Elizabeth Usher memorial lecture: Beyond our practice borders-using a biopsychosocial framework to improve long-term outcomes for people living with aphasia

被引:1
作者
Rose, Miranda L. L. [1 ,2 ]
机构
[1] La Trobe Univ, Ctr Res Excellence Aphasia Recovery & Rehabil, Bundoora, Vic, Australia
[2] La Trobe Univ, Sch Allied Hlth Human Serv & Sport, Kingsbury Dr, Bundoora, Vic 3086, Australia
基金
澳大利亚研究理事会; 英国医学研究理事会;
关键词
aphasia; rehabilitation; outcomes; stroke; innovation; person-centred; QUALITY-OF-LIFE; INTENSIVE COMPREHENSIVE APHASIA; COMMUNITY APHASIA; LANGUAGE THERAPY; OLDER-PEOPLE; STROKE; CARE; COMMUNICATION; SPEECH; IMPACT;
D O I
10.1080/17549507.2023.2220995
中图分类号
R36 [病理学]; R76 [耳鼻咽喉科学];
学科分类号
100104 ; 100213 ;
摘要
Purpose: Over 140 000 Australians live with aphasia after stroke, with this number of people living with aphasia increasing significantly when aphasia arising from traumatic brain injury, neoplasm, and infectious and progressive neurological diseases is also included. The resulting communication disability frequently compromises every aspect of daily life, significantly impacting everyday activity, employment, social participation, mental health, identity, and family functioning. Rehabilitation services rarely meet the needs of this group who have, for example, poorer healthcare outcomes than stroke peers without aphasia, nor address long-term recovery and support needs.Method: In this discussion paper, I argue that given the broad impacts of aphasia, a biopsychosocial approach to aphasia rehabilitation is required. Rehabilitation must include: interventions to improve the communication environment; programs that directly target identity, wellbeing, and mental health; and therapies focusing on functional activity, communication participation, and long-term self-management.Result: The evidence for these approaches is mounting and includes strongly stated consumer needs. I discuss the need for multidisciplinary involvement and argue that for speech-language pathologists to achieve such comprehensive service provision, an expanded scope of practice is required.Conclusion: There is a need to rethink standard therapy approaches, timeframes, and funding mechanisms. It is time to reflect on our practice borders to ask what must change and define how change can be achieved.
引用
收藏
页码:346 / 354
页数:9
相关论文
共 71 条
[21]   Intensive Versus Distributed Aphasia Therapy A Nonrandomized, Parallel-Group, Dosage-Controlled Study [J].
Dignam, Jade ;
Copland, David ;
McKinnon, Eril ;
Burfein, Penni ;
O'Brien, Kate ;
Farrell, Anna ;
Rodriguez, Amy D. .
STROKE, 2015, 46 (08) :2206-2211
[22]   Long-term prognosis of aphasia after stroke [J].
El Hachioui, Hanane ;
Lingsma, Hester F. ;
van de Sandt-Koenderman, Mieke W. M. E. ;
Dippel, Diederik W. J. ;
Koudstaal, Peter J. ;
Visch-Brink, Evy G. .
JOURNAL OF NEUROLOGY NEUROSURGERY AND PSYCHIATRY, 2013, 84 (03) :310-315
[23]   The lived experience of cardiac disease [J].
Margolis, Stephen A. .
AUSTRALIAN JOURNAL OF GENERAL PRACTICE, 2022, 51 (09) :645-645
[24]   Epidemiology of aphasia attributable to first ischemic stroke - Incidence, severity, fluency, etiology, and thrombolysis [J].
Engelter, ST ;
Gostynski, M ;
Papa, S ;
Frei, M ;
Born, C ;
Ajdacic-Gross, V ;
Gutzwiller, F ;
Lyrer, PA .
STROKE, 2006, 37 (06) :1379-1384
[25]   Efficacy of spoken word comprehension therapy in patients with chronic aphasia: a cross-over randomised controlled trial with structural imaging [J].
Fleming, Victoria ;
Brownsett, Sonia ;
Krason, Anna ;
Maegli, Maria A. ;
Coley-Fisher, Henry ;
Ong, Yean-Hoon ;
Nardo, Davide ;
Leach, Rupert ;
Howard, David ;
Robson, Holly ;
Warburton, Elizabeth ;
Ashburner, John ;
Price, Cathy J. ;
Crinion, Jenny T. ;
Leff, Alexander P. .
JOURNAL OF NEUROLOGY NEUROSURGERY AND PSYCHIATRY, 2021, 92 (04) :418-424
[26]   "Communication is taking a back seat": speech pathologists' perceptions of aphasia management in acute hospital settings [J].
Foster, Abby ;
O'Halloran, Robyn ;
Rose, Miranda ;
Worrall, Linda .
APHASIOLOGY, 2016, 30 (05) :585-608
[27]   'I do the best I can': an in-depth exploration of the aphasia management pathway in the acute hospital setting [J].
Foster, Abby M. ;
Worrall, Linda E. ;
Rose, Miranda L. ;
O'Halloran, Robyn .
DISABILITY AND REHABILITATION, 2016, 38 (18) :1765-1779
[28]   A qualitative investigation into third-party functioning and third-party disability in aphasia: Positive and negative experiences of family members of people with aphasia [J].
Grawburg, Meghann ;
Howe, Tami ;
Worrall, Linda ;
Scarinci, Nerina .
APHASIOLOGY, 2013, 27 (07) :828-848
[29]   The impact of a university-based Intensive Comprehensive Aphasia Program (ICAP) on psychosocial well-being in stroke survivors with aphasia [J].
Griffin-Musick, Jenna R. ;
Off, Catherine A. ;
Milman, Lisa ;
Kincheloe, Harley ;
Kozlowski, Alyssa .
APHASIOLOGY, 2021, 35 (10) :1363-1389
[30]   Dose and setting of rehabilitation received after stroke in Queensland, Australia: a prospective cohort study [J].
Grimley, Rohan S. ;
Rosbergen, Ingrid C. M. ;
Gustafsson, Louise ;
Horton, Eleanor ;
Green, Theresa ;
Cadigan, Greg ;
Kuys, Suzanne ;
Andrew, Nadine E. ;
Cadilhac, Dominique A. .
CLINICAL REHABILITATION, 2020, 34 (06) :812-823