Operationalisation of self-determination of persons with profound intellectual and multiple disabilities: A Delphi study

被引：4
作者：
Nijs, S. [1 ]
Zijlmans, M. [1 ]
Schuengel, C. [2 ]
Embregts, P. J. C. M. [1 ]
机构：
[1] Tilburg Univ, Tilburg Sch Social & Behav Sci, Dept Tranzo, Tilburg, Netherlands
[2] Vrije Univ Amsterdam, Dept Clin Child & Family Studies, Family Studies, Amsterdam, Netherlands
来源：
JOURNAL OF INTELLECTUAL & DEVELOPMENTAL DISABILITY | 2023年 / 48卷 / 03期
关键词：
Self-determination; profound intellectual and multiple disabilities; Delphi study; QUALITY-OF-LIFE; PEOPLE; ADULTS; INDIVIDUALS; MOTIVATION; SUPPORT; PARTICIPATION; ABILITIES; CHILDREN;
D O I：
10.3109/13668250.2022.2147053
中图分类号：
G76 [特殊教育];
学科分类号：
040109 ;
摘要：
BackgroundThe high support needs of persons with profound intellectual and multiple disabilities hamper their possibilities for self-determination. To support their self-determination understanding of what this means for this group is necessary.MethodA three-round Delphi procedure with international experts was undertaken to operationalise self-determination for persons with profound intellectual and multiple disabilities. The quantitative output of Likert scales guided us in finding consensus or differences in the qualitative data. First round qualitative data were analysed thematically.ResultsThe analysis revealed four topics: (1) statements regarding the characteristics of the person with profound intellectual and multiple disabilities, (2) statements regarding characteristics of the social environment, (3) statements regarding the concept of self-determination, and (4) statements regarding the definition and operationalisation of concepts.ConclusionConsensus was found on the assumption that persons with profound intellectual and multiple disabilities can live a self-determined life and on the importance of the interplay between persons with profound intellectual and multiple disabilities and the environment in order to experience self-determination.
引用
收藏
页码：300 / 312
页数：13
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