Whose uncertainty? Learning disability research in a time of COVID-19

被引:1
作者
Ryan, Sara [1 ,2 ]
Mikulak, Magdalena [1 ]
Hatton, Chris [1 ]
机构
[1] Manchester Metropolitan Univ, Dept Social Care & Social, Manchester, England
[2] Manchester Metropolitan Univ, Dept Social Care & Social Work, Brooks Bldg,Birley Campus,53 Bonsall St, Manchester M15 6GX, England
基金
美国国家卫生研究院;
关键词
Learning disability; COVID19; ethnography; support; growing older; RISK; PEOPLE; ADULTS;
D O I
10.1080/13645579.2023.2173425
中图分类号
C [社会科学总论];
学科分类号
03 ; 0303 ;
摘要
UK government responses to COVID-19 have intensified experiences of uncertainty for people with learning disabilities. The pandemic has eroded the support people receive, previously weakened by austerity measures. In research, COVID-19 related uncertainty has led to some reworking of methods and intensive contingency planning. This was to fulfil funding requirements and was underpinned by research teams' commitment to continuing research with people with learning disabilities not despite, but because of the pandemic. This is in a context where people with learning disabilities have been systemically excluded from research participation. Here, we reflect on these processes in relation to a project exploring how to improve the support for older people with learning disabilities. We consider the distribution of uncertainty in relation to conducting research during this time and ask whose uncertainty is attended to in these mid- and post-pandemic methodological debates and why. We suggest pandemic 'disruption' has created space for critical reflection allowing methodological creativity and consideration of in between strategies of trust, intuition, and emotion. We caution against the re-constraining of this space, instead arguing for continuing flexibility and creativity, where uncertainties are shared rather than used as a tool of control or dismissal of claims to support.
引用
收藏
页码:535 / 547
页数:13
相关论文
共 63 条
  • [11] Comas-Herrera A., LTCcovid, Care Policy Evaluation Centre, DOI [10.21953/lse.mlre15e0u6s6, DOI 10.21953/LSE.MLRE15E0U6S6]
  • [12] Covid 19: People with learning disabilities are highly vulnerable
    Courtenay, Ken
    Cooper, Vivien
    [J]. BMJ-BRITISH MEDICAL JOURNAL, 2021, 374
  • [13] Crowther N., 2022, COVID 19 PEOPLE DISA
  • [14] All-cause and cause-specific mortality in people with mental disorders and intellectual disabilities, before and during the COVID-19 pandemic: cohort study
    Das-Munshi, Jayati
    Chang, Chin Kuo
    Bakolis, Ioannis
    Broadbent, Matthew
    Dregan, Alex
    Hotopf, Matthew
    Morgan, Craig
    Stewart, Robert
    [J]. LANCET REGIONAL HEALTH-EUROPE, 2021, 11
  • [15] de Seta G., 2020, Journal of Digital Social Research, V2, P77, DOI [DOI 10.33621/JDSR.V2I1.24, 10.33621/JDSR.V2I1.24]
  • [16] Skype interviewing: reflections of two PhD researchers
    Deakin, Hannah
    Wakefield, Kelly
    [J]. QUALITATIVE RESEARCH, 2014, 14 (05) : 603 - 616
  • [17] Engaging with risk in non-Western settings: an editorial
    Desmond, Nicola
    [J]. HEALTH RISK & SOCIETY, 2015, 17 (3-4) : 196 - 204
  • [18] Dunn P, 2020, Briefing: Adult social care and COVID-19. Assessing the policy response in England so far
  • [19] Flynn S., 2021, Coronavirus and people with learning disabilities study Wave 1 Results: March 2021
  • [20] Access to and use of health and social care services for people with learning disabilities during COVID-19: a longitudinal study
    Flynn, Samantha
    Hatton, Chris
    Hastings, Richard P.
    Hayden, Nikita
    Caton, Sue
    Heslop, Pauline
    Jahoda, Andrew
    Todd, Stuart
    Oloidi, Edward
    Beyer, Stephen
    Mulhall, Peter
    Taggart, Laurence
    [J]. TIZARD LEARNING DISABILITY REVIEW, 2022, 27 (01) : 57 - 66