A Rocky Landscape: Challenges with College Transition and Completion for Adolescents and Young Adults with Cancer

被引:0
作者
Thornton, Clifton P. [1 ]
Carey, Lisa Beth [2 ]
Milla, Kimberly [3 ]
Pare-Blagoev, E. Juliana [4 ]
Ruble, Kathy [5 ]
Jacobson, Lisa A. [3 ,6 ]
机构
[1] Johns Hopkins Sch Nursing, Herman & Walter Samuelson Childrens Hosp Sinai, Dept Pediat Hematol Oncol, Baltimore, MD USA
[2] Johns Hopkins Univ, Sch Educ, Ctr Innovat & Leadership Special Educ, Kennedy Krieger Inst, Baltimore, MD USA
[3] Kennedy Krieger Inst, Dept Neuropsychol, Baltimore, MD USA
[4] Johns Hopkins Sch Educ, Baltimore, MD USA
[5] Johns Hopkins Sch Med, Dept Pediat Oncol, Pediat Oncol Survivorship Clin, Baltimore, MD USA
[6] Johns Hopkins Sch Med, Ctr Innovat & Leadership Special Educ Psychiat &, Dept Neuropsychol, Baltimore, MD USA
关键词
education; college; university; transition; cancer; pediatric oncology; adolescent and young adult; CHILDHOOD; SURVIVORS; EDUCATION;
D O I
10.1089/jayao.2022.0098
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
Purpose: Adolescents and young adults with cancer have lower college attendance and graduation rates than their peers, but the reasons for this and extent to which cancer impacts college is unknown. This study explores post-high school experiences of young adults with cancer, detailing impacts of diagnosis and treatment on higher education attainment.Materials and Methods: A convergent mixed-methods design disseminated nationally obtained data regarding post-high school transition experiences in adults diagnosed with cancer before age 25.Results: Participants (n = 47) indicated struggles with employment and education; 81% attended some college, but 44% have not completed their degree, citing logistic challenges and lasting effects of therapy as major barriers. Nearly 20% of participants reported that cancer made higher education too difficult, so they did not attend, and most of these individuals (66.6%) are unemployed. Qualitative findings detail that accessing appropriate accommodations was made difficult by a lack of understanding from college faculty and staff.Conclusion: For many, cancer presents a barrier to higher education attainment; changing course of studies, repeating classes, and switching majors may impact degree completion. A minority of students with cancer access educational supports or get assistance obtaining these resources from their medical or high school team. Changes to clinical practice to ensure supports for young adults transitioning from high school have the potential to create improved pathways to higher education success. Additionally, supporting college faculty and staff understanding of cancer and its late effects may be a low-cost, high-impact way to improve adolescent/young adult college success.
引用
收藏
页码:577 / 583
页数:7
相关论文
共 35 条
  • [1] Akos P., 2020, NACADA Journal, V40, P80, DOI [10.12930/NACADA-18-34, DOI 10.12930/NACADA-18-34]
  • [2] [Anonymous], KEY STAT CHILDH CANC
  • [3] From Chemo to College: The College Experience of Childhood Cancer Survivors
    Cantrell, MaryAnn
    Conte, Teresa M.
    [J]. JOURNAL OF PEDIATRIC ONCOLOGY NURSING, 2016, 33 (05) : 329 - 338
  • [4] Childhood Cancer Survivors and Distance Education Challenges: Lessons Learned From the COVID-19 Pandemic
    Carey, Lisa B.
    Ruble, Kathy
    Pare-Blagoev, Juliana
    Milla, Kimberly
    Thornton, Clifton P.
    Henegan, Sydney
    Jacobson, Lisa A.
    [J]. JOURNAL OF PEDIATRIC PSYCHOLOGY, 2022, 47 (01) : 15 - 24
  • [5] Dimensionality and reliability of a screening instrument for students at-risk of dropping out from Higher Education
    Casanova, Joana R.
    Assis Gomes, Cristiano Mauro
    Bernardo, Ana B.
    Carlos Nunez, Jose
    Almeida, Leandro S.
    [J]. STUDIES IN EDUCATIONAL EVALUATION, 2021, 68
  • [6] Creswell J. W., 2014, A Concise Introduction to Mixed Methods Research
  • [7] Educational and Vocational Achievement Among Long-Term Survivors of Adolescent Cancer in Germany
    Dieluweit, Ute
    Debatin, Klaus-Michael
    Grabow, Desiree
    Kaatsch, Peter
    Peter, Richard
    Seitz, Diana C. M.
    Goldbeck, Lutz
    [J]. PEDIATRIC BLOOD & CANCER, 2011, 56 (03) : 432 - 438
  • [8] Bias in education disability accommodations
    Druckman, James N.
    Levy, Jeremy
    Sands, Natalie
    [J]. ECONOMICS OF EDUCATION REVIEW, 2021, 85
  • [9] The global burden of childhood and adolescent cancer in 2017: an analysis of the Global Burden of Disease Study 2017
    Force, Lisa M.
    Abdollahpour, Ibrahim
    Advani, Shailesh M.
    Agius, Dominic
    Ahmadian, Elham
    Alahdab, Fares
    Alam, Tahiya
    Alebel, Animut
    Alipour, Vahid
    Allen, Christine A.
    Almasi-Hashiani, Amir
    Alvarez, Elysia M.
    Amini, Saeed
    Amoako, Yaw Ampem
    Anber, Nahla Hamed
    Arabloo, Jalal
    Artaman, Al
    Atique, Suleman
    Awasthi, Ashish
    Bagherzadeh, Mojtaba
    Basaleem, Huda
    Bekru, Eyasu Tamru
    Bijani, Ali
    Bogale, Kassawmar Angaw
    Car, Mate
    Carvalho, Felix
    Castro, Clara
    Catala-Lopez, Ferran
    Dinh-Toi Chu
    Costa, Vera M.
    Darwish, Amira Hamed
    Demeke, Feleke Mekonnen
    Demis, Asmamaw Bizuneh
    Demoz, Gebre Teklemariam
    Dharmaratne, Samath Dhamminda
    Huyen Phuc Do
    Linh Phuong Doan
    Dubey, Manisha
    Eftekhari, Aziz
    El-Khatib, Ziad
    Emamian, Mohammad Hassan
    Farhangi, Mahdieh Abbasalizad
    Fernandes, Eduarda
    Fischer, Florian
    Fard, Reza Fouladi
    Friedrich, Paola M.
    Fukumoto, Takeshi
    Gedefaw, Getnet Azeze
    Ghashghaee, Ahmad
    Gholamian, Asadollah
    [J]. LANCET ONCOLOGY, 2019, 20 (09) : 1211 - 1225
  • [10] Psychological, educational, and social late effects in adolescent survivors of Wilms tumor: A report from the Childhood Cancer Survivor Study
    Foster, Rebecca H.
    Hayashi, Robert J.
    Wang, Mingjuan
    Liu, Wei
    Mohrmann, Caroline
    Howell, Rebecca M.
    Smith, Susan A.
    Gibson, Todd M.
    Srivastava, DeoKumar
    Green, Daniel M.
    Oeffinger, Kevin C.
    Leisenring, Wendy M.
    Robison, Leslie L.
    Armstrong, Gregory T.
    Krull, Kevin R.
    Hardy, Kristina K.
    [J]. PSYCHO-ONCOLOGY, 2021, 30 (03) : 349 - 360