Patient-reported outcomes in the aging population of adults with congenital heart disease: results from APPROACH-IS

被引：13

作者：

Moons, Philip ^{[1
,2
,3
,4
]}

Luyckx, Koen ^{[5
,6
]}

Thomet, Corina ^{[1
,7
]}

Budts, Werner ^{[8
,9
]}

Enomoto, Junko ^{[10
]}

Sluman, Maayke A. ^{[11
,12
]}

Yang, Hsiao Ling ^{[13
]}

Jackson, Jamie L. ^{[14
]}

Khairy, Paul ^{[15
]}

Cook, Stephen C. ^{[16
]}

Chidambarathanu, Shanthi ^{[17
]}

Alday, Luis ^{[18
]}

Oechslin, Erwin ^{[19
]}

Eriksen, Katrine ^{[20
]}

Dellborg, Mikael ^{[21
]}

Berghammer, Malin ^{[3
,22
,23
]}

Johansson, Bengt ^{[24
]}

Mackie, Andrew S. ^{[25
]}

Menahem, Samuel ^{[26
]}

Caruana, Maryanne ^{[27
]}

Veldtman, Gruschen ^{[28
]}

Soufi, Alexandra ^{[29
]}

Fernandes, Susan M. ^{[30
,31
]}

White, Kamila ^{[32
,33
]}

Callus, Edward ^{[34
,35
]}

Kutty, Shelby ^{[36
,37
]}

Kovacs, Adrienne H. ^{[19
]}

机构：

[1] KU Leuven Univ Leuven, KU Leuven Dept Publ Hlth & Primary Care, Kapucijnenvoer 35,Box 7001, B-3000 Leuven, Belgium

[2] Univ Gothenburg, Inst Hlth & Care Sci, Gothenburg, Sweden

[3] Univ Gothenburg, Ctr Person Ctr Care GPCC, Gothenburg, Sweden

[4] Univ Cape Town, Dept Paediat & Child Hlth, Cape Town, South Africa

[5] KU Leuven Univ Leuven, Sch Psychol & Child & Adolescent Dev, Leuven, Belgium

[6] Univ Free State, UNIBS, Bloemfontein, South Africa

[7] Univ Bern, Inselspital, Bern Univ Hosp, Ctr Congenital Heart Dis, Bern, Switzerland

[8] Univ Hosp Leuven, Div Congenital & Struct Cardiol, Leuven, Belgium

[9] KU Leuven Univ Leuven, KU Leuven Dept Cardiovasc Sci, Leuven, Belgium

[10] Toyo Univ, Dept Educ, Tokyo, Japan

[11] Univ Amsterdam, Dept Cardiol, Amsterdam UMC, Amsterdam, Netherlands

[12] Jeroen Bosch Hosp, Dept Cardiol, sHertogenbosch, Netherlands

[13] Natl Taiwan Univ, Coll Med, Sch Nursing, Taipei, Taiwan

[14] Nationwide Childrens Hosp, Ctr Biobehav Hlth, Columbus, OH USA

[15] Univ Montreal, Adult Congenital Heart Ctr, Montreal Heart Inst, Montreal, PQ, Canada

[16] Indiana Univ Hlth, Adult Congenital Heart Dis Program, Indianapolis, IN USA

[17] Frontier Lifeline Hosp, Dr KM Cherian Heart Fdn, Pediat Cardiol, Chennai, Tamil Nadu, India

[18] Hosp Ninos, Div Cardiol, Cordoba, Argentina

[19] Univ Toronto, Univ Hlth Network, Toronto Adult Congenital Heart Dis Program, Toronto, ON, Canada

[20] Oslo Univ Hosp, Rikshosp, Adult Congenital Heart Dis Ctr, Oslo, Norway

[21] Univ Gothenburg, Sahlgrenska Acad, Inst Med, Gothenburg, Sweden

[22] Univ West, Dept Hlth Sci, Trollhattan, Sweden

[23] Sahlgrens Univ Hosp, Queen Silvia Childrens Hosp, Dept Paediat, Gothenburg, Sweden

[24] Umea Univ, Dept Publ Hlth & Clin Med, Umea, Sweden

[25] Univ Alberta, Stollery Childrens Hosp, Div Cardiol, Edmonton, AB, Canada

[26] Monash Univ, Monash Med Ctr, Monash Heart, Melbourne, Vic, Australia

[27] Mater Dei Hosp, Dept Cardiol, Birkirkara Bypass, Malta

[28] Cincinnati Childrens Hosp Med Ctr, Adult Congenital Heart Dis Ctr, Cincinnati, OH 45229 USA

[29] Medipole Lyon Villeurbanne, Dept Cardiac Rehabil, Lyon, France

[30] Lucile Packard Childrens Hosp, Adult Congenital Heart Program Stanford, Palo Alto, CA USA

[31] Stanford Hlth Care, Palo Alto, CA USA

[32] Washington Univ, Adult Congenital Heart Dis Ctr, St Louis, MO 63110 USA

[33] Univ Missouri, Barnes Jewish Heart & Vasc Ctr, St Louis, MO 63121 USA

[34] IRCCS Policlin San Donato, Clin Psychol Serv, Milan, Italy

[35] Univ Milan, Dept Biomed Sci Hlth, Milan, Italy

[36] Univ Nebraska Med Ctr, Childrens Hosp & Med Ctr, Adult Congenital Heart Dis Ctr, Omaha, NE USA

[37] Johns Hopkins Sch Med, Taussig Heart Ctr, Baltimore, MD USA

来源：

EUROPEAN JOURNAL OF CARDIOVASCULAR NURSING | 2023年 / 22卷 / 04期

关键词：

Aging; Functioning; Heart defects; congenital; Mental health; Patient-reported outcomes; Quality of life; QUALITY-OF-LIFE; AGE; PATTERNS; BURDEN; CARE;

D O I：

10.1093/eurjcn/zvac057

中图分类号：

R5 [内科学];

学科分类号：

1002 ; 100201 ;

摘要：

The congenital heart disease (CHD) population now comprises an increasing number of older persons in their 6th decade of life and beyond. We cross-sectionally evaluated patient-reported outcomes (PROs) in persons with CHD aged 60 years or older, and contrasted these with PROs of younger patients aged 40-59 years and 18-39 years. Adjusted for demographic and medical characteristics, patients >= 60 years had a lower Physical Component Summary, higher Mental Component Summary, and lower anxiety (Hospital Anxiety and Depression Scale-Anxiety) scores than patients in the two younger categories. For satisfaction with life, older persons had a higher score than patients aged 40-59 years. Registration: ClinicalTrials.gov NCT02150603.

引用

页码：339 / 344

页数：6

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