Virtual Dementia-Friendly Communities (Verily Connect) Stepped-Wedge Cluster-Randomised Controlled Trial: Improving Dementia Caregiver Wellbeing in Rural Australia

被引:5
作者
Blackberry, Irene [1 ,2 ]
Rasekaba, Tshepo [1 ]
Morgan, Debra [3 ]
Royals, Kayla [1 ]
Greenhill, Jennene [4 ]
Perkins, David [5 ,6 ]
O'Connell, Megan [7 ]
Hamiduzzaman, Mohammad [8 ]
Winbolt, Margaret [9 ]
Robinson, Ainsley [10 ]
Davis, Hilary [11 ]
Wilding, Clare [1 ]
机构
[1] La Trobe Univ, John Richards Ctr Rural Ageing Res, La Trobe Rural Hlth Sch, Wodonga, Vic 3689, Australia
[2] La Trobe Univ, Care Econ Res Inst, Wodonga, Vic 3689, Australia
[3] Univ Saskatchewan, Canadian Ctr Rural & Agr Hlth, Saskatoon, SK S7N 5E5, Canada
[4] Southern Cross Univ, Fac Hlth, Bilinga, Qld 4225, Australia
[5] Univ Newcastle, Sch Med & Publ Hlth, Newcastle, NSW 2300, Australia
[6] Univ Canberra, Hlth Serv Res Inst, Mental Hlth Policy Unit, Canberra, ACT 2617, Australia
[7] Univ Saskatchewan, Dept Psychol, Saskatoon, SK S7N 5A5, Canada
[8] Univ Sydney, Fac Med & Hlth, Sydney, NSW 2006, Australia
[9] La Trobe Univ, Australian Inst Primary Care & Ageing, Melbourne, Vic 3086, Australia
[10] Goulburn Valley Hlth, Shepparton, Vic 3630, Australia
[11] Swinburne Univ Technol, Social Innovat Res Inst, Melbourne, Vic 3122, Australia
关键词
caregiver; community; dementia; mobile application; rural; virtual; age friendly; INFORMAL CAREGIVERS; PEOPLE; CARERS; HEALTH; INTERVENTIONS; PERSPECTIVES; PREVALENCE; BURDEN;
D O I
10.3390/geriatrics8050085
中图分类号
R592 [老年病学]; C [社会科学总论];
学科分类号
03 ; 0303 ; 100203 ;
摘要
Caring for people living with dementia often leads to social isolation and decreased support for caregivers. This study investigated the effect of a Virtual Dementia-Friendly Rural Communities (Verily Connect) model on social support and demand for caregivers of people living with dementia. The co-designed intervention entailed an integrated website and mobile application, peer-support videoconference, and technology learning hubs. This mixed-methods, stepped-wedge, cluster-randomised controlled trial was conducted with 113 participants from 12 rural communities in Australia. Caregiver data were collected using MOS-SSS and ZBI between 2018 and 2020. The relationship between post-intervention social support with age, years of caring, years since diagnosis, and duration of intervention were explored through correlation analysis and thin plate regression. Google Analytics were analysed for levels of engagement, and cost analysis was performed for implementation. Results showed that caregivers' perception of social support (MOS-SSS) increased over 32 weeks (p = 0.003) and there was a marginal trend of less care demand (ZBI) among caregivers. Better social support was observed with increasing caregiver age until 55 years. Younger caregivers (aged <55 years) experienced the greatest post-intervention improvement. The greatest engagement occurred early in the trial, declining sharply thereafter. The Verily Connect model improved caregivers' social support and appeared to ease caregiver demand.
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页数:18
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