The regulation of health data sharing in Africa: a comparative study

被引：3

作者：

McKay, Annelize G. Nienaber ^{[1
,2
]}

Brand, Dirk ^{[3
]}

Botes, Marietjie ^{[4
]}

Cengiz, Nezerith ^{[4
]}

Swart, Marno ^{[5
]}

机构：

[1] Abertay Univ, Div Law, Sch Business Law & Social Sci, Dundee, Scotland

[2] Univ Pretoria, Dept Publ Law, Pretoria, South Africa

[3] Stellenbosch Univ, Sch Publ Leadership, Stellenbosch, South Africa

[4] Stellenbosch Univ, Div Med Eth & Law, Fac Med & Hlth Sci, Stellenbosch, South Africa

[5] Univ Cambridge, Fac Law, Cambridge, England

来源：

JOURNAL OF LAW AND THE BIOSCIENCES | 2024年 / 11卷 / 01期

基金：

美国国家卫生研究院;

关键词：

health data; data sharing; Africa; policy; comparative study; data governance;

D O I：

10.1093/jlb/lsad035

中图分类号：

B82 [伦理学（道德学）];

学科分类号：

摘要：

The sharing of health data is an essential component in the provision of healthcare, in medical research, and disease surveillance. Health data sharing is subject to regulatory frameworks that vary across jurisdictions. In Africa, numerous factors complicate the regulation of health data sharing, including technological, motivational, economic, and political barriers, as well as ethical and legal challenges. This comparative study examines the regulation of health data sharing in Africa by comparing and contrasting the legal and policy frameworks of five African countries. The study identifies gaps and inconsistencies in the current regulatory regimes and provides recommendations for improving the regulation of health data sharing in Africa.

引用

页数：22

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