Adults with Cerebral Palsy: Navigating the Complexities of Aging
被引:4
|
作者:
Kumar, Devina S.
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机构:
Burke Neurol Inst, White Plains, NY 10605 USABurke Neurol Inst, White Plains, NY 10605 USA
Kumar, Devina S.
[1
]
Perez, Gabriel
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机构:
Burke Neurol Inst, White Plains, NY 10605 USABurke Neurol Inst, White Plains, NY 10605 USA
Perez, Gabriel
[1
]
Friel, Kathleen M.
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机构:
Burke Neurol Inst, White Plains, NY 10605 USA
Weill Cornell Med, Feil Family Brain & Mind Res Inst, New York, NY 10065 USABurke Neurol Inst, White Plains, NY 10605 USA
Friel, Kathleen M.
[1
,2
]
机构:
[1] Burke Neurol Inst, White Plains, NY 10605 USA
[2] Weill Cornell Med, Feil Family Brain & Mind Res Inst, New York, NY 10065 USA
neurorehabilitation;
barriers;
quality of life;
transitional care;
GROSS MOTOR FUNCTION;
QUALITY-OF-LIFE;
YOUNG-ADULTS;
RISK-FACTORS;
FOLLOW-UP;
BOTULINUM NEUROTOXIN;
BIRTH-WEIGHT;
HEALTH;
ADOLESCENTS;
CHILDREN;
D O I:
10.3390/brainsci13091296
中图分类号:
Q189 [神经科学];
学科分类号:
071006 ;
摘要:
The goal of this narrative review is to highlight the healthcare challenges faced by adults with cerebral palsy, including the management of long-term motor deficits, difficulty finding clinicians with expertise in these long-term impairments, and scarcity of rehabilitation options. Additionally, this narrative review seeks to examine potential methods for maintaining functional independence, promoting social integration, and community participation. Although the brain lesion that causes the movement disorder is non-progressive, the neurodevelopmental disorder worsens from secondary complications of existing sensory, motor, and cognitive impairments. Therefore, maintaining the continuum of care across one's lifespan is of utmost importance. Advancements in healthcare services over the past decade have resulted in lower mortality rates and increased the average life expectancy of people with cerebral palsy. However, once they transition from adolescence to adulthood, limited federal and community resources, and health care professionals' lack of expertise present significant obstacles to achieving quality healthcare and long-term benefits. This paper highlights the common impairments seen in adults with cerebral palsy. Additionally, it underscores the critical role of long-term healthcare and management to prevent functional decline and enhance quality of life across physical, cognitive, and social domains.
机构:
Northwestern Univ, Dept Phys Med & Rehabil, Feinberg Sch Med, Chicago, IL 60611 USA
Shirley Ryan Abilitylab, Chicago, IL USANorthwestern Univ, Dept Phys Med & Rehabil, Feinberg Sch Med, Chicago, IL 60611 USA
Flanigan, Megan
Gaebler-Spira, Deborah
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机构:
Northwestern Univ, Dept Phys Med & Rehabil, Feinberg Sch Med, Chicago, IL 60611 USA
Shirley Ryan Abilitylab, Chicago, IL USA
Northwestern Univ, Dept Pediat, Feinberg Sch Med, Chicago, IL 60611 USA
Shirley Ryan AbilityLab, Dept Pediat Rehabil, Chicago, IL USANorthwestern Univ, Dept Phys Med & Rehabil, Feinberg Sch Med, Chicago, IL 60611 USA
Gaebler-Spira, Deborah
Kocherginsky, Masha
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h-index: 0
机构:
Northwestern Univ, Dept Phys Med & Rehabil, Feinberg Sch Med, Chicago, IL 60611 USA
Northwestern Univ, Dept Pediat, Feinberg Sch Med, Chicago, IL 60611 USANorthwestern Univ, Dept Phys Med & Rehabil, Feinberg Sch Med, Chicago, IL 60611 USA
Kocherginsky, Masha
Garrett, Ariane
论文数: 0引用数: 0
h-index: 0
机构:
Shirley Ryan Abilitylab, Chicago, IL USANorthwestern Univ, Dept Phys Med & Rehabil, Feinberg Sch Med, Chicago, IL 60611 USA
Garrett, Ariane
Marciniak, Christina
论文数: 0引用数: 0
h-index: 0
机构:
Northwestern Univ, Dept Phys Med & Rehabil, Feinberg Sch Med, Chicago, IL 60611 USA
Shirley Ryan Abilitylab, Chicago, IL USANorthwestern Univ, Dept Phys Med & Rehabil, Feinberg Sch Med, Chicago, IL 60611 USA
机构:
Erasmus MC, Dept Rehabil Med & Physiotherapy, Rotterdam, NetherlandsErasmus MC, Dept Rehabil Med & Physiotherapy, Rotterdam, Netherlands
Roebroeck, Marij
Bender, Jim
论文数: 0引用数: 0
h-index: 0
机构:
Sophia Rehabil Ctr, The Hague, NetherlandsErasmus MC, Dept Rehabil Med & Physiotherapy, Rotterdam, Netherlands
Bender, Jim
Stam, Henk
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h-index: 0
机构:
Erasmus MC, Dept Rehabil Med & Physiotherapy, Rotterdam, NetherlandsErasmus MC, Dept Rehabil Med & Physiotherapy, Rotterdam, Netherlands
Stam, Henk
Cohen-Kettenis, Peggy
论文数: 0引用数: 0
h-index: 0
机构:
Vrije Univ Amsterdam Med Ctr, Dept Med Psychol & Med Social Work, Amsterdam, NetherlandsErasmus MC, Dept Rehabil Med & Physiotherapy, Rotterdam, Netherlands