The development and validation of the Discrimination and Stigma Scale Ultra Short for People Living with Dementia (DISCUS-Dementia)

被引：2

作者：

Bhatt, Jem ^{[1
]}

Brohan, Elaine ^{[2
]}

Blasco, Drew ^{[3
,4
,5
]}

Oliveira, Deborah ^{[6
,7
]}

Bakolis, Ioannis ^{[8
]}

Comas-Herrera, Adelina ^{[9
]}

D'Amico, Francesco ^{[9
]}

Farina, Nicolas ^{[10
]}

Knapp, Martin ^{[9
]}

Stevens, Madeleine ^{[9
]}

Thornicroft, Graham ^{[11
,12
]}

Wilson, Emma ^{[13
]}

Salcher-Konrad, Maximilian ^{[14
]}

Yang, Lawrence H. ^{[4
,15
]}

Evans-Lacko, Sara ^{[16
]}

机构：

[1] UCL, Res Dept Clin Educ & Hlth Psychol, UCL Unit Stigma Res, London, England

[2] Kings Coll London, Inst Psychiat Psychol & Neurosci, Ctr Global Mental Hlth, London, England

[3] Univ Michigan, Sch Publ Hlth, Dept Hlth Behav & Hlth Educ, Michigan, ND USA

[4] NYU, Sch Global Publ Hlth, Dept Social & Behav Sci, New York, NY USA

[5] Univ Nevada, Sch Publ Hlth, Dept Social & Behav Hlth, Las Vegas, NV USA

[6] Univ Andres Bello, Fac Nursing, Campus Vina Del Mar, Santiago, Chile

[7] Millennium Inst Care Res MICARE, Santiago, Chile

[8] Kings Coll London, Inst Psychiat Psychol & Neurosci, Dept Biostat & Hlth Informat, London, England

[9] London Sch Econ & Polit Sci, Care Policy & Evaluat Ctr, London, England

[10] Brighton & Sussex Med Sch, Ctr Dementia Studies, Hove, England

[11] Kings Coll London, Ctr Global Mental Hlth, London, England

[12] Kings Coll London, Inst Psychiat Psychol & Neurosci, Ctr Implementat Sci, Hlth Serv & Populat Res Dept, London, England

[13] Kings Coll London, ESRC Ctr Soc & Mental Hlth, London, England

[14] Gesundheit Osterreich GmbH GOG, Austrian Natl Publ Hlth Inst, WHO Collaborating Ctr Pharmaceut Pricing & Reimbur, Pharmacoecon Dept, Vienna, Austria

[15] Columbia Univ, Mailman Sch Publ Hlth, Dept Epidemiol, New York, NY USA

[16] Care Policy & Evaluat Ctr, London Sch Econ & Polit Sci, London, England

来源：

BJPSYCH OPEN | 2023年 / 9卷 / 05期

基金：

英国医学研究理事会; 英国科研创新办公室; 英国经济与社会研究理事会;

关键词：

Stigma and discrimination; epidemiology; low- and middle-income countries; rating scales; dementias/neurodegenerative diseases; QUALITY-OF-LIFE; WEMWBS;

D O I：

10.1192/bjo.2023.551

中图分类号：

R749 [精神病学];

学科分类号：

100205 ;

摘要：

BackgroundThe recent World Health Organization (WHO) blueprint for dementia research and Lancet Commission on ending stigma and discrimination in mental health has identified a gap around dementia-related measures of stigma and discrimination that can be used in different cultural, language and regional contexts.AimsWe aimed to characterise experiences of discrimination, and report initial psychometric properties of a new tool to capture these experiences, among a global sample of people living with dementia.MethodWe analysed data from 704 people living with dementia who took part in a global survey from 33 different countries and territories. Psychometric properties were examined, including internal consistency and construct validity.ResultsA total of 83% of participants reported discrimination in one or more areas of life, and this was similar across WHO Regions. The exploratory factor analysis factor loadings and scree plot supported a unidimensional structure for the Discrimination and Stigma Scale Ultra Short for People Living with Dementia (DISCUS-Dementia). The instrument demonstrated excellent internal consistency, with most of the construct validity hypotheses being confirmed and qualitative responses demonstrating face validity.ConclusionsOur analyses suggest that the DISCUS-Dementia performs well with a global sample of people living with dementia. This scale can be integrated into large-scale studies to understand factors associated with stigma and discrimination. It can also provide an opportunity for a structured discussion around stigma and discrimination experiences important to people living with dementia, as well as planning psychosocial services and initiatives to reduce stigma and discrimination.

引用

页数：8