pandemic

被引:8
作者
Handelsman, Nick [1 ]
Sherman, Kerry A. [1 ,3 ]
Pereira, Chantelle [2 ]
Fernando, Malsha [1 ]
机构
[1] Macquarie Univ, Ctr Emot Hlth, Sch Psychol Sci, Sydney, Australia
[2] Macquarie Univ, Sch Psychol Sci, Sydney, Australia
[3] Macquarie Univ, 16 Univ Ave, Sydney, NSW 2109, Australia
关键词
COVID-19; Endometriosis; Psychological; Qualitative; Self-management; Social avoidance; PSYCHOLOGICAL IMPACT; PEOPLE; WOMEN; CARE; RUMINATION; PAIN;
D O I
10.1016/j.jpsychores.2023.111327
中图分类号
R749 [精神病学];
学科分类号
100205 ;
摘要
Objective: A high symptom burden systemic inflammatory disorder, endometriosis typically entails both medical management and self-management strategies. The COVID-19 pandemic in Australia precipitated changes to healthcare provision, societal restrictions, and negative psychosocial outcomes particularly for those managing chronic illnesses (e.g., endometriosis). This study's objective was to address the following questions: "How have endometriosis self-management strategies changed since the outbreak of COVID-19, and what are the conse-quences of these changes?"Methods: In total, 21 respondents residing in Australia during the COVID-19 pandemic participated in a semi-structured interview following completion of an online survey advertised by Endometriosis Australia. In the survey, respondents provided demographic and clinical information, and psychological distress was assessed. Interviews were conducted online and recorded for transcribing. Transcribed data were thematically analyzed using the template method.Results: Qualitative analysis identified five themes: i) Maintaining Relationships with Health Professionals, ii) Altered Information Seeking Strategies, iii) More Autonomous Decision Making, iv) Diminished Self-Care and Behaviour Change, and v) Shifted Priorities. Respondents reported disruptions to, and uncertainties within, the healthcare system that precipitated adverse effects upon their ability to manage endometriosis and mental health.Conclusions: These findings suggest that for many, COVID-19-related disruptions to the healthcare system and social isolation adversely impacted their endometriosis self-management. Targeted interventions are needed to address the consequences of these, including providing reliable information to support informed decision-making regarding endometriosis self-management, and assisting with mental health challenges arising from COVID-19-related social isolation.
引用
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页数:7
相关论文
共 49 条
[1]   Effects of home confinement on mental health and lifestyle behaviours during the COVID-19 outbreak: insights from the ECLB-COVID19 multicentre study [J].
Ammar, Achraf ;
Trabelsi, Khaled ;
Brach, Michael ;
Chtourou, Hamdi ;
Boukhris, Omar ;
Masmoudi, Liwa ;
Bouaziz, Bassem ;
Bentlage, Ellen ;
How, Daniella ;
Ahmed, Mona ;
Mueller, Patrick ;
Mueller, Notger ;
Hammouda, Omar ;
Paineiras-Domingos, Laisa Liane ;
Braakman-jansen, Annemarie ;
Wrede, Christian ;
Bastoni, Sophia ;
Pernambuco, Carlos Soares ;
Mataruna, Leonardo ;
Taheri, Morteza ;
Irandoust, Khadijeh ;
Khacharem, Aimen ;
Bragazzi, Nicola L. ;
Strahler, Jana ;
Adrian, Jad ;
Andreeva, Albina ;
Glenn, Jordan M. ;
Bott, Nicholas T. ;
Gargouri, Faiez ;
Chaari, Lotfi ;
Batatia, Hadj ;
Khoshnami, Samira C. ;
Samara, Evangelia ;
Zisi, Vasiliki ;
Sankar, Parasanth ;
Ahmed, Waseem N. ;
Ali, Gamal Mohamed ;
Abdelkarim, Osama ;
Jarraya, Mohamed ;
El Abed, Kais ;
Moalla, Wassim ;
Romdhani, Mohamed ;
Aloui, Asma ;
Souissi, Nizar ;
Van Gemert-Pijnen, Lisette ;
Riemann, Bryan L. ;
Riemann, Laurel ;
Delhey, Jan ;
Gomez-Raja, Jonathan ;
Epstein, Monique .
BIOLOGY OF SPORT, 2021, 38 (01) :9-21
[2]   Endometriosis and the workplace: Lessons from Australia's response to COVID-19 [J].
Armour, Mike ;
Ciccia, Donna ;
Stoikos, Chelsea ;
Wardle, Jon .
AUSTRALIAN & NEW ZEALAND JOURNAL OF OBSTETRICS & GYNAECOLOGY, 2022, 62 (01) :164-167
[3]   Endometriosis and chronic pelvic pain have similar impact on women, but time to diagnosis is decreasing: an Australian survey [J].
Armour, Mike ;
Sinclair, Justin ;
Ng, Cecilia H. M. ;
Hyman, Mikayla S. ;
Lawson, Kenny ;
Smith, Caroline A. ;
Abbott, Jason .
SCIENTIFIC REPORTS, 2020, 10 (01)
[4]   Self-management strategies amongst Australian women with endometriosis: a national online survey [J].
Armour, Mike ;
Sinclair, Justin ;
Chalmers, K. Jane ;
Smith, Caroline A. .
BMC COMPLEMENTARY AND ALTERNATIVE MEDICINE, 2019, 19 (1)
[5]  
Australian Institute of Health and Welfare, 2022, Australia's Hospitals at a Glance
[6]   The COVID-19 pandemic and patients with endometriosis: A survey-based study conducted in Turkey [J].
Bahat, Pinar Yalcin ;
Kaya, Cihan ;
Selcuki, Nura F. T. ;
Polat, Ibrahim ;
Usta, Taner ;
Oral, Engin .
INTERNATIONAL JOURNAL OF GYNECOLOGY & OBSTETRICS, 2020, 151 (02) :249-252
[7]  
Braun V., 2006, Using thematic analysis in psychology, V3, P77, DOI [DOI 10.1191/1478088706QP063OA49, 10.1191/1478088706qp063oa0787.92001]
[8]   The Utility of Template Analysis in Qualitative Psychology Research [J].
Brooks, Joanna ;
McCluskey, Serena ;
Turley, Emma ;
King, Nigel .
QUALITATIVE RESEARCH IN PSYCHOLOGY, 2015, 12 (02) :202-222
[9]   The psychological impact of quarantine and how to reduce it: rapid review of the evidence [J].
Brooks, Samantha K. ;
Webster, Rebecca K. ;
Smith, Louise E. ;
Woodland, Lisa ;
Wessely, Simon ;
Greenberg, Neil ;
Rubin, Gideon James .
LANCET, 2020, 395 (10227) :912-920
[10]   Endometriosis and infertility [J].
Bulletti, Carlo ;
Coccia, Maria Elisabetta ;
Battistoni, Silvia ;
Borini, Andrea .
JOURNAL OF ASSISTED REPRODUCTION AND GENETICS, 2010, 27 (08) :441-447