Esophageal Surveillance Practices in Esophageal Atresia Patients: A Survey by the Eastern Pediatric Surgery Network

被引:3
作者
Hamilton-Hall III, Malcolm N. [1 ]
Jungbauer, Dana [2 ]
Finck, Christine [3 ]
Middlesworth, William [4 ,13 ]
Zendejas, Benjamin [5 ]
Alaish, Samuel M. [6 ]
Griggs, Cornelia L. [7 ,8 ]
Russell, Robert T. [9 ]
Shieh, Hester F. [10 ]
Scholz, Stefan [11 ]
Kunisaki, Shaun M. [6 ]
Feng, Christina [12 ]
Danko, Melissa E. [13 ]
DeFazio, Jennifer R. [14 ]
Smithers, Charles J. [10 ]
Zamora, Irving J. [12 ]
Knod, J. Leslie [3 ,15 ]
机构
[1] Univ Connecticut, UConn John Dempsey Hosp, MD MPH Dual Degree Program, Sch Med, 100 Hosp Dr, Farmington, CT 06030 USA
[2] Connecticut Childrens Med Ctr, Div Res Operat & Dev, 282 Washington St, Hartford, CT 06106 USA
[3] Connecticut Childrens Med Ctr, Div Pediat Surg, 282 Washington St, Hartford, CT 06106 USA
[4] Columbia Irving Med Ctr, Div Pediat Surg, 622 168th St, New York, NY 10032 USA
[5] Boston Childrens Hosp, Dept Surg, 300 Longwood Ave, Boston, MA 02115 USA
[6] Johns Hopkins Univ, Dept Surg, Sch Med, 733 N Broadway, Baltimore, MD 21205 USA
[7] Massachusetts Gen Hosp, Div Pediat Surg, 55 Fruit St, Boston, MA 02114 USA
[8] Harvard Med Sch, 25 Shattuck St, Boston, MA 02115 USA
[9] Childrens Alabama, Div Pediat Surg, 1600 7th Ave South, Birmingham, AL 35233 USA
[10] Johns Hopkins All Childrens Hosp, Div Pediat Surg, 501 6th Ave S, St Petersburg, FL 33701 USA
[11] UPMC Childrens Hosp Pittsburgh, Div Pediat Gen & Thorac Surg, One Childrens Hosp Dr,4401 Penn Ave, Pittsburgh, PA 15224 USA
[12] Childrens Natl Hosp, Div Pediat Colorectal & Pelv Reconstruct, 111 Michigan Ave NW, Washington, DC 20010 USA
[13] Monroe Carell Jr Childrens Hosp Vanderbilt, Dept Pediat Surg, 2200 Childrens Way, Nashville, TN 37232 USA
[14] NewYork Presbyterian Morgan Stanley Childrens Hosp, Div Pediat Surg, 3959 Broadway, New York, NY 10032 USA
[15] Connecticut Childrens Med Ctr, 282 Washington St, Hartford, CT 06106 USA
关键词
Esophageal atresia; Surveillance; Esophageal disease; TRACHEOESOPHAGEAL FISTULA; GASTROESOPHAGEAL-REFLUX; FOLLOW-UP; KNOWLEDGE; COMPLICATIONS; GUIDELINES; MANAGEMENT; CHILDREN; ADULTS;
D O I
10.1016/j.jpedsurg.2023.02.030
中图分类号
R72 [儿科学];
学科分类号
100202 ;
摘要
Introduction: Endoscopic surveillance guidelines for patients with repaired esophageal atresia (EA) rely primarily on expert opinion. Prior to embarking on a prospective EA surveillance registry, we sought to understand EA surveillance practices within the Eastern Pediatric Surgery Network (EPSN).Methods: An anonymous, 23-question Qualtrics survey was emailed to 181 physicians (surgeons and gastroenterologists) at 19 member institutions. Likert scale questions gauged agreement with interna-tional EA surveillance guideline-derived statements. Multiple-choice questions assessed individual and institutional practices.Results: The response rate was 77%. Most respondents (80%) strongly agree or agree that EA surveillance endoscopy should follow a set schedule, while only 36% claimed to perform routine upper GI endoscopy regardless of symptoms. Many institutions (77%) have an aerodigestive clinic, even if some lack a multi-disciplinary EA team. Most physicians (72%) expressed strong interest in helping develop evidence-based guidelines.Conclusions: Our survey reveals physician agreement with current guidelines but weak adherence. Surveillance methods vary greatly, underscoring the lack of evidence-based data to guide EA care. Aer-odigestive clinics may help implement surveillance schedules. Respondents support evidence-based protocols, which bodes well for care standardization. Results will inform the first multi-institutional EA databases in the United States (US), which will be essential for evidence-based care.Level of Evidence: This is a prognosis study with level 4 evidence.(c) 2023 Elsevier Inc. All rights reserved.
引用
收藏
页码:1213 / 1218
页数:6
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