A self-management psychoeducational eHealth program to support and empower people with advanced cancer and their family caregivers: Development using the scrum methodology

被引:1
|
作者
Van Goethem, Vincent [1 ,2 ,3 ,4 ,16 ,17 ]
Dierickx, Sigrid [1 ,2 ,3 ,4 ]
Matthys, Orphe [1 ,2 ,3 ,4 ]
Northouse, Laurel [5 ]
Lund, Line [6 ,7 ]
Jordan, Catherine [8 ]
Turola, Elena [9 ]
van der Wel, Maaike [10 ]
Scott, David [11 ]
Harding, Richard [12 ]
Deliens, Luc [1 ,2 ,3 ,4 ]
Lapeire, Lore [1 ,2 ,13 ]
Hudson, Peter [1 ,2 ,14 ,15 ]
De Vleminck, Aline [1 ,2 ,4 ]
Cohen, Joachim [1 ,2 ,4 ]
机构
[1] Vrije Univ Brussel VUB, Laarbeeklaan 103, B-1090 Brussels, Belgium
[2] Univ Ghent, End life Care Res Grp, Laarbeeklaan 103, B-1090 Brussels, Belgium
[3] Univ Ghent, Dept Publ Hlth & Primary Care, C Heymanslaan 10, B-9000 Ghent, Belgium
[4] Vrije Univ Brussel VUB, Dept Family Med & Chron Care, Laarbeeklaan 103, B-1090 Brussels, Belgium
[5] Univ Michigan, Sch Nursing, Ann Arbor, MI USA
[6] Univ Copenhagen, Dept Publ Hlth, Copenhagen, Denmark
[7] Bispebjerg & Frederiksberg Hosp, Palliat Care Res Unit, Copenhagen, Denmark
[8] Univ Coll Dublin, Natl Univ Ireland Dublin, Dublin, Ireland
[9] Azienda USL, Sci Directorate, IRCCS Reggio Emilia, Reggio Emilia, Italy
[10] Erasmus MC, Univ Med Ctr, Rotterdam, Netherlands
[11] Queens Univ Belfast, Sch Nursing & Midwifery, Belfast, North Ireland
[12] Kings Coll London, Cicely Saunders Inst Palliat Care Policy & Rehabil, London, England
[13] Ghent Univ Hosp, Dept Med Oncol, C Heymanslaan 10, B-9000 Ghent, Belgium
[14] St Vincents Hosp, Ctr Palliat Care, Melbourne, Australia
[15] Univ Melbourne, Ctr Palliat Care, Melbourne, Australia
[16] Univ Ghent, End Life Care Res Grp, Corneel Heymanslaan, B-9000 Ghent, Belgium
[17] Vrije Univ Brussel, Corneel Heymanslaan, B-9000 Ghent, Belgium
来源
INTERNET INTERVENTIONS-THE APPLICATION OF INFORMATION TECHNOLOGY IN MENTAL AND BEHAVIOURAL HEALTH | 2023年 / 33卷
基金
比利时弗兰德研究基金会; 欧盟地平线“2020”;
关键词
eHealth; Dyadic; Advanced cancer; Family caregiver; Intervention development; Psychoeducational intervention; INFORMAL CAREGIVERS; IMPLEMENTATION; INTERVENTIONS;
D O I
10.1016/j.invent.2023.100659
中图分类号
B849 [应用心理学];
学科分类号
040203 ;
摘要
Background: eHealth programs could be a flexible and scalable resource to support and empower people with advanced cancer and their family caregivers. A face-to-face intervention that has demonstrated effectiveness is the "FOCUS" program, developed and tested in the USA. Recently the FOCUS program was translated and adapted to the European context as part of an international study in six European countries, resulting in the "FOCUS+" program. FOCUS+ served as the basis for development of the web-based iFOCUS program.Objective: We aim to (1) describe the development process of the iFOCUS program, (2) outline the challenges we encountered and how they were overcome, and (3) present findings regarding the acceptability and usability of iFOCUS.Methods: We used the four phased agile Scrum methodology to develop iFOCUS and applied set timeframes of rapid program development and evaluation (sprints). Five teams were involved in the development i.e. a core development group, a web development team, an international consortium, audio-visual experts, and potential end-users. Results: Development followed seven steps, integrated across the four phases of Scrum: (1) concept design, (2) development of mock-ups, (3) Feedback from the international consortium, (4) technical development of iFO-CUS, (5) creating versions for the six participating countries, (6) preliminary testing of iFOCUS and (7) implementing the final version in a randomized controlled trial. User testing included 42 participants (twenty patient-family caregiver dyads and two bereaved family caregivers) who reviewed the iFOCUS program. Users found the iFOCUS program to be acceptable and usable. Feedback mainly focused on text size and fonts. Minor changes to the content, tailoring, and program flow were required. During development we encountered program specific and general challenges. Using the Scrum methodology facilitated iterative development to address these issues. For some challenges, such as tailoring, we had to make pragmatic choices due to time and resource limitations. Conclusions/discussion: The development of a tailored, self-managed psychoeducational eHealth program for people with advanced cancer and their family caregivers is an intense process and requires pragmatic choices. By keeping the emphasis on the target population during development, no specific remarks pertaining to advanced cancer were identified. Some challenges we encountered are common to eHealth development, others were related to program specific requirements. Using the Scrum methodology allows teams to efficiently collaborate during program development and increases the flexibility of the development process. Interpersonal contact between research staff and potential end-users is recommended during and after the development of eHealth programs.
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页数:15
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