What is health and what do we mean when we say an intervention improves health?

被引：1

作者：

Ulph, Fiona ^{[1
]}

机构：

[1] Univ Manchester, Fac Biol Med & Hlth, Manchester Ctr Hlth Psychol, Manchester Acad Hlth Sci Ctr,Sch Hlth Sci,Div Psyc, Oxford Rd, Manchester M13 9PL, England

来源：

EUROPEAN JOURNAL OF HUMAN GENETICS | 2024年 / 32卷 / 04期

关键词：

D O I：

10.1038/s41431-023-01388-8

中图分类号：

Q5 [生物化学]; Q7 [分子生物学];

学科分类号：

071010 ; 081704 ;

摘要：

引用

页码：369 / 370

页数：2

共 5 条

[1] 'We're kind of like genetic nomads': Parents' experiences of biographical disruption and uncertainty following in/conclusive results from newborn cystic fibrosis screening [J].

Boardman, Felicity ;

Clark, Corinna .

SOCIAL SCIENCE & MEDICINE, 2022, 301

[2] Receiving results of uncertain clinical relevance from population genetic screening: systematic review & meta-synthesis of qualitative research [J].

Johnson, Faye ;

Ulph, Fiona ;

MacLeod, Rhona ;

Southern, Kevin W. .

EUROPEAN JOURNAL OF HUMAN GENETICS, 2022, 30 (05) :520-531

[3] The Common-Sense Model of Self-Regulation (CSM): a dynamic framework for understanding illness self-management [J].

Leventhal, Howard ;

Phillips, L. Alison ;

Burns, Edith .

JOURNAL OF BEHAVIORAL MEDICINE, 2016, 39 (06) :935-946

[4] Uncertainties experienced by parents of children diagnosed with severe combined immunodeficiency through newborn screening [J].

Raspa, Melissa ;

Kutsa, Oksana ;

Andrews, Sara M. ;

Gwaltney, Angela Y. ;

Mallonee, Erin ;

Creamer, Alissa ;

Han, Paul K. J. ;

Biesecker, Barbara B. .

EUROPEAN JOURNAL OF HUMAN GENETICS, 2024, 32 (04) :392-398

[5] Psychological and Ethical Challenges of Introducing Whole Genome Sequencing into Routine Newborn Screening: Lessons Learned from Existing Newborn Screening [J].

Ulph, Fiona ;

Bennett, Rebecca .

NEW BIOETHICS-A MULTIDISCIPLINARY JOURNAL OF BIOTECHNOLOGY AND THE BODY, 2023, 29 (01) :52-74

← 1 →