Maximizing the positive and minimizing the negative: Social media data to study youth mental health with informed consent

被引:4
作者
Leightley, Daniel [1 ]
Bye, Amanda [1 ]
Carter, Ben [2 ]
Trevillion, Kylee [3 ]
Branthonne-Foster, Stella
Liakata, Maria [4 ]
Wood, Anthony [5 ]
Ougrin, Dennis [6 ,7 ]
Orben, Amy [8 ]
Ford, Tamsin [9 ]
Dutta, Rina [1 ,10 ]
机构
[1] Kings Coll London, Inst Psychiat Psychol & Neurosci, Dept Psychol Med, London, England
[2] Kings Coll London, Inst Psychiat Psychol & Neurosci, Dept Biostat & Hlth Informat, London, England
[3] Kings Coll London, Inst Psychiat Psychol & Neurosci, Hlth Serv & Populat Res Dept, London, England
[4] Queens Mary Univ London, Sch Elect Engn & Comp Sci, London, England
[5] Qntfy, Arlington, VA USA
[6] Queen Mary Univ London, Wolfson Inst Populat Hlth, Ctr Psychiat & Mental Hlth, London, England
[7] Kings Coll London, Inst Psychiat Psychol & Neurosci, Dept Child & Adolescent Psychiat, London, England
[8] MRC Cognit & Brain Sci Unit, Cambridge, England
[9] Univ Cambridge, Dept Psychiat, Cambridge, England
[10] South London & Maudsley NHS Fdn Trust, London, England
基金
英国工程与自然科学研究理事会; 英国医学研究理事会; 美国国家卫生研究院;
关键词
social media; data protection; research ethics; risk; Facebook;
D O I
10.3389/fpsyt.2022.1096253
中图分类号
R749 [精神病学];
学科分类号
100205 ;
摘要
Social media usage impacts upon the mental health and wellbeing of young people, yet there is not enough evidence to determine who is affected, how and to what extent. While it has widened and strengthened communication networks for many, the dangers posed to at-risk youth are serious. Social media data offers unique insights into the minute details of a user's online life. Timely consented access to data could offer many opportunities to transform understanding of its effects on mental wellbeing in different contexts. However, limited data access by researchers is preventing such advances from being made. Our multidisciplinary authorship includes a lived experience adviser, academic and practicing psychiatrists, and academic psychology, as well as computational, statistical, and qualitative researchers. In this Perspective article, we propose a framework to support secure and confidential access to social media platform data for research to make progress toward better public mental health.
引用
收藏
页数:5
相关论文
共 13 条
[1]  
[Anonymous], 2020, ONLINE HARMS WHITE P
[2]  
Bye A., 2022, BMJ OPEN, V2022
[3]  
Coppersmith G., 2016, P 3 WORKSHOP COMPUTA, DOI [10.18653/v1/W16-0311, DOI 10.18653/V1/W16-0311]
[4]   Setting the future of digital and social media marketing research: Perspectives and research propositions [J].
Dwivedi, Yogesh K. ;
Ismagilova, Elvira ;
Hughes, D. Laurie ;
Carlson, Jamie ;
Filieri, Raffaele ;
Jacobson, Jenna ;
Jain, Varsha ;
Karjaluoto, Heikki ;
Kefi, Hajer ;
Krishen, Anjala S. ;
Kumar, Vikram ;
Rahman, Mohammad M. ;
Raman, Ramakrishnan ;
Rauschnabel, Philipp A. ;
Rowley, Jennifer ;
Salo, Jari ;
Tran, Gina A. ;
Wang, Yichuan .
INTERNATIONAL JOURNAL OF INFORMATION MANAGEMENT, 2021, 59
[5]   Toward clinical digital phenotyping: a timely opportunity to consider purpose, quality, and safety [J].
Huckvale, Kit ;
Venkatesh, Svetha ;
Christensen, Helen .
NPJ DIGITAL MEDICINE, 2019, 2 (1)
[6]  
Kelly Deanna L, 2021, Curr Res Psychiatry, V1, P1, DOI 10.46439/psychiatry.1.001
[7]   Social Media and Suicide: A Public Health Perspective [J].
Luxton, David D. ;
June, Jennifer D. ;
Fairall, Jonathan M. .
AMERICAN JOURNAL OF PUBLIC HEALTH, 2012, 102 :S195-S200
[8]   Social media companies should be forced to share data for harms and benefits research, say psychiatrists [J].
Mahase, Elisabeth .
BMJ-BRITISH MEDICAL JOURNAL, 2020, 368 :m209
[9]   What You Can Scrape and What Is Right to Scrape: A Proposal for a Tool to Collect Public Facebook Data [J].
Mancosu, Moreno ;
Vegetti, Federico .
SOCIAL MEDIA + SOCIETY, 2020, 6 (03)
[10]   A systematic review and meta-analysis of discrepancies between logged and self-reported digital media use [J].
Parry, Douglas A. ;
Davidson, Brittany I. ;
Sewall, Craig J. R. ;
Fisher, Jacob T. ;
Mieczkowski, Hannah ;
Quintana, Daniel S. .
NATURE HUMAN BEHAVIOUR, 2021, 5 (11) :1535-+