Integrative medicine for hypermobility spectrum disorders (HSD) and Ehlers-Danlos syndromes (EDS): a feasibility study

被引:1
作者
Guedry, Sara E. [1 ]
Langley, Blake O. [1 ,2 ]
Schaefer, Kerry [3 ]
Hanes, Douglas A. [1 ,4 ]
机构
[1] Natl Univ Nat Med, Helfgott Res Inst, Portland, OR USA
[2] Univ WA, Sch Nursing, Seattle, WA USA
[3] Hlth Living Community Clin, Portland, OR USA
[4] 2220 SW 1st Ave, Portland, OR 97201 USA
关键词
Ehlers-Danlos syndrome; EDS; feasibility; health care; hypermobility spectrum disorder; HSD; integrative medicine; nutrition; CELL ACTIVATION SYNDROME; CHRONIC ILLNESS CARE; CHRONIC PAIN; MANAGEMENT; CLASSIFICATION;
D O I
10.1080/09638288.2024.2314713
中图分类号
R49 [康复医学];
学科分类号
100215 ;
摘要
Purpose: Hypermobility spectrum disorders (HSD) and Ehlers-Danlos syndromes (EDS) are multisystem conditions marked by dysfunctional connective tissue. This feasibility study evaluated a 9-week integrative medicine program in this population. Methods: Using a single-arm study design, adults with HSD or EDS were given recommendations for an anti-inflammatory Mediterranean diet and self-management with additional behavioral and psychosocial support. Preliminary data on feasibility based on recruitment and retention, adherence to the diet, mobile app tracking, changes to perceived well-being via health outcomes, and satisfaction with care were obtained. Results: Thirteen participants were enrolled within a 4-month timeframe. Eight participants completed the study. Three participants met dietary tracking requirement in at least 4 of 8 intervention weeks and met the macronutrient requirements in at least half of the weeks tracked. No decreases in VAS pain scores after 5 and 9 weeks were noted; however, 62.5% (n = 5) of participants had decreased pain at 9 weeks, compared to baseline. There were significant improvements (p<.05) in six of twelve measurements of satisfaction with care at the end of the intervention. Conclusion: This study provides a foundation for future research on patient experience and introduces a novel treatment paradigm focused on nutrition and self-management.
引用
收藏
页码:5854 / 5867
页数:14
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