The feasibility of using ecological momentary assessment to understand urinary and fecal incontinence experiences in adults with spina bifida: A 30-day study

被引:4
作者
Hensel, Devon J. [1 ,2 ,3 ]
Young, Audrey I. [3 ]
Szymanski, Konrad M. [4 ]
机构
[1] Indiana Univ Sch Med, Sect Adolescent Med, Dept Pediat, Indianapolis, IN 46202 USA
[2] Indiana Univ Purdue Univ, Dept Sociol, Indianapolis, IN 46202 USA
[3] Depauw Univ, Dept Biol, Greencastle, IN 46135 USA
[4] Indiana Univ Hlth, Riley Hosp Children, Div Pediat Urol, Indianapolis, IN USA
来源
PLOS ONE | 2023年 / 18卷 / 11期
关键词
QUALITY-OF-LIFE; ASSESSMENT EMA; HEALTH; VALIDATION; STRESS; IMPACT; PAIN;
D O I
10.1371/journal.pone.0292735
中图分类号
O [数理科学和化学]; P [天文学、地球科学]; Q [生物科学]; N [自然科学总论];
学科分类号
07 ; 0710 ; 09 ;
摘要
In this paper, we evaluate the feasibility of using ecological momentary assessment (EMA) to understand urinary (UI) and fecal (FI) incontinence in adults with spina bifida (SB). As part of a larger 30-day prospective study to understand the incontinence in adults with SB (N = 89), participants completed end-of-day EMA diaries assessing the frequency and context of UI and FI. We used these data to assess the method feasibility across six dimensions: (a) compliance, or data entry which is consistent with study protocol and substantially complete; (b) reactivity, or behavior change attributed to study participation; (c) participant acceptability, or convenience and ease of method beneficial to compliance; (d) data capture, or the volume of incontinence behaviors collected; (e) the accuracy of incontinence reports; and f) participant-provided feedback for future studies. Participants were highly compliant with diary entry protocol and schedule: submitting 95.7% (2576/2700) of the expected total daily entries. The average completion time was two minutes. Neither the total number of submissions nor the completion time varied by demographic characteristics or health history. A sufficient volume of incontinence and affective outcomes were captured, with small downtrends in reporting of UI and affect over time. Exit survey recall was highly correlated with diary reports. Participants found the methodology to be acceptable, reported their experiences honestly, enjoyed and felt comfortable participating in the study and would engage in similar study in the future. Accurate information about the daily context of UI and FI is a key factor in the success of intervention or education programs relying on this information. Our findings demonstrate that EMA is a feasible way to describe UI and FI in adults with SB.
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页数:22
相关论文
共 82 条
[1]  
[Anonymous], 2018, BMJ, V362, pk4131, DOI 10.1136/bmj.k4131
[2]  
[Anonymous], 2009, Proceedings of the 11th international ACM SIGACCESS conference on Computers and accessibility
[3]  
Brown H., 2014, Applied mixed models in medicine
[4]   Using the Internet to Access Key Populations in Ecological Momentary Assessment Research: Comparing Adherence, Reactivity, and Erratic Responding Across Those Enrolled Remotely Versus In-Person [J].
Carr, Daniel J. ;
Adia, Alexander C. ;
Wray, Tyler B. ;
Celio, Mark A. ;
Perez, Ashley E. ;
Monti, Peter M. .
PSYCHOLOGICAL ASSESSMENT, 2020, 32 (08) :768-779
[5]   Health Care Access for Latino Mixed-Status Families: Barriers, Strategies, and Implications for Reform [J].
Castaneda, Heide ;
Melo, Milena Andrea .
AMERICAN BEHAVIORAL SCIENTIST, 2014, 58 (14) :1891-1909
[6]   Compliance to a Cell Phone-Based Ecological Momentary Assessment Study: The Effect of Time and Personality Characteristics [J].
Courvoisier, Delphine S. ;
Eid, Michael ;
Lischetzke, Tanja .
PSYCHOLOGICAL ASSESSMENT, 2012, 24 (03) :713-720
[7]   Smartphone-Based Ecological Momentary Assessment of Well-Being: A Systematic Review and Recommendations for Future Studies [J].
de Vries, Lianne P. ;
Baselmans, Bart M. L. ;
Bartels, Meike .
JOURNAL OF HAPPINESS STUDIES, 2021, 22 (05) :2361-2408
[8]   INNOVATIONS IN TELEMEDICINE SERVICES IN SPINA BIFIDA CLINICS IN THE U.S. DURING THE COVID-19 PANDEMIC [J].
Dicianno, Brad E. ;
Swana, Hubert S. ;
Cooper, Rory A. ;
Brei, Timothy J. .
TECHNOLOGY AND INNOVATION, 2022, 22 (02) :157-164
[9]   Feasibility of Using Mobile Health to Promote Self-Management in Spina Bifida [J].
Dicianno, Brad E. ;
Fairman, Andrea D. ;
Mccue, Michael ;
Parmanto, Bambang ;
Yih, Erika ;
Mccoy, Andrew ;
Pramana, Gede ;
Yu, Daihua X. ;
McClelland, Justin ;
Collins, Diane M. ;
Brienza, David M. .
AMERICAN JOURNAL OF PHYSICAL MEDICINE & REHABILITATION, 2016, 95 (06) :425-437
[10]   Mobility, Assistive Technology Use, and Social Integration Among Adults with Spina Bifida [J].
Dicianno, Brad E. ;
Gaines, Anna ;
Collins, Diane M. ;
Lee, Shannon .
AMERICAN JOURNAL OF PHYSICAL MEDICINE & REHABILITATION, 2009, 88 (07) :533-541