Developing a home-based pulmonary rehabilitation programme for patients with chronic respiratory diseases in Malaysia: A mixed-method feasibility study

被引:2
作者
Chan, Soo Chin [1 ,7 ]
Engksan, Julia Patrick [1 ]
Nathan, Jayakayatri Jeevajothi [2 ]
Sekhon, Jaspreet Kaur [2 ]
Hussein, Norita [2 ]
Suhaimi, Anwar [1 ]
Hanafi, Nik Sherina [2 ]
Pang, Yong Kek [3 ]
Yatim, Saari Mohamad [4 ]
Habib, M. Monsur [5 ]
Pinnock, Hilary [6 ]
RESPIRE Collaboration [2 ]
机构
[1] Univ Malaya, Fac Med, Dept Rehabil Med, Kuala Lumpur, Malaysia
[2] Univ Malaya, Fac Med, Dept Primary Care Med, Kuala Lumpur, Malaysia
[3] Univ Malaya, Fac Med, Dept Med, Kuala Lumpur, Malaysia
[4] Serdang Hosp, Dept Rehabil Med, Serdang, Selangor, Malaysia
[5] Bangladesh Primary Care Resp Soc, Khulna, Bangladesh
[6] Univ Edinburgh, Usher Inst, NIHR Global Hlth Res Unit Resp Hlth RESPIRE, Edinburgh, Scotland
[7] Univ Malaya, Med Ctr, Dept Rehabil Med, 12th Floor,Menara Selatan, Kuala Lumpur 59100, Malaysia
关键词
FOLLOW-UP; COPD; PEOPLE; NEEDS;
D O I
10.7189/jogh.13.04099
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
Background The COVID-19 pandemic has underscored the importance of remote healthcare and home-based interventions, including pulmonary rehabilitation, for patients with chronic respiratory diseases (CRDs). It has also heightened the vulnerability of individuals with underlying respiratory conditions to severe illness from COVID-19, necessitating exploration and assessment of the feasibility of delivering home - pulmonary rehabilitation (home-PR) programmes for CRD management in Malaysia and other countries. Home-based programmes offer a safer alternative to in-person rehabilitation during outbreaks like COVID-19 and can serve as a valuable resource for patients who may be hesitant to visit healthcare facilities during such times. We aimed to assess the feasibility of delivering a home-PR programme for patients with CRDs in Malaysia. Methods We recruited patients with CRDs from two hospitals in Klang Valley, Malaysia to a home-PR programme. Following centre-based assessment, patients performed the exercises at home (five sessions/week for eight weeks (total 40 sessions)). We monitored the patients via weekly telephone calls and asked about adherence to the programme. We measured functional exercise capacity (6-Minutes Walking Test (6MWT) and Health-Related Quality-of-Life (HRQoL) (COPD Assessment Test (CAT)) at baseline and post-PR at nine weeks. We conducted semi-structured interviews with 12 purposively sampled participants to explore views and feedback on the home-PR programme. The interviews were audio recorded, transcribed verbatim, and analysed thematically. Results We included 30 participants; two withdrew due to hospitalisation. Although 28 (93%) adhered to the full programme, only 11 (37%) attended the post-PR assessment because COVID-19 movement restrictions in Malaysia at that time prevented attendance at the centre. Four themes emerged from the qualitative analysis: involvement of family and caregivers, barriers to home-PR programme, interactions with peers and health care professionals, and programme enhancement. Conclusion Despite the COVID-19 pandemic, the home-PR programme proved feasible for remote delivery, although centre-based post-PR assessments were not possible. Family involvement played an important role in the home-PR programme. The delivery of this programme can be further improved to maximise the benefit for patients.
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