To Plan or Not to Plan? Experiences and Challenges of Older Swiss Adults Facing End-of-Life Decisions

被引:0
|
作者
Dransart, Dolores Angela Castelli [4 ]
Maggiori, Christian [1 ]
Burnier, Daniel [2 ]
Geiser, Francois [1 ]
Lapierre, Sylvie [3 ]
机构
[1] HES SO Univ Appl Sci & Arts Western Switzerland, Sch Social Work Fribourg, Fribourg, Switzerland
[2] Univ Neuchatel, Inst Sociol, Neuchatel, Switzerland
[3] Univ Quebec Trois Rivieres, Dept Psychol, Trois Rivieres, PQ, Canada
[4] Haute Ecole Travail Social, HES SO Fribourg, Route Arsenaux 16a, CH-1700 Fribourg, Switzerland
关键词
end of life; advance directives; older adults; qualitative study; decision-making; ADVANCE DIRECTIVES; CARE; PEOPLE; PREFERENCES; COMPLETION; DISEASE; VIEWS; DEATH;
D O I
10.1177/00302228241239809
中图分类号
B84 [心理学];
学科分类号
04 ; 0402 ;
摘要
End-of-life (EoL) planning and the drafting of advance care directives (ACD) are challenging for older adults. As part of a mixed study, the content of 18 semi-structured interviews with Swiss community-dwelling older adults was analyzed to investigate contextual and interactional aspects that might influence their choice to complete ACD. Results show that EoL planning vary greatly. Three types of planners were highlighted: the solo planners, the collaborative planners, and the delegators. Each represents a specific way of conceiving autonomy, the usefulness of ACD and of involving third parties in the decision-making process. Whereas for solo planners, ACD is a personal, rational affair, for collaborative planners and delegators, reflection and decisions on EoL issues are interactional and iterative processes. The results suggest that health and social care professionals would benefit from taking into consideration the various types of planning, in order to provide the best support to older adults for ACD completion.
引用
收藏
页数:17
相关论文
共 50 条
  • [41] Association between Multimorbidity and End-of-Life Outcomes among Middle-Aged and Older Adults: Evidence from 28 Countries
    Luo, Shengyu
    Chen, Weiqing
    Li, Jinghua
    Guo, Vivian Yawei
    JOURNAL OF THE AMERICAN MEDICAL DIRECTORS ASSOCIATION, 2025, 26 (03)
  • [42] Impact of Race and Ethnicity on End-of-Life Experiences for Children With Cancer
    Kaye, Erica C.
    Gushue, Courtney A.
    DeMarsh, Samantha
    Jerkins, Jonathan
    Li, Chen
    Lu, Zhaohua
    Snaman, Jennifer M.
    Blazin, Lindsay
    Johnson, Liza-Marie
    Levine, Deena R.
    Morrison, R. Ray
    Baker, Justin N.
    AMERICAN JOURNAL OF HOSPICE & PALLIATIVE MEDICINE, 2019, 36 (09) : 767 - 774
  • [43] Preferences for end-of-life treatment: concordance between older adults with dementia or mild cognitive impairment and their spouses
    Ayalon, Liat
    Bachner, Yaacov G.
    Dwolatzky, Tzvi
    Heinik, Jeremia
    INTERNATIONAL PSYCHOGERIATRICS, 2012, 24 (11) : 1798 - 1804
  • [44] Preferences Regarding and Communication About End-of-Life Care Among Older Iranian-American Adults
    Rahemi, Zahra
    Dunphy, Lynn M.
    Newman, David
    WESTERN JOURNAL OF NURSING RESEARCH, 2019, 41 (10) : 1499 - 1516
  • [45] Discrepancies in End-of-life Decisions Between Elderly Patients and Their Named Surrogates
    Foo, Aaron S. C.
    Lee, Tze Wee
    Soh, Chai Rick
    ANNALS ACADEMY OF MEDICINE SINGAPORE, 2012, 41 (04) : 141 - 153
  • [46] Correlates of end-of-life treatment preferences among young adults and older adults
    Barnett, Michael D.
    Bennett-Leleux, Lauren J.
    DEATH STUDIES, 2022, 46 (07) : 1641 - 1647
  • [47] An Exploratory Survey of End-of-Life Attitudes, Beliefs, and Experiences of Adolescents With HIV/AIDS and Their Families
    Garvie, Patricia A.
    He, Jianping
    Wang, Jichuan
    D'Angelo, Lawrence J.
    Lyon, Maureen E.
    JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 2012, 44 (03) : 373 - +
  • [48] Critical care nurses' experiences of ethical challenges in end-of-life care
    Palmryd, Lena
    Rejno, Asa
    Alvariza, Anette
    Godskesen, Tove
    NURSING ETHICS, 2025, 32 (02) : 424 - 436
  • [49] Family members' experiences of "wait and see" as a communication strategy in end-of-life decisions
    Lind, Ranveig
    Lorem, Geir F.
    Nortvedt, Per
    Hevroy, Olav
    INTENSIVE CARE MEDICINE, 2011, 37 (07) : 1143 - 1150
  • [50] End-of-life decisions in acute stroke patients: an observational cohort study
    Alonso, Angelika
    Ebert, Anne D.
    DRr, Dorothee
    Buchheidt, Dieter
    Hennerici, Michael G.
    Szabo, Kristina
    BMC PALLIATIVE CARE, 2016, 15