Assessment of quality and reliability of YouTube videos for patient and physician education on inflammatory myositis

被引:11
作者
Joshi, Mrudula [1 ,2 ]
Naveen, R. [3 ]
Jagtap, Kshitij [4 ,5 ]
Gupta, Ria [1 ,2 ]
Agarwal, Vikas [3 ]
Aggarwal, Rohit [6 ]
Goel, Ashish [7 ]
Gupta, Latika [3 ,8 ,9 ,10 ]
机构
[1] Byramjee Jeejeebhoy Govt Med Coll, Pune, India
[2] Sassoon Gen Hosp, Pune, India
[3] Sanjay Gandhi Postgrad Inst Med Sci, Dept Clin Immunol & Rheumatol, Lucknow, India
[4] Seth Gordhandas Sunderdas Med Coll, Mumbai, Maharashtra, India
[5] King Edward Mem Hosp, Mumbai, Maharashtra, India
[6] Univ Pittsburgh, Dept Med Rheumatol & Clin Immunol, Pittsburgh, PA USA
[7] Dr BR Ambedkar State Inst Med Sci, Dept Med, Mohali, Punjab, India
[8] Royal Wolverhampton Hosp NHS Trust, Dept Rheumatol, Wolverhampton WV10 0QP, England
[9] Univ Manchester, Fac Biol Med & Hlth, Ctr Musculoskeletal Res, Manchester Acad Hlth Sci Ctr,Div Musculoskeletal &, Manchester, England
[10] Sandwell & West Birmingham Hosp NHS Trust, City Hosp, Birmingham, England
关键词
Misinformation; Myositis; Patients; Social Media; YouTube; INFORMATION; INTERNET;
D O I
10.1007/s10067-023-06522-x
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
Introduction YouTube is the second most popular search website worldwide to access health information online. This study was undertaken to assess the reliability and quality of information about myositis on YouTube and delineate attributes of useful videos using standard metrics.Methods We conducted a thorough search on YouTube using 9 search terms related to myositis. The inclusion criteria were content related to myositis, English language and acceptable audio-video quality. Duplicates and advertisements were excluded from the analysis. Videos were classified as useful, not very useful or misleading and patient narratives. Reliability was determined using the mDISCERN criteria, quality using the Global Quality Scale (GQS) and JAMA system, using appropriate cut-offs (mDISCERN > 4, GQS > 4, JAMA > 3).Results Out of a total of 900 videos, 453 were included for the analysis. Seventy-four per cent and 2% provided useful and not very useful information respectively, while 24% were patient narratives. Seventy-one per cent were intended specifically for patients while 69% were for healthcare providers and students.Noteworthily, useful and not very useful videos had similar total views though the number of likes and daily viewership were higher for useful videos (p = 0.024, p = 0.046).Nearly half (47%) of useful videos were by professional medical societies/patient support groups (PSGs) while not very useful ones were by nonmedical media (38%). Physician-predicted usefulness was discordant with score-based usefulness (kappa = 0.129). However, GQS emerged as a significant (p = 0.008) predictor of video usefulness in multivariate analysis.Conclusion A large majority of English YouTube videos on myositis provide useful information for patients. Physicians could signpost patients to high-quality useful videos as determined by GQS and sources like professional medical societies and PSGs.
引用
收藏
页码:1339 / 1349
页数:11
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