Complex lived experiences and hidden disability after spinal cord injury: a latent profile analysis of the Australian arm of the International Spinal Cord Injury (Aus-InSCI) Community Survey

被引：2

作者：

Kifley, Annette ^{[1
,2
]}

Geraghty, Timothy J. ^{[3
,4
]}

Arora, Mohit ^{[1
,2
]}

Bourke, John ^{[1
,2
,5
]}

Craig, Ashley ^{[1
,2
]}

Cameron, Ian D. ^{[1
,2
]}

Nunn, Andrew ^{[6
]}

Marshall, Ruth ^{[7
,8
]}

Middleton, James W. ^{[1
,2
,9
,10
]}

机构：

[1] John Walsh Ctr Rehabil Res, Northern Sydney Local Hlth Dist, Sydney, Australia

[2] Univ Sydney, Kolling Inst, Fac Med & Hlth, Sydney, Australia

[3] Princess Alexandra Hosp, Queensland Spinal Cord Injuries Serv, Div Rehabil, Metro South Hlth, Woolloongabba, Australia

[4] Griffith Univ, Metro South Hlth & Menzies Hlth Inst Queensland, Hopkins Ctr, Brisbane, Australia

[5] Burwood Acad Trust, Christchurch, New Zealand

[6] Austin Hlth, Victorian Spinal Cord Serv, Heidelberg, Australia

[7] Cent Adelaide Local Hlth Network, South Australian Spinal Cord Injury Serv, Adelaide, Australia

[8] Univ Adelaide, Fac Hlth & Med Sci, Adelaide, Australia

[9] Agcy Clin Innovat, State Spinal Cord Injury Serv, St Leonards, Australia

[10] Royal Rehab, Spinal Outreach Serv, Ryde, Australia

来源：

DISABILITY AND REHABILITATION | 2024年 / 46卷 / 20期

关键词：

Spinal cord injury; lived experience; functional independence; physical functioning; ambulation; quality of life; International Classification of Functioning Disability and Health; QUALITY-OF-LIFE; PSYCHOMETRIC PROPERTIES; SELF-EFFICACY; HEALTH; PRIORITIES; INDEPENDENCE; INVENTORY; FATIGUE;

D O I：

10.1080/09638288.2023.2283101

中图分类号：

R49 [康复医学];

学科分类号：

100215 ;

摘要：

Purpose: To identify and examine subgroups of people with spinal cord injury (SCI) with different patterns of lived experience, and examine hidden impairments and disability among functionally independent and ambulant people. Materials and methods: Latent profile analysis of population-based data from the Australian arm of the International Spinal Cord Injury (InSCI) Community survey (n = 1579). Results: Latent subgroups reflected levels of functional independence and extent of problems with health, activity/participation, environmental barriers, and self-efficacy. Quality of life (QoL), psychological profiles, and activity/participation were often as good or better in participants who reported lower (vs. higher) functional independence alongside comparable burden of health problems and environmental barriers. QoL, mental health, and vitality reflected self-efficacy and problem burdens more closely than functional independence. Ambulant participants reported a substantial burden of underlying, potentially hidden impairments, with QoL and mental health similar to wheelchair users. Conclusion: Hidden disability among more independent and/or ambulant people with SCI can affect well-being substantially. Early and ongoing access to support, rehabilitation, and SCI specialist services is important irrespective of cause, type, severity of injury, and level of functional independence. Improved access to SCI expertise and equity of care would help to improve early recognition and management of hidden disability.

引用

页码：4675 / 4686

页数：12

共 56 条

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