Nontherapeutic research with imminently dying and recently deceased study populations: addressing practical and ethical challenges

被引:6
作者
Murphy, Nicholas B. [1 ,2 ]
Weijer, Charles [1 ,2 ,3 ]
Ganesan, Saptharishi Lalgudi [4 ]
Dhanani, Sonny [5 ]
Gofton, Teneille [6 ]
Slessarev, Marat [1 ,7 ]
机构
[1] Western Univ, Schulich Sch Med & Dent, Dept Med, London, ON, Canada
[2] Western Univ, Dept Philosophy, 1151 Richmond St, London, ON N6A 3K7, Canada
[3] Western Univ, Dept Epidemiol & Biostat, London, ON, Canada
[4] Western Univ, Dept Paediat, London, ON, Canada
[5] Univ Ottawa, Childrens Hosp Eastern Ontario, Pediat Crit Care, Ottawa, ON, Canada
[6] Western Univ, Schulich Sch Med & Dent, Dept Clin Neurol Sci, London, ON, Canada
[7] Trillium Gift Life Network, London, ON, Canada
来源
CANADIAN JOURNAL OF ANESTHESIA-JOURNAL CANADIEN D ANESTHESIE | 2023年 / 70卷 / 04期
关键词
death; ethical review; ethics research; guidelines; risk assessment; INTENSIVE-CARE-UNIT; END-OF-LIFE; CRITICALLY-ILL;
D O I
10.1007/s12630-023-02414-5
中图分类号
R614 [麻醉学];
学科分类号
100217 ;
摘要
引用
收藏
页码:596 / 602
页数:7
相关论文
共 20 条
[1]   Parental Perspectives on Roles in End-of-Life Decision Making in the Pediatric Intensive Care Unit: An Integrative Review [J].
Bennett, Rachel A. ;
LeBaron, Virginia T. .
JOURNAL OF PEDIATRIC NURSING-NURSING CARE OF CHILDREN & FAMILIES, 2019, 46 :18-25
[2]   The ethical conduct of clinical research involving critically ill patients in the United States and Canada - Principles and recommendations [J].
Bernard, GR ;
Cook, DJ ;
Hebert, P ;
Karlawish, JHT ;
Kiley, JP ;
Korn, D ;
Lemaire, F ;
Lo, B ;
Luce, JM ;
Martin, TR ;
Miller, FG ;
Rubenfeld, G ;
Schwetz, BA ;
Silverman, HJ ;
Steinbrook, R ;
Thompson, BT ;
Walsh, J ;
Weijer, C ;
Luce, JM ;
Cook, DJ ;
Martin, TR ;
Angus, DC ;
Boushey, HA ;
Curtis, JR ;
Heffner, JE ;
Lanken, PN ;
Levy, MM ;
Polite, PY ;
Rocker, GM ;
Truog, RD .
AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE, 2004, 170 (12) :1375-1384
[3]  
Canadian Institutes of health research natural sciences and engineering Research Council of Canada and social sciences and humanities Research Council, 2018, Tri-Council Policy Statement: Ethical Conduct for Research Involving Humans.
[4]   Resumption of Cardiac Activity after Withdrawal of Life-Sustaining Measures [J].
Dhanani, S. ;
Hornby, L. ;
van Beinum, A. ;
Scales, N. B. ;
Hogue, M. ;
Baker, A. ;
Beed, S. ;
Boyd, J. G. ;
Chandler, J. A. ;
Chasse, M. ;
D'Aragon, F. ;
Dezfulian, C. ;
Doig, C. J. ;
Duska, F. ;
Friedrich, J. O. ;
Gardiner, D. ;
Gofton, T. ;
Harvey, D. ;
Herry, C. ;
Isac, G. ;
Kramer, A. H. ;
Kutsogiannis, D. J. ;
Maslove, D. M. ;
Meade, M. ;
Mehta, S. ;
Munshi, L. ;
Norton, L. ;
Pagliarello, G. ;
Ramsay, T. ;
Rusinova, K. ;
Scales, D. ;
Schmidt, M. ;
Seely, A. ;
Shahin, J. ;
Slessarev, M. ;
So, D. ;
Talbot, H. ;
van Mook, W. N. K. A. ;
Waldauf, P. ;
Weiss, M. ;
Wind, J. T. ;
Shemie, S. D. .
NEW ENGLAND JOURNAL OF MEDICINE, 2021, 384 (04) :345-352
[5]   Risk to bystanders in clinical trials: A symposium [J].
Eyal, Nir .
CLINICAL TRIALS, 2019, 16 (05) :447-449
[6]   Maximizing benefits and minimizing risks in palliative care research that involves patients near the end of life [J].
Fine, PG .
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 2003, 25 (04) :S53-S62
[7]   Conducting end-of-life studies in pediatric oncology [J].
Hinds, Pamela S. ;
Burghen, Elizabeth A. ;
Pritchard, Michele .
WESTERN JOURNAL OF NURSING RESEARCH, 2007, 29 (04) :448-465
[8]   The therapeutic misconception - Problems and solutions [J].
Lidz, CW ;
Appelbaum, PS .
MEDICAL CARE, 2002, 40 (09) :55-63
[9]   Knowledge gaps in the definition and determination of death [J].
Maitre, Guillaume ;
Shemie, Sam D. ;
Baker, Andrew ;
Chasse, Michael ;
Hornby, Laura ;
Sarti, Aimee J. ;
Teitelbaum, Jeanne ;
Dhanani, Sonny .
CANADIAN JOURNAL OF ANESTHESIA-JOURNAL CANADIEN D ANESTHESIE, 2023, 70 (04) :610-616
[10]   Addressing ethical confusion in deceased donation and transplantation research: the need for dedicated guidance [J].
Martin, Dominique E. ;
Cronin, Antonia J. ;
Dalle Ave, Anne ;
van Haren, Frank M. P. ;
Locke, Jayme E. ;
Minambres, Eduardo ;
Oniscu, Gabriel C. ;
Parent, Brendan .
TRANSPLANT INTERNATIONAL, 2021, 34 (12) :2459-2468