Using a community engaged research approach to develop the social skills training program for adults with Williams syndrome

被引：0

作者：

Fisher, Marisa H. ^{[1
,2
,5
,6
]}

Black, Rhonda S. ^{[3
]}

Kammes, Rebecca R. ^{[1
,4
]}

机构：

[1] Michigan State Univ, Dept Counseling Educ Psychol & Special Educ, E Lansing, MI USA

[2] Michigan State Univ, Ctr Serv Training & Res Independence & Desired Emp, E Lansing, MI USA

[3] Univ Hawaii Manoa, Dept Special Educ, Honolulu, HI USA

[4] UCLA, Semel Inst Neurosci & Human Behav, Los Angeles, CA USA

[5] Michigan State Univ, Dept Counseling Educ Psychol & Special Educ, 620 Farm Lane,Erickson Hall 338, E Lansing, MI 48824 USA

[6] Michigan State Univ, Ctr Serv Training & Res Independence & Desired Emp, 620 Farm Lane,Erickson Hall 338, E Lansing, MI 48824 USA

来源：

JOURNAL OF INTELLECTUAL DISABILITIES | 2024年

关键词：

Williams syndrome; community engaged research; social skills; community participation; AUTISM SPECTRUM DISORDER; PARTICIPATORY RESEARCH; CHILDREN; HYPERSOCIABILITY; VULNERABILITY; DISABILITIES; INDIVIDUALS; PHENOTYPE; DEFICITS;

D O I：

10.1177/17446295241245783

中图分类号：

G76 [特殊教育];

学科分类号：

040109 ;

摘要：

This article describes the development of a distance-delivered social skills training program for adults with Williams syndrome (SSTP-WS) through a community engaged approach. Throughout six phases of development, the research team received input from adults with Williams syndrome, caregivers, service providers, educators, and researchers on (a) the need for a training program and topics to be addressed (Phase 1), (b) an initial draft of the SSTP-WS (Phase 3), (c) the intervention pilot study (Phase 5), and (d) feedback to provide context for the results of the study (Phase 6). The development of the SSTP-WS resulted in an intervention aligned with the Williams syndrome community's values and needs that supports the unique cognitive and behavioral phenotypes and social characteristics of this low incidence disability population.

引用

页数：19

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