Patient-reported outcomes in the aging population of adults with congenital heart disease: results from APPROACH-IS

被引:10
作者
Moons, Philip [1 ,2 ,3 ,4 ]
Luyckx, Koen [5 ,6 ]
Thomet, Corina [1 ,7 ]
Budts, Werner [8 ,9 ]
Enomoto, Junko [10 ]
Sluman, Maayke A. [11 ,12 ]
Yang, Hsiao Ling [13 ]
Jackson, Jamie L. [14 ]
Khairy, Paul [15 ]
Cook, Stephen C. [16 ]
Chidambarathanu, Shanthi [17 ]
Alday, Luis [18 ]
Oechslin, Erwin [19 ]
Eriksen, Katrine [20 ]
Dellborg, Mikael [21 ]
Berghammer, Malin [3 ,22 ,23 ]
Johansson, Bengt [24 ]
Mackie, Andrew S. [25 ]
Menahem, Samuel [26 ]
Caruana, Maryanne [27 ]
Veldtman, Gruschen [28 ]
Soufi, Alexandra [29 ]
Fernandes, Susan M. [30 ,31 ]
White, Kamila [32 ,33 ]
Callus, Edward [34 ,35 ]
Kutty, Shelby [36 ,37 ]
Kovacs, Adrienne H. [19 ]
机构
[1] KU Leuven Univ Leuven, KU Leuven Dept Publ Hlth & Primary Care, Kapucijnenvoer 35,Box 7001, B-3000 Leuven, Belgium
[2] Univ Gothenburg, Inst Hlth & Care Sci, Gothenburg, Sweden
[3] Univ Gothenburg, Ctr Person Ctr Care GPCC, Gothenburg, Sweden
[4] Univ Cape Town, Dept Paediat & Child Hlth, Cape Town, South Africa
[5] KU Leuven Univ Leuven, Sch Psychol & Child & Adolescent Dev, Leuven, Belgium
[6] Univ Free State, UNIBS, Bloemfontein, South Africa
[7] Univ Bern, Inselspital, Bern Univ Hosp, Ctr Congenital Heart Dis, Bern, Switzerland
[8] Univ Hosp Leuven, Div Congenital & Struct Cardiol, Leuven, Belgium
[9] KU Leuven Univ Leuven, KU Leuven Dept Cardiovasc Sci, Leuven, Belgium
[10] Toyo Univ, Dept Educ, Tokyo, Japan
[11] Univ Amsterdam, Dept Cardiol, Amsterdam UMC, Amsterdam, Netherlands
[12] Jeroen Bosch Hosp, Dept Cardiol, sHertogenbosch, Netherlands
[13] Natl Taiwan Univ, Coll Med, Sch Nursing, Taipei, Taiwan
[14] Nationwide Childrens Hosp, Ctr Biobehav Hlth, Columbus, OH USA
[15] Univ Montreal, Adult Congenital Heart Ctr, Montreal Heart Inst, Montreal, PQ, Canada
[16] Indiana Univ Hlth, Adult Congenital Heart Dis Program, Indianapolis, IN USA
[17] Frontier Lifeline Hosp, Dr KM Cherian Heart Fdn, Pediat Cardiol, Chennai, Tamil Nadu, India
[18] Hosp Ninos, Div Cardiol, Cordoba, Argentina
[19] Univ Toronto, Univ Hlth Network, Toronto Adult Congenital Heart Dis Program, Toronto, ON, Canada
[20] Oslo Univ Hosp, Rikshosp, Adult Congenital Heart Dis Ctr, Oslo, Norway
[21] Univ Gothenburg, Sahlgrenska Acad, Inst Med, Gothenburg, Sweden
[22] Univ West, Dept Hlth Sci, Trollhattan, Sweden
[23] Sahlgrens Univ Hosp, Queen Silvia Childrens Hosp, Dept Paediat, Gothenburg, Sweden
[24] Umea Univ, Dept Publ Hlth & Clin Med, Umea, Sweden
[25] Univ Alberta, Stollery Childrens Hosp, Div Cardiol, Edmonton, AB, Canada
[26] Monash Univ, Monash Med Ctr, Monash Heart, Melbourne, Vic, Australia
[27] Mater Dei Hosp, Dept Cardiol, Birkirkara Bypass, Malta
[28] Cincinnati Childrens Hosp Med Ctr, Adult Congenital Heart Dis Ctr, Cincinnati, OH 45229 USA
[29] Medipole Lyon Villeurbanne, Dept Cardiac Rehabil, Lyon, France
[30] Lucile Packard Childrens Hosp, Adult Congenital Heart Program Stanford, Palo Alto, CA USA
[31] Stanford Hlth Care, Palo Alto, CA USA
[32] Washington Univ, Adult Congenital Heart Dis Ctr, St Louis, MO 63110 USA
[33] Univ Missouri, Barnes Jewish Heart & Vasc Ctr, St Louis, MO 63121 USA
[34] IRCCS Policlin San Donato, Clin Psychol Serv, Milan, Italy
[35] Univ Milan, Dept Biomed Sci Hlth, Milan, Italy
[36] Univ Nebraska Med Ctr, Childrens Hosp & Med Ctr, Adult Congenital Heart Dis Ctr, Omaha, NE USA
[37] Johns Hopkins Sch Med, Taussig Heart Ctr, Baltimore, MD USA
关键词
Aging; Functioning; Heart defects; congenital; Mental health; Patient-reported outcomes; Quality of life; QUALITY-OF-LIFE; AGE; PATTERNS; BURDEN; CARE;
D O I
10.1093/eurjcn/zvac057
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
The congenital heart disease (CHD) population now comprises an increasing number of older persons in their 6th decade of life and beyond. We cross-sectionally evaluated patient-reported outcomes (PROs) in persons with CHD aged 60 years or older, and contrasted these with PROs of younger patients aged 40-59 years and 18-39 years. Adjusted for demographic and medical characteristics, patients >= 60 years had a lower Physical Component Summary, higher Mental Component Summary, and lower anxiety (Hospital Anxiety and Depression Scale-Anxiety) scores than patients in the two younger categories. For satisfaction with life, older persons had a higher score than patients aged 40-59 years. Registration: ClinicalTrials.gov NCT02150603.
引用
收藏
页码:339 / 344
页数:6
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