Systematic Review on Family Functioning in Families of Children With Rare Diseases

被引：1

作者：

Assalone, Florencia ^{[1
]}

Ortega, Javiera ^{[2
]}

Vazquez, Natalia ^{[1
]}

Vazquez, Victoria ^{[1
]}

机构：

[1] Univ Austral, Fac Ciencias Biomed, Buenos Aires, Argentina

[2] Pontificia Univ Catolica Argentina, Consejo Nacl Invest Cient & Tecn CONICET, Buenos Aires, Argentina

来源：

PAPELES DEL PSICOLOGO | 2024年 / 45卷 / 01期

关键词：

Family functioning; Rare diseases; Caregivers; Impact of the diagnosis; COPING STRATEGIES; PARENTS; STRESS; IMPACT; BEHAVIOR; BURDEN;

D O I：

10.23923/pap.psicol.3031

中图分类号：

B84 [心理学];

学科分类号：

04 ; 0402 ;

摘要：

The present study is a systematic review of the research on family functioning in families who have a child with a rar e disease. The research was carried out using the databases Pubmed, EBSCO, and Google Scholar, following PRISMA guidelines. After applying the inclusion and exclusion criteria t o the 460 articles initially found, a total of 49 articles made up the final sample. The following topics regarding family functioning wer e identified: impact of diagnosis; caregiver's role and responsibilities; family functioning; impact on the emotional sphere; effects on marital and social life; coping strategies; family, and care and health system. The results of this study may provide justification for considering factors associated with family functioning when diagnosing a rare disease and deciding on treatment.

引用

页码：39 / 47

页数：9

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