Dupuytren contracture: using qualitative data to inform a conceptual framework for shared decision-making

被引:3
作者
Cichocki, Meghan N. [1 ]
Chung, William T. [1 ]
Kane, Robert L. [1 ]
Chung, Kevin C. [1 ]
机构
[1] Michigan Med, Sect Plast Surg, Ann Arbor, MI USA
基金
美国国家卫生研究院;
关键词
Shared decision-making; Dupuytren contraction; qualitative; patient-informed; conceptual framework; CONSENT; MODEL;
D O I
10.1177/17531934221133992
中图分类号
R826.8 [整形外科学]; R782.2 [口腔颌面部整形外科学]; R726.2 [小儿整形外科学]; R62 [整形外科学(修复外科学)];
学科分类号
摘要
Multiple treatment options are available to patients with Dupuytren contracture, making shared decision-making complex. Our rigorous qualitative analysis sought to understand patient perceptions of shared decision-making in Dupuytren contracture treatment and create a conceptual framework to optimize patient-physician communication. We interviewed 30 patients with Dupuytren contracture to learn about their experience with treatment selection. The following themes were integral to shared decision-making for Dupuytren contracture treatment: discussing disease progression and treatment initiation, presenting all available treatment options, assessing patients' pre-existing biases towards treatment, patient values and preferences for treatment trade-offs, treatment risks and benefits, physician recommendation and active patient participation. This model can optimize communication about treatment options and expectations for relevant outcomes including, recovery time, contracture recurrence, complications, and treatment-related expenses.
引用
收藏
页码:123 / 130
页数:8
相关论文
共 27 条
[1]   Dermofasciectomy in the management of Dupuytren's disease [J].
Armstrong, JR ;
Hurren, JS ;
Logan, AM .
JOURNAL OF BONE AND JOINT SURGERY-BRITISH VOLUME, 2000, 82B (01) :90-94
[2]  
Bainbridge Christopher, 2012, Eur Orthop Traumatol, V3, P31
[3]   Shared Decision Making - The Pinnacle of Patient-Centered Care [J].
Barry, Michael J. ;
Edgman-Levitan, Susan .
NEW ENGLAND JOURNAL OF MEDICINE, 2012, 366 (09) :780-781
[4]   Patients' preferences for participation in clinical decision making: A review of published surveys [J].
Benbassat, J ;
Pilpel, D ;
Tidhar, M .
BEHAVIORAL MEDICINE, 1998, 24 (02) :81-88
[5]   Cost-Effectiveness of Open Partial Fasciectomy, Needle Aponeurotomy, and Collagenase injection for Dupuytren Contracture [J].
Chen, Neal C. ;
Shauver, Melissa J. ;
Chung, Kevin C. .
JOURNAL OF HAND SURGERY-AMERICAN VOLUME, 2011, 36A (11) :1826-1834
[6]  
Chen Neal C, 2011, Hand (N Y), V6, P250, DOI 10.1007/s11552-011-9326-8
[7]   Systematic review of shared decision-making in surgery [J].
de Mik, S. M. L. ;
Stubenrouch, F. E. ;
Balm, R. ;
Ubbink, D. T. .
BRITISH JOURNAL OF SURGERY, 2018, 105 (13) :1721-1730
[8]   Shared Decision Making: A Model for Clinical Practice [J].
Elwyn, Glyn ;
Frosch, Dominick ;
Thomson, Richard ;
Joseph-Williams, Natalie ;
Lloyd, Amy ;
Kinnersley, Paul ;
Cording, Emma ;
Tomson, Dave ;
Dodd, Carole ;
Rollnick, Stephen ;
Edwards, Adrian ;
Barry, Michael .
JOURNAL OF GENERAL INTERNAL MEDICINE, 2012, 27 (10) :1361-1367
[9]  
European Medicines Agency, 2020, WITHDR MARK AUTH EUR
[10]   Informed consent: how much and what do patients understand? [J].
Falagas, Matthew E. ;
Korbila, Ioanna P. ;
Giannopoulou, Konstantina P. ;
Kondilis, Barbara K. ;
Peppas, George .
AMERICAN JOURNAL OF SURGERY, 2009, 198 (03) :420-435