A qualitative interview study exploring the psychological health impacts of the SPIN-CHAT program among people with systemic sclerosis at the onset of COVID-19: perceptions of trial participants and research team members

被引：1

作者：

Wurz, Amanda ^{[1
,2
]}

Duchek, Delaney ^{[2
]}

Ellis, Kelsey ^{[2
]}

Bansal, Mannat ^{[2
]}

Carrier, Marie-Eve ^{[3
]}

Tao, Lydia ^{[3
]}

Dyas, Laura ^{[4
]}

Kwakkenbos, Linda ^{[5
,6
,7
,8
]}

Levis, Brooke ^{[3
,9
,10
]}

El-Baalbaki, Ghassan ^{[11
]}

Rice, Danielle B. ^{[3
,12
]}

Wu, Yin ^{[13
]}

Henry, Richard S. ^{[3
,12
]}

Bustamante, Laura ^{[14
]}

Harb, Sami ^{[3
,13
]}

Hebblethwaite, Shannon ^{[14
]}

Patten, Scott B. ^{[15
,16
,17
]}

Bartlett, Susan J. ^{[18
,19
]}

Varga, John ^{[20
]}

Mouthon, Luc ^{[21
,22
]}

Markham, Sarah ^{[23
]}

Thombs, Brett D. ^{[3
,9
,12
,18
,24
]}

Culos-Reed, S. Nicole ^{[2
,25
,26
]}

机构：

[1] Univ Fraser Valley, Sch Kinesiol, Chilliwack, BC, Canada

[2] Univ Calgary, Fac Kinesiol, Calgary, AB, Canada

[3] Jewish Gen Hosp, Lady Davis Inst Med Res, Montreal, PQ, Canada

[4] Natl Scleroderma Fdn, Michigan Chapter, Southfield, MI USA

[5] Radboud Univ Nijmegen, Clin Psychol, Nijmegen, Netherlands

[6] Radboud Univ Nijmegen, Radboud Inst Hlth Sci, Dept Med Psychol, Med Ctr, Nijmegen, Netherlands

[7] Radboud Univ Nijmegen, Radboud Inst Hlth Sci, IQ Healthcare, Med Ctr, Nijmegen, Netherlands

[8] Radboud Univ Nijmegen, Radboud Inst Hlth Sci, Radboudumc Ctr Mindfulness, Dept Psychiat,Med Ctr, Nijmegen, Netherlands

[9] McGill Univ, Dept Epidemiol Biostat & Occupat Hlth, Montreal, PQ, Canada

[10] Keele Univ, Ctr Prognosis Res, Sch Primary Community & Social Care, Keele, Staffs, England

[11] Univ Quebec Montreal, Dept Psychol, Montreal, PQ, Canada

[12] McGill Univ, Dept Psychol, Montreal, PQ, Canada

[13] McGill Univ, Dept Psychiat, Montreal, PQ, Canada

[14] Concordia Univ, Dept Appl Human Sci, Montreal, PQ, Canada

[15] Univ Calgary, Dept Community Hlth Sci, Calgary, AB, Canada

[16] Univ Calgary, Hotchkiss Brain Inst, Calgary, AB, Canada

[17] Univ Calgary, OBrien Inst Publ Hlth, Calgary, AB, Canada

[18] McGill Univ, Dept Med, Montreal, PQ, Canada

[19] McGill Univ, Hlth Ctr, Res Inst, Montreal, PQ, Canada

[20] Univ Michigan, Ann Arbor, MI USA

[21] Hop Cochin, Assistance Publ Hop Paris APHP, Ctr Reference Malad Autoimmunes & Syst Rares Ile, Serv Med Interne, Paris, France

[22] Univ Paris, Hop Cochin, APHP CUP, Paris, France

[23] Kings Coll London, Dept Biostat & Hlth Informat, London, England

[24] McGill Univ, Biomed Eth Unit, Montreal, PQ, Canada

[25] Univ Calgary, Cumming Sch Med, Dept Oncol, Calgary, AB, Canada

[26] Alberta Hlth Serv, Tom Baker Canc Ctr, Dept Psychosocial Resources, Canc Care, Calgary, AB, Canada

来源：

DISABILITY AND REHABILITATION | 2024年 / 46卷 / 03期

基金：

加拿大健康研究院;

关键词：

Qualitative; experiences; scleroderma; videoconference-based; remote; mental health; SOCIAL SUPPORT; SELF-MANAGEMENT; MENTAL-HEALTH; USUAL CARE; INTERVENTIONS; EDUCATION; SYMPTOMS;

D O I：

10.1080/09638288.2023.2169775

中图分类号：

R49 [康复医学];

学科分类号：

100215 ;

