Principles and philosophies for speech and language therapists working with people with primary progressive aphasia: an international expert consensus

被引：39

作者：

Volkmer, A. ^{[1
]}

Cartwright, J. ^{[2
]}

Ruggero, L. ^{[3
]}

Beales, A. ^{[2
,4
]}

Gallee, J. ^{[5
,6
]}

Grasso, S. ^{[7
,8
]}

Henry, M. ^{[7
,8
]}

Jokel, R. ^{[9
,10
,11
]}

Kindell, J. ^{[12
]}

Khayum, R. ^{[13
,14
]}

Pozzebon, M. ^{[15
]}

Rochon, E. ^{[16
]}

Taylor-Rubin, C. ^{[17
,18
]}

Townsend, R. ^{[19
]}

Walker, F. ^{[20
]}

Beeke, S. ^{[1
]}

Hersh, D. ^{[21
,22
,23
]}

机构：

[1] UCL, Div Psychol & Language Sci, London, England

[2] Curtin Univ, Curtin Sch Allied Hlth, Perth, WA, Australia

[3] Macquarie Univ, Sch Psychol Sci, Sydney, NSW, Australia

[4] Community Rehabil Unit, Hobart, Tas, Australia

[5] Harvard Univ, Div Med Sci, Program Speech & Hearing Biosci & Technol, Cambridge, MA USA

[6] Evergreen Speech & Hearing Clin, Redmond, WA USA

[7] Moody Coll Commun, Dept Speech Language & Hearing Sci, Austin, TX USA

[8] Univ Texas Austin, Med Sch, Dept Neurol, Austin, TX USA

[9] Rotman Res Inst, Toronto, ON, Canada

[10] Univ Toronto, Fac Med, Toronto, ON, Canada

[11] Baycrest Hlth Sci, Toronto, ON, Canada

[12] Pennine Care NHS Fdn Trust, Ashton Under Lyne, England

[13] Northwestern Univ, Cognit Neurol & Alzheimers Dis Ctr, Feinberg Sch Med, Chicago, IL 60611 USA

[14] MemoryCare Corp, Aurora, IL USA

[15] Royal Melbourne Hosp, Speech Pathol Dept, Royal Pk Campus, Melbourne, Vic, Australia

[16] Univ Toronto, Univ Hlth Network, KITE Res Inst, Dept Speech Language Pathol & Rehabil Sci Inst, Toronto, ON, Canada

[17] War Mem Hosp, Speech Pathol Dept, Sydney, NSW, Australia

[18] Macquarie Univ, Dept Cognit Sci, Sydney, NSW, Australia

[19] Dyscover Ltd, Leatherhead, Surrey, England

[20] Carrington Hlth, Speech Pathol Dept, Melbourne, Vic, Australia

[21] Edith Cowan Univ, Sch Med & Hlth Sci, Perth, WA, Australia

[22] Edith Cowan Univ, Sch Med & Hlth Sci, Speech Pathol, Perth, WA, Australia

[23] Univ Adelaide, Fac Hlth & Med Sci, Sch Allied Hlth Sci & Practice, Adelaide, SA, Australia

来源：

DISABILITY AND REHABILITATION | 2023年 / 45卷 / 06期

关键词：

Primary progressive aphasia; speech and language therapy; speech-language pathology; consensus; best practice principles; SEMANTIC DEMENTIA; CLINICAL-COURSE; NOMINAL GROUP; CARE; STRATEGIES;

D O I：

10.1080/09638288.2022.2051080

中图分类号：

R49 [康复医学];

学科分类号：

100215 ;

摘要：

Purpose Primary progressive aphasia (PPA) is a language-led dementia associated with Alzheimer's pathology and fronto-temporal lobar degeneration. Multiple tailored speech and language interventions have been developed for people with PPA. Speech and language therapists/speech-language pathologists (SLT/Ps) report lacking confidence in identifying the most pertinent interventions options relevant to their clients living with PPA during their illness trajectory. Materials and methods The aim of this study was to establish a consensus amongst 15 clinical-academic SLT/Ps on best practice in selection and delivery of speech and language therapy interventions for people with PPA. An online nominal group technique (NGT) and consequent focus group session were held. NGT rankings were aggregated and focus groups video recorded, transcribed, and reflexive thematic analysis undertaken. Results The results of the NGT identified 17 items. Two main themes and seven further subthemes were identified in the focus groups. The main themes comprised (1) philosophy of person-centredness and (2) complexity. The seven subthemes were knowing people deeply, preventing disasters, practical issues, professional development, connectedness, barriers and limitations, and peer support and mentoring towards a shared understanding. Conclusions This study describes the philosophy of expert practice and outlines a set of best practice principles when working with people with PPA.

引用

页码：1063 / 1078

页数：16

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