Paediatric palliative care for the generalist

被引:0
作者
Ambler, Julia F. [1 ,2 ,3 ]
Bell, Christoffel H. [4 ,5 ]
机构
[1] Umduduzi Hosp Care Children, Durban, South Africa
[2] Univ KwaZulu Natal, Fac Hlth Sci, Dept Paediat, Durban, South Africa
[3] Univ KwaZulu Natal, Fac Hlth Sci, Dept Family Med, Durban, South Africa
[4] Butterfly Palliat Home, Ingwavuma, South Africa
[5] Univ KwaZulu Natal, Dept Hlth, Fac Family Med, Mosvold Hosp, Ingwavuma, South Africa
关键词
paediatric; paediatric palliative care; holistic care; health-related suffering; physical; psychological; social; spiritual; disability; life-limiting illness;
D O I
10.4102/safp.v65i1.5722
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
Palliative care has been defined as 'the active holistic care of individuals across all ages with serious health-related suffering due to severe illness, and especially of those near the end of life'. Unfortunately, palliative care and especially paediatric palliative care remain a neglected area of medicine and are widely misunderstood, with few healthcare providers having any formal training in South Africa. To relieve health-related suffering, healthcare providers must understand that the field is not limited to end-of-life care for the terminally ill, and holistic care (physical, emotional, social and spiritual) should commence at the time of diagnosis of a serious illness. It is imperative that all healthcare providers develop the knowledge and skills to provide this essential care across all levels of care and disciplines. The article aims to raise awareness and show how to practically implement palliative care through case studies.
引用
收藏
页数:5
相关论文
共 50 条
[41]   Clinical Supervision for Support Workers in Paediatric Palliative Care: A Literature Review [J].
Beavis, Jonathan ;
Davis, Lucy ;
McKenzie, Sian .
CLINICAL CHILD PSYCHOLOGY AND PSYCHIATRY, 2021, 26 (01) :191-206
[42]   Underlying barriers to referral to paediatric palliative care services: Knowledge and attitudes of health care professionals in a paediatric tertiary care centre in the United Kingdom [J].
Twamley, Katherine ;
Craig, Finella ;
Kelly, Paula ;
Hollowell, Delia R. ;
Mendoza, Patricia ;
Bluebond-Langner, Myra .
JOURNAL OF CHILD HEALTH CARE, 2014, 18 (01) :19-30
[43]   Paediatric palliative care in Malaysia: Survey of knowledge base and barriers to referral [J].
Chong, Leeai ;
Khalid, Farah .
PROGRESS IN PALLIATIVE CARE, 2014, 22 (04) :195-200
[44]   Paediatric Palliative Care Service Provided by Paediatric Oncology Departments in North Rhine-Westphalia, Germany [J].
von Luetzau, P. ;
Zernikow, B. .
ZEITSCHRIFT FUR PALLIATIVMEDIZIN, 2013, 14 (03) :114-120
[45]   Challenges of paediatric palliative care in the intensive care unit during the COVID-19 pandemic [J].
Hasanpour, Marzieh ;
Pouraboli, Batool ;
Mohammadpour, Masoud ;
Tahmasebi, Mamak ;
Sabeti, Fahimeh .
INTERNATIONAL JOURNAL OF PALLIATIVE NURSING, 2021, 27 (06) :303-315
[46]   Retrospective study of children referred from paediatric intensive care to palliative care: Why and for what [J].
Garcia-Salido, Alberto ;
Santos-Herranz, Paula ;
Puertas-Martin, Veronica ;
Angeles Garcia-Teresa, Maria ;
Martino-Alba, Ricardo ;
Serrano-Gonzalez, Ana .
ANALES DE PEDIATRIA, 2018, 88 (01) :3-11
[47]   Stories of paediatric palliative care: a qualitative study exploring health care professionals’ understanding of the concept [J].
Kirsti Riiser ;
Heidi Holmen ;
Anette Winger ;
Simen A. Steindal ;
Charlotte Castor ;
Lisbeth Gravdal Kvarme ;
Anja Lee ;
Vibeke Bruun Lorentsen ;
Nina Misvaer ;
Elena Albertini Früh .
BMC Palliative Care, 21
[48]   Stories of paediatric palliative care: a qualitative study exploring health care professionals' understanding of the concept [J].
Riiser, Kirsti ;
Holmen, Heidi ;
Winger, Anette ;
Steindal, Simen A. ;
Castor, Charlotte ;
Kvarme, Lisbeth Gravdal ;
Lee, Anja ;
Lorentsen, Vibeke Bruun ;
Misvaer, Nina ;
Fruh, Elena Albertini .
BMC PALLIATIVE CARE, 2022, 21 (01)
[49]   Using play therarpy in paediatric palliative care: listening to the story and caring for the body [J].
van Breemen, Camara .
INTERNATIONAL JOURNAL OF PALLIATIVE NURSING, 2009, 15 (10) :510-514
[50]   Home telehealth and paediatric palliative care: clinician perceptions of what is stopping us? [J].
Natalie K Bradford ;
Jeanine Young ;
Nigel R Armfield ;
Anthony Herbert ;
Anthony C Smith .
BMC Palliative Care, 13