Creating a postmortem examination decision aid: Suggestions from bereaved parents of a stillborn

被引:1
作者
Riches, Naomi O. [1 ,5 ]
Workalemahu, Tsegaselassie [1 ]
Johnson, Erin P. [1 ]
Silver, Robert M. [1 ]
Lopez, Sarah [1 ]
Page, Jessica [1 ,2 ]
Sartori, Brittney [3 ]
Rothwell, Erin [1 ,4 ]
机构
[1] Univ Utah, Dept Obstet & Gynecol, Sch Med, 30N 1900, Suite 2B200, Salt Lake City, UT 84132 USA
[2] Intermt Healthcare, Dept Maternal Fetal Med, 5063 S Cottonwood St Ste 100, Murray, UT 84157 USA
[3] Univ Utah, Coll Nursing, 10 2000 E, Salt Lake City, UT 84112 USA
[4] Univ Utah, Interim Vice President Res, 201 Presidents Circle, Rm 210, Salt Lake City, UT 84112 USA
[5] Univ Utah, Dept Obstet & Gynecol, Sch Med, 30N 1900 E, Suite 2B200, Salt Lake City, UT 84132 USA
基金
美国国家卫生研究院;
关键词
Postmortem examinations of stillbirth; Decision aid; Fetal death; UNITED-STATES ANALYSIS; FETAL AUTOPSY RATES; STILLBIRTH; FRAMEWORK; DEATH; NEEDS; WORK;
D O I
10.1016/j.pec.2023.107746
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
Objectives: To understand the postmortem decision-making needs and preferences of parents of a stillborn.Methods: A qualitative content analysis was conducted. Patients who received stillbirth care at the University of Utah in the last 5 years, were 18 years of age or older, and English speakers, were invited to participate via an email and follow-up phone call. Participants were interviewed about their experiences, values, beliefs, decisionmaking experience regarding the postmortem examinations of their stillborn, and suggestions for how to assist their decision-making needs. Results: Nineteen participants who consented to one or more postmortem examination of their stillborn were interviewed. They expressed needing information, altruism, and/or a belief in science as reasons for consenting. The most common reason for declining was already knowing the stillbirth cause. Recommendations for a decision aid included a description of all stillbirth evaluation options, risks and benefits, and a timeline.Conclusion: Participants had a variety of reasons for consenting to or declining postmortem examinations of their stillborn. Recommendations for a decision aid include a full description of each examination, the risks and benefits, and a timeline.Practical implications: An example decision aid was created from recommendations, which presents balanced information to help support couple's decision-making.
引用
收藏
页数:7
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