Advance Directives in Portugal: A Qualitative Survey

被引:0
|
作者
Macedo, Joao Carlos [1 ,2 ,3 ]
Macedo, Ermelinda [1 ,2 ]
Nunes, Rui [4 ]
机构
[1] Univ Minho, Nursing Sch, Campus Gualtar, P-4710057 Braga, Portugal
[2] Nursing Sch Coimbra ESEnfC, Hlth Sci Res Unit Nursing UICISA E, Ave Bissaya Barreto, P-3046851 Coimbra, Portugal
[3] Univ Minho, Res Ctr Justice & Governance JusGov, Sch Law, Campus Gualtar, P-4710057 Braga, Portugal
[4] Univ Porto, Fac Med, Ctr Bioeth, P-4200319 Porto, Portugal
关键词
advance directives; living will; healthcare power of attorney; autonomy; end of life; experience; attitude; knowledge; PALLIATIVE CARE; CANCER-PATIENTS; KNOWLEDGE; LIFE; END; PERCEPTIONS; FREQUENCY; ATTITUDES; IMPACT;
D O I
10.3390/healthcare12020195
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
(1) Background: Advance directives (ADs) in Portugal have been legalized since 2012. What has been observed over time, from the few studies carried out, is that despite the positive attitudes in the population, there is a low level of adherence to ADs. To try to understand the reasons for these data, the current study aimed to explore and describe the experiences of the Portuguese population regarding AD. (2) Methods: For this exploratory and descriptive qualitative study, the researchers conducted open (unstructured) interviews with a convenience sample aged over 18 years until data saturation was achieved. (3) Results: A total of fifteen interviews were conducted-eight with women and seven with men. The following four categories emerged from the content analysis of the interviews: (1) AD literacy, (2) AD relevance, (3) AD attitudes, and (4) conditionalities for compiling the ADs. (4) Conclusions: The study pointed out the good receptivity of the participants to the ADs; however, literacy on this subject was low, and identifying the conditionalities in the development of ADs could contribute to improvements in implementation in the population. The data from this study suggest the need to implement measures to increase the literacy of the Portuguese population on ADs and review the legal framework for improving the accessibility of the citizen population. There is also a need to continue researching and obtain more evidence about the ways in which the Portuguese population perceives ADs; thus, in this way, a society can better respond to its citizens' right to freely exercise their prospective autonomy at the end of their lives.
引用
收藏
页数:15
相关论文
共 50 条
  • [1] Attitudes of the Portuguese population towards advance directives: an online survey
    Macedo, Joao Carlos
    Castro, Luisa
    Nunes, Rui
    BMC MEDICAL ETHICS, 2024, 25 (01)
  • [2] Study of the factors influencing the preparation of advance directives
    del Pozo Puente, Katia
    Lopez-Torres Hidalgo, Jesus
    Simarro Herraez, Ma Jose
    Navarro Bravo, Beatriz
    Olcina Rodriguez, Jordi
    Gil Guillen, Vicente
    ARCHIVES OF GERONTOLOGY AND GERIATRICS, 2014, 58 (01) : 20 - 24
  • [3] Attitudes of the Portuguese population towards advance directives: an online survey
    João Carlos Macedo
    Luísa Castro
    Rui Nunes
    BMC Medical Ethics, 25
  • [4] Advance directives and the impact of timing A qualitative study with Swiss general practitioners
    Otte, Ina Carola
    Jung, Corinna
    Elger, Bernice Simone
    Bally, Klaus
    SWISS MEDICAL WEEKLY, 2014, 144
  • [5] Perceptions, Attitudes, and Knowledge toward Advance Directives: A Scoping Review
    Macedo, Joao Carlos
    Rego, Francisca
    Nunes, Rui
    HEALTHCARE, 2023, 11 (20)
  • [6] Predictors of Agreement With Writing Advance Directives Among Older Korean Adults
    Park, Jaewon
    Song, Jun-Ah
    JOURNAL OF TRANSCULTURAL NURSING, 2016, 27 (06) : 574 - 582
  • [7] Why have Advance Directives failed in Spain?
    Herreros, Benjamin
    Benito, Maria
    Gella, Pablo
    Valenti, Emanuele
    Sanchez, Beatriz
    Velasco, Tayra
    BMC MEDICAL ETHICS, 2020, 21 (01)
  • [8] Advance directives of lung cancer patients and caregivers in China: A cross sectional survey
    Feng, Chenchen
    Wu, Juan
    Li, Junying
    Deng, Han Yu
    Liu, Jiewei
    Zhao, Shuzhen
    THORACIC CANCER, 2020, 11 (02) : 253 - 263
  • [9] Survey on German Palliative Care Specialists' Experiences with Advance Directives
    Zenz, Julia
    Zenz, Michael
    PAIN AND THERAPY, 2017, 6 (01) : 17 - 28
  • [10] Knowledge and misconceptions on advance directives-results of a citizen survey
    Fleischmann, Carolin
    Henking, Tanja
    Neuderth, Silke
    BUNDESGESUNDHEITSBLATT-GESUNDHEITSFORSCHUNG-GESUNDHEITSSCHUTZ, 2023, 66 (10) : 1172 - 1182