Palliative care for NICU survivors with chronic critical illness

被引：0
|
作者：
Boss, Renee D. [1 ]
机构：
[1] Johns Hopkins Univ, Berman Inst Bioeth, Dept Pediat, Pediat Palliat Care,Neonatol,Sch Med, 200 N Wolfe St, Baltimore, MD 21287 USA
来源：
SEMINARS IN FETAL & NEONATAL MEDICINE | 2023年 / 28卷 / 04期
关键词：
MEDICAL-COMPLEXITY; CHILDREN; HEALTH; TRACHEOSTOMY; EXPERIENCE; CONFLICT; FAMILIES; ICU; COMMUNICATION; VENTILATION;
D O I：
10.1016/j.siny.2023.101446
中图分类号：
R72 [儿科学];
学科分类号：
100202 ;
摘要：
The sickest of NICU survivors develop chronic critical illness (CCI). Most infants with CCI will leave the NICU using chronic medical technology and will experience repeated rehospitalizations. The unique issues for these NICU graduates- escalating chronic medical technologies, fractured post-NICU healthcare, gaps in home health services, and family strain-are common and predictable. This means that raising family and NICU team awareness of these issues, and putting plans in place to address them, should occur for every NICU infant with CCI. Pediatric palliative care is one resource that can be engaged within the NICU to support the child and family through NICU discharge and beyond. This review examines what is known about the unique needs of infants who leave the NICU with CCI and the role that NICU-initiated palliative care involvement can play for these patients, families, clinicians, and the health care system.
引用
收藏
页数：6
相关论文
共 50 条
  • [41] Survey on Barriers to Critical Care and Palliative Care Integration
    Kyeremanteng, Kwadwo
    Beckerleg, Weiwei
    Wan, Cynthia
    Vanderspank-Wright, Brandi
    D'Egidio, Gianni
    Sutherland, Stephanie
    Hartwick, Michael
    Gratton, Valerie
    Sarti, Aimee J.
    AMERICAN JOURNAL OF HOSPICE & PALLIATIVE MEDICINE, 2020, 37 (02) : 108 - 116
  • [42] Balancing cure with comfort: Palliative care in critical care
    Bion, Julian
    Coombs, Maureen
    PALLIATIVE MEDICINE, 2015, 29 (04) : 288 - 290
  • [43] PHYSICAL EDUCATION AND CARE OF STUDENTS WITH CHRONIC ILLNESS AT SCHOOL
    Verger Gelabert, Sebastia
    Rossello Ramon, Maria Rosa
    De la Iglesia Mayol, Begona
    REVISTA DE PSICOLOGIA DEL DEPORTE, 2016, 25 (01): : 195 - 200
  • [44] Racism in Pediatric Serious Illness and Palliative Care: A Scoping Review of Qualitative Research
    Karbeah, J'Mag
    Murray, Camille R.
    Nakamura, Corelle
    Brahmbhatt, Haley
    Cattaneo, Elena
    Frye, Hailey
    Shen, Erin
    Kavalieratos, Dio
    Johnson, Khaliah A.
    JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 2025, 69 (01) : 44 - 52
  • [45] Communication About Sexuality in Advanced Illness Aligns With a Palliative Care Approach to Patient-Centered Care
    Leung, Margaret W.
    Goldfarb, Shari
    Dizon, Don S.
    CURRENT ONCOLOGY REPORTS, 2016, 18 (02) : 1 - 6
  • [46] Sleep Architecture Patterns in Critically Ill Patients and Survivors of Critical Illness A Retrospective Study
    Georgopoulos, Dimitris
    Kondili, Eumorfia
    Gerardy, Beth
    Alexopoulou, Christina
    Bolaki, Maria
    Younes, Magdy
    ANNALS OF THE AMERICAN THORACIC SOCIETY, 2023, 20 (11) : 1624 - 1632
  • [47] Care Transitions After Critical Illness
    Leggett, Nina
    Taylor, Stephanie Parks
    Haines, Kimberley J.
    CRITICAL CARE CLINICS, 2025, 41 (01) : 141 - 156
  • [48] Anxiety during the chronic critical illness in the intensive care unit - an interpretive phenomenological study
    Moser, Michaela
    Jeitziner, Marie-Madlen
    Spichiger, Elisabeth
    PFLEGE, 2018, 31 (06): : 311 - 318
  • [49] Chronic Kidney Disease Takes, Palliative Care Gives: What a Pediatric Nephrologist Needs to Know about Palliative Care
    Thomas, Makayla
    Mosley, Luke
    House, Taylor R.
    CURRENT PEDIATRICS REPORTS, 2024, 12 (04) : 185 - 193
  • [50] Recommendations for palliative and bereavement care in the NICU: a family-centered integrative approach
    Kenner, C.
    Press, J.
    Ryan, D.
    JOURNAL OF PERINATOLOGY, 2015, 35 : S19 - S23
12345