Ethically important moments: Researching the intimate lives of adults labeled/with intellectual disabilities

被引:3
作者
Santinele Martino, Alan [1 ]
机构
[1] Univ Calgary, Community Rehabil & Disabil Studies, Community Hlth Sci, Calgary, AB, Canada
关键词
Disability; sexuality; fieldwork; ethically important moments; emotions; QUALITATIVE RESEARCH; SEXUALITY; PEOPLE; ETHNOGRAPHY; REFLEXIVITY; WOMEN;
D O I
10.1177/14687941221110179
中图分类号
C [社会科学总论];
学科分类号
03 ; 0303 ;
摘要
People labeled/with intellectual disabilities are rarely given the opportunity to "speak" about their sexual and romantic experiences on their own behalf. Persisting stereotypes and (over)protectionism sometimes serve as social mechanisms that silence disabled people in knowledge creation. Although further protections need to be implemented, people labeled/with intellectual disabilities must have an opportunity to share their perspectives and experiences with love and intimacy. This research note discusses some of the "ethically important moments" I have encountered as a researcher looking at the romantic and sexual lives of adults labeled/with intellectual disabilities, as well as how my embodied experience in the field led me to reflect on my own positionality as a researcher and sexual being.
引用
收藏
页码:1800 / 1809
页数:10
相关论文
共 38 条
[1]   Characteristics of Sexual Abuse in a Sample of Turkish Children With and Without Mental Retardation, Referred for Legal Appraisal of the Psychological Repercussions [J].
Akbas, Seher ;
Turla, Ahmet ;
Karabekiroglu, Koray ;
Pazvantoglu, Ozan ;
Keskin, Tuelay ;
Boke, Omer .
SEXUALITY AND DISABILITY, 2009, 27 (04) :205-213
[2]  
Ashby C., 2011, DISABILITY STUDIES Q, V31, DOI [DOI 10.18061/DSQ.V31I4.1723, DOI 10.18061/DSQ.V31I4]
[3]   Relationships of people with learning disabilities in Ireland [J].
Bane, Geraldine ;
Dooher, Martin ;
Flaherty, Josephine ;
Mahon, Ann ;
Mc Donagh, Padraig ;
Wolfe, Marie ;
Deely, Marie ;
Hopkins, Rob ;
Minogue, Ger ;
Curry, Martin ;
Donohoe, Brian ;
Tierney, Edel ;
Iriarte, Edurne Garcia ;
Doherty, Siobhain O' ;
Shannon, Stephen .
BRITISH JOURNAL OF LEARNING DISABILITIES, 2012, 40 (02) :109-122
[4]  
Barnes C., 2008, HDB SOCIAL RES ETHIC, P458, DOI [https://doi.org/10.4135/9781483348971.n29, DOI 10.4135/9781483348971.N29]
[5]   'Hidden ethnography': Crossing emotional borders in qualitative accounts of young people's lives [J].
Blackman, Shane J. .
SOCIOLOGY-THE JOURNAL OF THE BRITISH SOCIOLOGICAL ASSOCIATION, 2007, 41 (04) :699-716
[6]   Ethics Beyond the IRB: An Introductory Essay [J].
Blee, Kathleen M. ;
Currier, Ashley .
QUALITATIVE SOCIOLOGY, 2011, 34 (03) :401-413
[7]   Sexuality issues and the voices of adults with intellectual disabilities: A systematic review of the literature [J].
Brown, Michael ;
McCann, Edward .
RESEARCH IN DEVELOPMENTAL DISABILITIES, 2018, 74 :124-138
[8]   Prevalence and psychological sequelae of sexual abuse among individuals with an intellectual disability: A review of the recent literature [J].
Byrne, Gary .
JOURNAL OF INTELLECTUAL DISABILITIES, 2018, 22 (03) :294-310
[9]  
Cameron L., 2007, BRIT J LEARN DISABIL, V35, P113, DOI DOI 10.1111/J.1468-3156.2006.00404.X
[10]  
Charlton J. I., 1998, Nothing about us without us: Disability oppression and empowerment