Development of the Observable Well-Being in Living With Dementia-Scale

被引:2
作者
Madso, Kristine G. [1 ,2 ]
Pachana, Nancy A. [3 ]
Nordhus, Inger H. [2 ,4 ]
机构
[1] NKS Olaviken Gerontopsychiat Hosp, Askvegen150, N-5306 Askoy, Norway
[2] Univ Bergen, Dept Clin Psychol, Bergen, Norway
[3] Univ Queensland, Sch Psychol, Brisbane, Australia
[4] Univ Oslo, Dept Behav Med, Oslo, Norway
来源
AMERICAN JOURNAL OF ALZHEIMERS DISEASE AND OTHER DEMENTIAS | 2023年 / 38卷
关键词
well-being; dementia; observation; scale; psychometric properties; music therapy; QUALITY-OF-LIFE; NURSING-HOME RESIDENTS; PEOPLE; PSYCHOLOGY; VALIDITY; COSMIN; MUSIC;
D O I
10.1177/15333175231171990
中图分类号
R592 [老年病学]; C [社会科学总论];
学科分类号
03 ; 0303 ; 100203 ;
摘要
The Observable Well-being in Living with Dementia-Scale was developed to address conceptual and methodological issues in current observational scales for music therapy. Creative interventions may receive lowered scores, as existing instruments rely heavily on verbal behavior. Methods were (1) Systematic review of observational instruments: (2) field work with music therapy and sociable interactions to operationalize the items; (3) field testing assessing feasibility and preliminary psychometric properties; (4) focus groups with experts to investigate content validity; (5) final field test and revision. 2199 OWLS-ratings were conducted in 11 participants. Hypotheses of construct validity and responsiveness were supported (r = .33 -.65). Inter-rater reliability was good (84% agreement between coders, Cohen's Kappa = .82), and intra-rater reliability was excellent (98% agreement, Cohen's Kappa = .98). Focus groups with 8 experts supported the relevance of the items and suggested further refinements to increase comprehensiveness. The final field-tested OWLS showed improved inter-rater reliability and usability.
引用
收藏
页数:12
相关论文
共 61 条
[41]   Factors that Affect Quality of Life from the Perspective of People with Dementia: A Metasynthesis [J].
O'Rourke, Hannah M. ;
Duggleby, Wendy ;
Fraser, Kimberly D. ;
Jerke, Lauren .
JOURNAL OF THE AMERICAN GERIATRICS SOCIETY, 2015, 63 (01) :24-38
[42]   Towards capturing meaningful outcomes for people with dementia in psychosocial intervention research: A pan-European consultation [J].
Oksnebjerg, Laila ;
Diaz-Ponce, Ana ;
Gove, Dianne ;
Moniz-Cook, Esme ;
Mountain, Gail ;
Chattat, Rabih ;
Woods, Bob .
HEALTH EXPECTATIONS, 2018, 21 (06) :1056-1065
[43]   The positive response schedule for severe dementia [J].
Perrin, T .
AGING & MENTAL HEALTH, 1997, 1 (02) :184-191
[44]   COSMIN guideline for systematic reviews of patient-reported outcome measures [J].
Prinsen, C. A. C. ;
Mokkink, L. B. ;
Bouter, L. M. ;
Alonso, J. ;
Patrick, D. L. ;
de Vet, H. C. W. ;
Terwee, C. B. .
QUALITY OF LIFE RESEARCH, 2018, 27 (05) :1147-1157
[45]  
Pustejovsky J.E. Swan., 2018, SINGLE CASE EFFECT S
[46]   Using response ratios for meta-analyzing single-case designs with behavioral outcomes [J].
Pustejovsky, James E. .
JOURNAL OF SCHOOL PSYCHOLOGY, 2018, 68 :99-112
[47]   Measurement-Comparable Effect Sizes for Single-Case Studies of Free-Operant Behavior [J].
Pustejovsky, James E. .
PSYCHOLOGICAL METHODS, 2015, 20 (03) :342-359
[48]   What is important to people with dementia living at home? A set of core outcome items for use in the evaluation of non-pharmacological community-based health and social care interventions [J].
Reilly, Siobhan T. ;
Harding, Andrew J. E. ;
Morbey, Hazel ;
Ahmed, Faraz ;
Williamson, Paula R. ;
Swarbrick, Caroline ;
Leroi, Iracema ;
Davies, Linda ;
Reeves, David ;
Holland, Fiona ;
Hann, Mark ;
Keady, John .
AGE AND AGEING, 2020, 49 (04) :664-671
[49]   Magnitude and Causes of Bias Among Family Caregivers Rating Alzheimer Disease Patients [J].
Schulz, Richard ;
Cook, Thomas B. ;
Beach, Scott R. ;
Lingler, Jennifer H. ;
Martire, Lynn M. ;
Monin, Joan K. ;
Czaja, Sara J. .
AMERICAN JOURNAL OF GERIATRIC PSYCHIATRY, 2013, 21 (01) :14-25
[50]   Ecological momentary assessment [J].
Shiffman, Saul ;
Stone, Arthur A. ;
Hufford, Michael R. .
ANNUAL REVIEW OF CLINICAL PSYCHOLOGY, 2008, 4 :1-32