Paediatric palliative care for the generalist

被引:0
作者
Ambler, Julia F. [1 ,2 ,3 ]
Bell, Christoffel H. [4 ,5 ]
机构
[1] Umduduzi Hosp Care Children, Durban, South Africa
[2] Univ KwaZulu Natal, Fac Hlth Sci, Dept Paediat, Durban, South Africa
[3] Univ KwaZulu Natal, Fac Hlth Sci, Dept Family Med, Durban, South Africa
[4] Butterfly Palliat Home, Ingwavuma, South Africa
[5] Univ KwaZulu Natal, Dept Hlth, Fac Family Med, Mosvold Hosp, Ingwavuma, South Africa
关键词
paediatric; paediatric palliative care; holistic care; health-related suffering; physical; psychological; social; spiritual; disability; life-limiting illness;
D O I
10.4102/safp.v65i1.5722
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
Palliative care has been defined as 'the active holistic care of individuals across all ages with serious health-related suffering due to severe illness, and especially of those near the end of life'. Unfortunately, palliative care and especially paediatric palliative care remain a neglected area of medicine and are widely misunderstood, with few healthcare providers having any formal training in South Africa. To relieve health-related suffering, healthcare providers must understand that the field is not limited to end-of-life care for the terminally ill, and holistic care (physical, emotional, social and spiritual) should commence at the time of diagnosis of a serious illness. It is imperative that all healthcare providers develop the knowledge and skills to provide this essential care across all levels of care and disciplines. The article aims to raise awareness and show how to practically implement palliative care through case studies.
引用
收藏
页数:5
相关论文
共 50 条
[31]   Paediatric palliative care at home: a single centre's experience [J].
Chong, Lee Ai ;
Khalid, Farah .
SINGAPORE MEDICAL JOURNAL, 2016, 57 (02) :77-80
[32]   Continuing bonds: a human response within paediatric palliative care [J].
Foster, Terrah L. ;
Gilmer, Mary Jo .
INTERNATIONAL JOURNAL OF PALLIATIVE NURSING, 2008, 14 (02) :85-91
[33]   Paediatric nurses' knowledge of palliative care in Florida: A quantitative study [J].
Knapp, Caprice A. ;
Madden, Vanessa ;
Wang, Hua ;
Kassing, Kristin ;
Curtis, Charlotte ;
Sloyer, Phyllis ;
Shenkman, Elizabeth A. .
INTERNATIONAL JOURNAL OF PALLIATIVE NURSING, 2009, 15 (09) :432-439
[34]   A review of paediatric palliative care nursing education in Latin America [J].
Bishop, Kendra ;
Mele, Nancy ;
Errazuriz Koppmann, Maria Jose ;
Day, Sara .
INTERNATIONAL JOURNAL OF PALLIATIVE NURSING, 2009, 15 (08) :377-382
[35]   Implementing a nurse-led paediatric palliative care service [J].
Sadler, Kim ;
Nancarrow, Lori ;
Alyami, Hamad Husain ;
Abudari, Gassan .
INTERNATIONAL JOURNAL OF PALLIATIVE NURSING, 2022, 28 (02) :60-70
[36]   Evaluation of paediatric palliative care ambulance plans: A retrospective study [J].
Wan, Julianna ;
Vaughan, Angela ;
Shepherd, Elizabeth ;
Coombs, Sandra ;
Trethewie, Susan ;
Jaaniste, Tiina .
JOURNAL OF CHILD HEALTH CARE, 2024,
[37]   Paediatric palliative care: What the Oasis experimentation taught me [J].
Suc, Agnes .
MEDECINE PALLIATIVE, 2014, 13 (01) :48-52
[38]   Investigation of care burden and musculoskeletal pain of parents of paediatric palliative care patients in Turkey [J].
Harputluoglu, Nilgun ;
Cubukcu, Duygu ;
Yilmaz, Unsal ;
Celik, Tanju .
EASTERN MEDITERRANEAN HEALTH JOURNAL, 2022, 28 (08) :569-576
[39]   Perceived barriers to paediatric palliative care in a Palestinian children's hospital [J].
Ghareeb, George ;
Kelly, Daniel .
INTERNATIONAL JOURNAL OF PALLIATIVE NURSING, 2025, 31 (01) :40-50
[40]   A psychological experience assessment protocol of parent caregivers in paediatric palliative care [J].
Nogueira, Alexandra Joni ;
Ribeiro, Maria Teresa .
ANNALS OF MEDICINE, 2023, 55 (02)