Measuring patient activation: the utility of the Patient Activation Measure administered in an interview setting

Background Patient activation is an emerging field in healthcare research concerning knowledge, skills, and confidence of patients in managing their health. This is particularly important for patients with chronic diseases, who often require more complex care management and self-care skills. However, due to temporary or longer-lasting visual impairments, certain patient groups cannot answer a questionnaire independently. The main objective is to investigate the psychometric properties of the German Patient Activation Measure (R) (PAM) survey in an everyday clinical setting where it has to be read aloud. Methods Outpatients with macular edema participated in this questionnaire-based cross-sectional study. The study assessed patient activation by the PAM (R) survey, self-rated health, self-efficacy, quality of life, and general mood. Interviewers read questionnaires aloud to patients. Psychometric properties of the PAM (R) survey were investigated by item response theory (IRT), Cronbach's alpha and trait-trait correlations. Results The analysis included N = 554 patients. Median age was 69 (IQR 62.0-76.0) years and mean overall activation score 74.1 (SD 13.7). All items showed ceiling effects. Empirical reliability from the IRT model and Cronbach's alpha were 0.75. The PAM (R) survey showed a Spearman correlation of 0.54 with self-efficacy, 0.51 with quality of life and 0.34 with general mood. Conclusion The read-aloud PAM (R) survey has been shown to provide to adequate measurement precision and convergent validity to be used as a screening tool in an everyday clinical setting. Objective assessment in an interview setting with the PAM (R) survey is possible. PAM (R) items are good in distinguishing lower to middle activated patients, but not patients with high activation. Further, issues with structural validity need more investigation.