Feasibility of mobile phone application "Epilepsy care" for self-management of children and adolescents with epilepsy in Phramongkutklao hospital: A randomized controlled trial

被引：3

作者：

Chinsuwan, Pantira ^{[1
]}

Wilodjananunt, Wilawan W. ^{[1
]}

Wanvarie, Dittaya ^{[2
]}

Suksumek, Nithipun ^{[1
]}

Sakpichaisakul, Kullasate ^{[3
,4
]}

Simasathien, Thitiwan ^{[1
]}

Nabangchang, Charcrin ^{[1
]}

Suwanpakdee, Piradee ^{[1
,5
]}

机构：

[1] Phramongkutklao Hosp, Dept Pediat, Bangkok, Thailand

[2] Chulalongkorn Univ, Fac Sci, Dept Math & Comp Sci, Bangkok, Thailand

[3] Queen Sirikit Natl Inst Child Hlth, Dept Pediat, Bangkok, Thailand

[4] Rangsit Univ, Coll Med, Bangkok, Thailand

[5] Phramongkutklao Hosp, Dept Pediat, Neurol Div, Bangkok, Thailand

来源：

EPILEPSY & BEHAVIOR | 2024年 / 151卷

关键词：

Mobile application; Children and adolescents with epilepsy; Self-management; Seizure control; ADHERENCE; PEOPLE;

D O I：

10.1016/j.yebeh.2023.109598

中图分类号：

B84 [心理学]; C [社会科学总论]; Q98 [人类学];

学科分类号：

03 ; 0303 ; 030303 ; 04 ; 0402 ;

摘要：

Epilepsy is a common neurological disorder in children. Mobile applications have shown potential in improving self-management for patients with chronic illnesses. To address language barriers, we developed the first Thai version of the "Epilepsy care" mobile application for children and adolescents with epilepsy in Thailand. A prospective, randomized controlled trial with 220 children and adolescents living with epilepsy who had a smartphone and were treated at the pediatric neurology clinic was conducted, with one group using the mobile application and the other receiving standard epilepsy guidance. The primary outcome assessed epilepsy self management using the Pediatric Epilepsy Self-Management Questionnaire (PEMSQ) in the Thai version, which comprised 27 questions. These questions aimed to determine knowledge, adherence to medications, beliefs about medication efficacy, and barriers to medication adherence. The secondary outcome evaluated seizure frequency at baseline, 3, and 6 months after initiation of an application. Eighty-five participants who were randomized to a mobile application achieved significantly higher PEMSQ scores in the domain of barriers to medication adherence (p < 0.05) at 6 months follow-up. Other domains of PEMSQ showed no statistically significant difference. Baseline median seizure frequencies per month were 7 in the control group and 5.5 in the intervention group. At 3 and 6 months, these decreased significantly to 1.5 and 1 for the control group and 2.5 and 1 for the intervention group (p < 0.001). In addition, the study revealed that 94.9 % of the participants in a mobile application group were highly satisfied with using application. These findings suggest that the mobile application "Epilepsy care" may serve as an effective adjunctive therapy to enhance self-management and seizure control in children and adolescents with epilepsy.

引用

页数：5

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