摘要：

PurposeExplore trial participants' and research team members' perceptions of the impact of the videoconference-based, supportive care program (SPIN-CHAT Program) during early COVID-19 for individuals with systemic sclerosis (SSc).MethodsData were collected cross-sectionally. A social constructivist paradigm was adopted, and one-on-one videoconference-based, semi-structured interviews were conducted with SPIN-CHAT Trial participants and research team members. A hybrid inductive-deductive approach and reflexive thematic analysis were used.ResultsOf the 40 SPIN-CHAT Trial participants and 28 research team members approached, 30 trial participants (Mean age = 54.9; SD = 13.0 years) and 22 research team members agreed to participate. Those who took part in interviews had similar characteristics to those who declined. Five themes were identified: (1) The SPIN-CHAT Program conferred a range of positive psychological health outcomes, (2) People who don't have SSc don't get it: The importance of SSc-specific programming, (3) The group-based format of the SPIN-CHAT Program created a safe space to connect and meet similar others, (4) The structure and schedule of the SPIN-CHAT Program reduced feelings of boredom and contributed to enhanced psychological health, (5) The necessity of knowledge, skills, and tools to self-manage SSc and navigate COVID-19.ConclusionParticipants' and research team members' perspectives elucidated SPIN-CHAT Program benefits and how these benefits may have been realized. Results underscore the importance of social support from similar others, structure, and self-management to enhance psychological health during COVID-19.

引用

页码：533 / 545

页数：13

共 57 条

[1] Epidemiology, causes, clinical manifestation and diagnosis, prevention and control of coronavirus disease (COVID-19) during the early outbreak period: a scoping review [J].

Adhikari, Sasmita Poudel ;

Meng, Sha ;

Wu, Yu-Ju ;

Mao, Yu-Ping ;

Ye, Rui-Xue ;

Wang, Qing-Zhi ;

Sun, Chang ;

Sylvia, Sean ;

Rozelle, Scott ;

Raat, Hein ;

Zhou, Huan .

INFECTIOUS DISEASES OF POVERTY, 2020, 9 (01)

[2] Policy stringency and mental health during the COVID-19 pandemic: a longitudinal analysis of data from 15 countries [J].

Aknin, Lara B. ;

Andretti, Bernardo ;

Goldszmidt, Rafael ;

Helliwell, John F. ;

Petherick, Anna ;

De Neve, Jan-Emmanuel ;

Dunn, Elizabeth W. ;

Fancourt, Daisy ;

Goldberg, Elkhonon ;

Jones, Sarah P. ;

Karadag, Ozge ;

Karam, Elie ;

Layard, Richard ;

Saxena, Shekhar ;

Thornton, Emily ;

Whillans, Ashley ;

Zaki, Jamil .

LANCET PUBLIC HEALTH, 2022, 7 (05) :E417-E426

[3]

Andrews T, 2012, GROUNDED THEORY REV, V11, P39

[4]

[Anonymous], 2020, World Heal. Organ

[5] Do Internet-based support interventions change perceptions of social support? An experimental trial of approaches for supporting diabetes self-management [J].

Barrera, M ;

Glasgow, RE ;

McKay, HG ;

Boles, SM ;

Feil, EG .

AMERICAN JOURNAL OF COMMUNITY PSYCHOLOGY, 2002, 30 (05) :637-654

[6] Effects of COVID-19 Mental Health Interventions Among Children, Adolescents, and Adults Not Quarantined or Undergoing Treatment Due to COVID-19 Infection: A Systematic Review of Randomised Controlled Trials [J].

Bonardi, Olivia ;

Wang, Yutong ;

Li, Kexin ;

Jiang, Xiaowen ;

Krishnan, Ankur ;

He, Chen ;

Sun, Ying ;

Wu, Yin ;

Boruff, Jill T. ;

Markham, Sarah ;

Rice, Danielle B. ;

Thombs-Vite, Ian ;

Tasleem, Amina ;

Santo, Tiffany Dal ;

Yao, Anneke ;

Azar, Marleine ;

Agic, Branka ;

Fahim, Christine ;

Martin, Michael S. ;

Sockalingam, Sanjeev ;

Turecki, Gustavo ;

Benedetti, Andrea ;

Thombs, Brett D. .

CANADIAN JOURNAL OF PSYCHIATRY-REVUE CANADIENNE DE PSYCHIATRIE, 2022, 67 (05) :336-350

[7] Identifying change processes in group-based health behaviour-change interventions: development of the mechanisms of action in group-based interventions (MAGI) framework [J].

Borek, Aleksandra J. ;

Abraham, Charles ;

Greaves, Colin J. ;

Gillison, Fiona ;

Tarrant, Mark ;

Morgan-Trimmer, Sarah ;

McCabe, Rose ;

Smith, Jane R. .

HEALTH PSYCHOLOGY REVIEW, 2019, 13 (03) :227-247

[8] Reflecting on reflexive thematic analysis [J].

Braun, Virginia ;

Clarke, Victoria .

QUALITATIVE RESEARCH IN SPORT EXERCISE AND HEALTH, 2019, 11 (04) :589-597

[9] The psychological impact of quarantine and how to reduce it: rapid review of the evidence [J].

Brooks, Samantha K. ;

Webster, Rebecca K. ;

Smith, Louise E. ;

Woodland, Lisa ;

Wessely, Simon ;

Greenberg, Neil ;

Rubin, Gideon James .

LANCET, 2020, 395 (10227) :912-920

[10] The Process of Self-Management: A Qualitative Case Study Reporting on Cancer Survivors' and Program Staff's Experiences Within One Self-Management Support Intervention [J].

Brunet, Jennifer ;

Wurz, Amanda ;

Srivastava, Deeksha .

HEALTH EDUCATION & BEHAVIOR, 2020, 47 (04) :592-601

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