'I bring her up with love:' Perspectives of caregivers of children with neurodevelopmental delays in western Kenya

被引：2

作者：

Heng, Yi Yan ^{[1
]}

Nafiseh, Amira ^{[1
]}

Oyungu, Eren ^{[2
,3
]}

Ombitsa, Ananda Roselyne ^{[3
]}

Cherop, Carolyne ^{[3
]}

McHenry, Megan S. ^{[1
,3
]}

机构：

[1] Indiana Univ Sch Med, Dept Pediat, Indianapolis, IN 46202 USA

[2] Moi Univ, Coll Hlth Sci, Sch Med, Dept Med Physiol, Eldoret, Kenya

[3] Acad Model Providing Access Healthcare, Eldoret, Kenya

来源：

CHILD CARE HEALTH AND DEVELOPMENT | 2023年 / 49卷 / 01期

基金：

美国国家卫生研究院;

关键词：

caregivers; challenges; child development; Kenya; low- and middle-income country; low-resourced settings; stigma; support; AFFILIATE STIGMA; DEVELOPMENTAL-DISABILITIES; INTELLECTUAL DISABILITY; DATA-COLLECTION; HEALTH; DISORDERS; BARRIERS; SUPPORT; IMPACT; AUTISM;

D O I：

10.1111/cch.13033

中图分类号：

B844 [发展心理学（人类心理学）];

学科分类号：

040202 ;

摘要：

Objective This study aims to understand the challenges and perspectives of caregivers with neurodevelopmental delays (NDD) in rural Kenya. Methods Semi-structured interviews and the Affiliate Stigma Scale were administered to the primary caregivers of children with NDDs recruited from the communities near Eldoret, Kenya. Constant comparison and triangulation methods were used to inductively develop relevant themes and concepts. Results Sixteen caregivers participated. Challenges, which included hardships related to safety and supervision, challenging emotions and financial difficulties, were compounded by a lack of social support and community stigma towards these children. However, caregivers still felt deep love for their children, desired acceptance from the community and found sources of strength from faith and religious institutions. Conclusion The study uncovered crucial insights into the perspectives of caregivers within this population and revealed a paucity of disability awareness and understanding within the community, possibly informing future programmes and intervention policies.

引用

页码：201 / 209

页数：9

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