Caregiver's Quality of Life Among Children with Cerebral Palsy in the Kingdom of Saudi Arabia, and Various Influencing Factors: A Single Cohort Study

被引:5
作者
Tedla, Jaya Shanker [1 ]
Asiri, Faisal [1 ]
Reddy, Ravi Shankar [1 ]
Gular, Kumar [1 ]
Kakaraparthi, Venkata Nagaraj [1 ]
Sangadala, Devika Rani [1 ]
Dixit, Snehil [1 ]
Alamri, Ahlam Mohammed [2 ]
Narne, Vijaya Kumar [1 ]
Alasmari, Rawan Abdullah Mohammed [3 ]
Dhafer, Omer Abdullah [1 ]
Al Shamer, Mohammed Ahmed [1 ]
机构
[1] King Khalid Univ, Coll Appl Med Sci, Dept Med Rehabil Sci, Program Phys Therapy, Abha, Aseer, Saudi Arabia
[2] Armed Forces Hosp Southern Reg, Dept Rehabil Hlth Serv, Khamis Mushayat, Aseer, Saudi Arabia
[3] Aseer Ctr, Disabled Child Assoc, Dept Rehabil, Abha, Aseer, Saudi Arabia
来源
JOURNAL OF MULTIDISCIPLINARY HEALTHCARE | 2023年 / 16卷
关键词
caretakers; life participation; disability; pediatric; cerebral paralysis; FAMILY CAREGIVERS; WHOQOL-BREF; HEALTH; WOMEN;
D O I
10.2147/JMDH.S440190
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Purpose: Quality of life (QOL) among disabled children and their caregivers is an important concern in healthcare. We aim to evaluate the quality of life among caregivers of children with cerebral palsy and to observe the effects of various demographic factors and affected child-related factors on caregivers' quality of life.Patients and methods: After ethical approval and written consent was obtained from the participants. One hundred six caregivers of children with cerebral palsy from the Asir region were recruited for the study. Caregivers provided details, including their demographic characteristics, social factors, and information regarding their affected children regarding age, gender, mobility levels, etc. They also completed the Arabic version of the World Health Organization Quality of Life-BREF (WHOQOL-BREF) questionnaire for assessing their QOL.Results: All the caregivers were women; their mean age was 40.38 years and SD7.09, and the overall QOL mean and standard deviations were 66.38 +/- 12.88. There was a moderately significant correlation between total QOL in comparison with caregivers' educational level and mobility capacity, with R values of 0.54 (p<0.001) and 0.62 (p<0.001), respectively.Conclusion: All the subdomains of WHOQOL-BREF were found to be very closely related to the total scores for QOL. The caregivers of children with cerebral palsy had better QOL scores than the cutoff scores proposed in the WHOQOL-BREF scale. Factors such as increased mobility and education of the affected child contributed to better total QOL scores.
引用
收藏
页码:3705 / 3714
页数:10
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