Co-design of an intervention exploring meaning and purpose after spinal cord injury

被引:2
作者
Clifton, Shane [1 ,6 ]
Bray, Emily [2 ]
Dong, Skye [3 ]
Mccabe, Rebecca [4 ]
Siddall, Philip [4 ,5 ]
机构
[1] Univ Sydney, Fac Hlth Sci, Ctr Disabil Res & Policy, Camperdown, Australia
[2] Spinal Cord Injuries Australia, Sydney, Australia
[3] Melanoma Inst Australia, Wollstonecraft, Australia
[4] Hammondcare, Sydney, Australia
[5] Univ Sydney, Sydney Med Sch Northern, Camperdown, Australia
[6] Univ Sydney, Fac Hlth Sci, Ctr Disabil Res & Policy, Camperdown, NSW, Australia
关键词
Meaning; purpose; spinal cord injury; post-traumatic growth; co-design; QUALITY-OF-LIFE; FACE-TO-FACE; RANDOMIZED CONTROLLED-TRIAL; POSTTRAUMATIC GROWTH; PEOPLE; SATISFACTION; INDIVIDUALS; RESILIENCE; EXPERIENCE; THERAPY;
D O I
10.1080/09638288.2023.2300655
中图分类号
R49 [康复医学];
学科分类号
100215 ;
摘要
PurposeRebuilding a strong sense of meaning and purpose following trauma is a vital contributor to post-traumatic growth and adapting well to a spinal cord injury. This project aimed to develop an intervention that used the concept of post-traumatic growth to foster a stronger sense of meaning and purpose in people with a spinal cord injury.MethodsUsing participatory action research methodology, the intervention was designed in an iterative process with health professionals and people with lived experience of spinal cord injury. We developed a ten-week online group program and delivered two pilot programs to 13 participants. We used their feedback to further refine the program before finalisation.ResultsA participatory action research approach resulted in a positive intervention well received by participants and consumer organisations. Feedback suggests the intervention shows promise for improvements in functional and psychosocial outcomes and has long-term viability.ConclusionsThe project successfully developed and delivered a novel program that uses the concept of post-traumatic growth to foster a stronger sense of meaning and purpose. Further implementation of the program with larger numbers will allow for evaluation of the program's effectiveness. Group-based intervention programs based on principles of post-traumatic growth can help people with spinal cord injury explore meaning and purpose.Co-design, development and implementation of interventions help to ensure such programs appeal to consumers, meet their needs, and are sustainable.Interventions can be delivered effectively online.
引用
收藏
页码:5243 / 5252
页数:10
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