End-of-life wishes and care planning for patients with advanced skin cancer

被引:7
作者
Volberg, Christian [1 ,2 ]
Schrade, Severin [1 ,4 ]
Heers, Hendrik [3 ]
Carrasco, Anna J. Pedrosa [2 ]
Morin, Astrid [1 ]
Gschnell, Martin [4 ,5 ]
机构
[1] Philipps Univ Marburg, Univ Hosp Marburg, Dept Anesthesia & Intens Care Med, D-35033 Marburg, Germany
[2] Philipps Univ Marburg, Res Grp Med Eth, Marburg, Germany
[3] Philipps Univ Marburg, Univ Hosp Marburg, Dept Urol, Marburg, Germany
[4] Philipps Univ Marburg, Univ Hosp Marburg, Skin Tumor Ctr, Dept Dermatol & Allergol, Marburg, Germany
[5] Philipps Univ Marburg, Dept Dermatol & Allergol, Baldingerstr, D-35043 Marburg, Germany
来源
JOURNAL DER DEUTSCHEN DERMATOLOGISCHEN GESELLSCHAFT | 2023年 / 21卷 / 10期
关键词
advance healthcare directive; care research; dermato-oncology; end of life; melanoma; Palliative care; place of death; DEATH; COMMUNICATION; PLACE;
D O I
10.1111/ddg.15160
中图分类号
R75 [皮肤病学与性病学];
学科分类号
100206 ;
摘要
BackgroundPatients with advanced or metastatic skin cancer have a limited life expectancy and the majority die as a result of the tumor despite modern treatment options. The preferences of these patients concerning care during their last phase of life are currently unknown.Patients and methods150 patients with advanced skin cancer (AJCC/UICC stage III or IV) were interviewed using a structured questionnaire.Results75% of the respondents wished to die in their domestic environment, although a more advanced tumor stage and increased reflection upon end-of-life care lead away from this wish. However, only 42% reported having communicated this wish to someone else. 55% of the respondents had completed advance directives, while younger patients did this significantly less often (95% CI: 0.11-0.56; p = 0.001). The majority of patients (62%) would like to have discussions about possibilities for end-of-life care with the attending dermato-oncologist.ConclusionsAlthough the moment of death is unpredictable, early initiation of end-of-life advance care planning appears prudent. The attending dermato-oncologists should take the initiative to raise the subject with their patients during routine control visits. In this context, it may be useful to present available care options to patients and relatives and to design strategies for the event of deteriorating health.
引用
收藏
页码:1148 / 1156
页数:9
相关论文
共 24 条
[1]  
[Anonymous], DRUCKSA 19 20847 DTS
[2]  
[Anonymous], 2017, BEV
[3]  
bgbl, GES VERB HOSP PALL D
[4]   Communication in palliative care: talking about the end of life, before the end of life [J].
Brighton, Lisa Jane ;
Bristowe, Katherine .
POSTGRADUATE MEDICAL JOURNAL, 2016, 92 (1090) :466-470
[5]   The effects of advance care planning on end-of-life care: A systematic review [J].
Brinkman-Stoppelenburg, Arianne ;
Rietjens, Judith A. C. ;
van der Heide, Agnes .
PALLIATIVE MEDICINE, 2014, 28 (08) :1000-1025
[6]   How Safe Do Dying People Feel at Home? Patients' Perception of Safety While Receiving Specialist Community Palliative Care [J].
Carrasco, Anna J. Pedrosa ;
Bezmenov, Alexandra ;
Sibelius, Ulf ;
Berthold, Daniel .
AMERICAN JOURNAL OF HOSPICE & PALLIATIVE MEDICINE, 2023, 40 (08) :829-836
[7]  
Deutscher Hospiz- und Palliativverband e.V, 2012, STERB DEUTSCHL WISS
[8]   Preferred Place of Death in Adult Cancer Patients: A Systematic Review and Meta-Analysis [J].
Fereidouni, Armin ;
Rassouli, Maryam ;
Salesi, Mahmood ;
Ashrafizadeh, Hadis ;
Vahedian-Azimi, Amir ;
Barasteh, Salman .
FRONTIERS IN PSYCHOLOGY, 2021, 12
[9]   Early palliative care for adults with advanced cancer [J].
Haun, Markus W. ;
Estel, Stephanie ;
Ruecker, Gerta ;
Friederich, Hans-Christoph ;
Villalobos, Matthias ;
Thomas, Michael ;
Hartmann, Mechthild .
COCHRANE DATABASE OF SYSTEMATIC REVIEWS, 2017, (06)
[10]   The prevalence of medical error related to end-of-life communication in Canadian hospitals: results of a multicentre observational study [J].
Heyland, Daren K. ;
Ilan, Roy ;
Jiang, Xuran ;
You, John J. ;
Dodek, Peter .
BMJ QUALITY & SAFETY, 2016, 25 (09) :671-679