Understanding aims, successes and challenges of palliative care and homelessness initiatives across the UK: an exploratory study

被引:0
|
作者
Crooks, Jodie [1 ]
Flemming, Kate [2 ]
Shulman, Caroline [3 ,4 ]
Hudson, Briony [1 ,4 ]
机构
[1] Marie Curie, Res & Policy, London, England
[2] Univ York, York, England
[3] Pathway, London, England
[4] UCL, Marie Curie Palliat Care Res Dept, London, England
来源
BMJ OPEN | 2024年 / 14卷 / 01期
关键词
PALLIATIVE CARE; Adult palliative care; QUALITATIVE RESEARCH; PEOPLE;
D O I
10.1136/bmjopen-2023-075498
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
Background Due to the recognition that people experiencing homelessness (PEH) often die young and unsupported, a growing number of initiatives focusing on palliative care and homelessness are emerging across the UK. However, there has been no systematic exploration of the nature and landscape of this work.Aims To understand the range, aims, successes and challenges of current initiatives within the field of palliative care and homelessness in the UK, by exploring existing projects and initiatives.Method An online survey was distributed to members of an Extension for Community Healthcare Outcomes network focusing on palliative care and homelessness for a mixed professional audience. The survey collated the aims, successes and challenges of initiatives aiming to improve palliative care for PEH. Responses were summarised using descriptive statistics, and free-text responses were analysed using thematic analysis.Results 162 professionals completed the survey. Of these, 62% reported involvement in at least one palliative care and homelessness initiative. Initiatives focused on service delivery (59%), training (28%) and research (28%). Themes for success included improved service engagement, relationship formation, housing provision, honouring end-of-life wishes, upskilling staff and enabling safe hospital discharge. The main challenges included stigma around substance misuse, securing funding, staff capacity, equipment and facilities, and engaging communities.Conclusion The number and scope of initiatives aiming to support PEH with advanced ill health and palliative care needs across the UK is growing, with a range of professionals engaging in the field. Future research may benefit from exploring initiatives in more detail to understand the specific drivers of impact on PEH and the staff and services supporting them.
引用
收藏
页数:9
相关论文
共 50 条
  • [1] UK telehealth initiatives in palliative care: a review
    Johnston, Bridget
    INTERNATIONAL JOURNAL OF PALLIATIVE NURSING, 2011, 17 (06) : 301 - 308
  • [2] Challenges in Palliative Care Provision in Ethiopia: An Exploratory Qualitative Study
    Negasa, Endalew Hailu
    Human, Sarie Petronella
    Roro, Ameyu Godesso
    JOURNAL OF PAIN RESEARCH, 2023, 16 : 3405 - 3415
  • [3] Vietnam's Palliative Care Initiative: Successes and Challenges in the First Five Years
    Krakauer, Eric L.
    Cham, Nguyen Thi Phuong
    Khue, Luong Ngoc
    JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 2010, 40 (01) : 27 - 30
  • [4] Palliative care quality measures: an exploratory study
    Buja, Alessandra
    Rivera, Michele
    Baldo, Vincenzo
    Soattin, Marta
    Rizzolo, Ylenia
    Zamengo, Giuseppe
    Boscolo, Sarah
    Ghiotto, Maria Cristina
    Damiani, Gianfranco
    BMJ SUPPORTIVE & PALLIATIVE CARE, 2024, 14 (E1) : e345 - e349
  • [5] Understanding pediatric palliative care within interdisciplinary palliative programs: a qualitative study
    Rico-Mena, Patricia
    Gueita-Rodriguez, Javier
    Martino-Alba, Ricardo
    Chocarro-Gonzalez, Lourdes
    Sanz-Esteban, Ismael
    Palacios-Cena, Domingo
    BMC PALLIATIVE CARE, 2023, 22 (01)
  • [6] Understanding pediatric palliative care within interdisciplinary palliative programs: a qualitative study
    Patricia Rico-Mena
    Javier Güeita-Rodríguez
    Ricardo Martino-Alba
    Lourdes Chocarro-Gonzalez
    Ismael Sanz-Esteban
    Domingo Palacios-Ceña
    BMC Palliative Care, 22
  • [7] Challenges of paediatric palliative care in Romania: a focus groups study
    Pacurari, Nadia
    De Clercq, Eva
    Dragomir, Monica
    Colita, Anca
    Wangmo, Tenzin
    Elger, Bernice S.
    BMC PALLIATIVE CARE, 2021, 20 (01)
  • [8] Challenges of paediatric palliative care in Romania: a focus groups study
    Nadia Pacurari
    Eva De Clercq
    Monica Dragomir
    Anca Colita
    Tenzin Wangmo
    Bernice S. Elger
    BMC Palliative Care, 20
  • [9] Understanding Experiences of Telehealth in Palliative Care: Photo Interview Study
    Kalla, Mahima
    O'Brien, Teresa
    Metcalf, Olivia
    Hoda, Rashina
    Chen, Xiao
    Li, Andy
    Parker, Catriona
    Franco, Michael Edward
    Georgy, Sam
    Huckvale, Kit
    Bain, Christopher
    Poon, Peter
    JMIR HUMAN FACTORS, 2025, 12
  • [10] Challenges for palliative care day services: a focus group study
    Felicity Hasson
    Joanne Jordan
    Laurie McKibben
    Lisa Graham-Wisener
    Anne Finucane
    Kathy Armour
    Shazia Zafar
    Alistair Hewison
    Kevin Brazil
    W. George Kernohan
    BMC Palliative Care, 20