Family Carers' Experiences of Goals of Care Conversations in Acute Hospital Settings

被引：0
作者：
Vivekananda, Kitty [1 ,18 ]
Jayawardene, Jayamini S. [1 ]
O'Connor, Moira [2 ]
Watts, Kaaren J. [2 ]
Leonard, Anton D. [3 ]
Keesing, Sharon [4 ]
Halkett, Georgia [5 ]
Shaw, Josephine [6 ]
Colgan, Valerie [7 ]
Yuen, Kevin [8 ]
Jolly, Renate [9 ]
Towler, Simon C. [10 ,11 ,12 ]
Chauhan, Anupam [13 ]
Nicoletti, Margherita [14 ]
Johnson, Claire E. [15 ,16 ,17 ]
机构：
[1] Monash Univ, Fac Educ, Sch Educ Psychol & Counselling, Melbourne, Vic, Australia
[2] Curtin Univ, Fac Hlth Sci, WA Canc Prevent Res Unit, Sch Populat Hlth, Perth, WA, Australia
[3] East Metropolitan Hlth Serv, Royal Perth Bentley Grp, Crit Care & Intens Care, Perth, WA, Australia
[4] Curtin Univ, Sch Occupat Therapy Speech Pathol & Social Work, Perth, WA, Australia
[5] Curtin Univ, Fac Hlth Sci, Curtin Sch Nursing, Perth, WA, Australia
[6] Curtin Univ, Sch Psychol, Canc Prevent Res Unit, Perth, WA, Australia
[7] WA Dept Hlth, WA Canc & Palliat Care Network, Perth, WA USA
[8] East Metropolitan Hlth Serv, Royal Perth Bentley Gp, Palliat Care Dept, Perth, WA, Australia
[9] East Metropolitan Hlth Serv, Royal Perth Bentley Gp, Resp Med, Perth, WA, Australia
[10] Fiona Stanley Hosp, South Metropolitan Hlth Serv, Intens Care Unit, Perth, WA, Australia
[11] North Metropolitan Hlth Serv, MHPHDS Div, DonateLife, Perth, WA, Australia
[12] WA Dept Hlth, End Of Life Care, Perth, WA USA
[13] Rockingham Hosp, South Metropolitan Hlth Serv, Dept Intens Care Med, Perth, WA, Australia
[14] Rockingham Hosp, South Metropolitan Hlth Serv, Palliative Care, Perth, WA, Australia
[15] Monash Univ, Monash Nursing & Midwifery, Melbourne, Australia
[16] Eastern Hlth, Melbourne, Vic, Australia
[17] Univ Wollongong, Australian Hlth Serv Res Inst, Wollongong, Australia
[18] Monash Univ, Fac Educ, Sch Educ Psychol & Counselling, 19 Ancora Imparo Way, Melbourne, Vic, Australia
来源：
JOURNAL OF APPLIED GERONTOLOGY | 2023年 / 42卷 / 12期
关键词：
decision-making; end of life; family; goals of care; qualitative methods; OF-LIFE CARE; PATIENT COMMUNICATION; HEALTH; DISCUSSIONS; BARRIERS; OUTCOMES;
D O I：
10.1177/07334648231198973
中图分类号：
R4 [临床医学]; R592 [老年病学];
学科分类号：
1002 ; 100203 ; 100602 ;
摘要：
End-of-life Goals of Care (GoC) discussions aim to support care that is consistent with patients' preferences and values. This study uses an exploratory qualitative design drawing upon a social constructivist epistemology to examine family carers' perspectives on GoC within acute Australian hospital settings. Twenty-five family carers of aging inpatients were recruited from six Australian hospitals to participate in recorded, semi-structured interviews. Data were transcribed and analyzed using reflexive thematic analysis. Three main themes were developed. Theme 1 explored carers' experiences of GoC discussions-identifying varying levels of preparedness and carers' hopes for open, two-way discussions initiated by empathic Health Care Professionals (HCPs). Theme 2 examined carers' unmet needs for time, space, consistency, and support to make careful decisions. Theme 3 identified carers advocating for patients' needs when they could not do it themselves. Preparing carers and normalizing GoC discussions relating to end-of-life care maximizes benefits for patients, carers, and HCPs involved.
引用
收藏
页码：2304 / 2312
页数：9
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